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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Appleblossom....

My eyes are a little wide... You came and you stayed!! Me too when I started....it was so weird when we both started: we all just pushed through all that isolation and self h.........

We just needed to be heard but also to get our own history straight on our heads too........

You were very strong those days in beginnings of Sane Forums.....We were suffering.

Your still amazingly groovy.....

Don't you forget that!

Possum.....

In response to: Re: A long rave

Re: A long rave

Hiya everyone 👋☺

Far out that's a lot going on for you @Mazarita. No wonder you feel full of health care stuff at the moment! So good to hear you slept well last night and the anxious feelings have settled a bit.

You asked earlier whether I've heard anything about my DSP application and I haven't. It seems to be progressing faster than my NDIS one at this stage though. I was told it could be up to six weeks to hear whether it's been rejected, approved or I'm being referred for a DMA (disability medical assessment). The assessment seemed to go pretty well with the assessor mentioning that my documentation was very thorough (yay for super anxiety/me being kind of obsessively into it to make sure it would be 😉) and covering as much as they needed. In saying that, I know how hard it is to get so I am expecting not good news. I've done everything I can at this stage and am OK with that ☺

It's been a busy afternoon for me. It feels strange to come out of a few weeks in a lovely bubble, and straight into the chaos that can be kids and school holidays. I'm finding I have a lot less energy than before, which maybe isnt the worst thing as my energy was probably next level agitation, but I feel tired a lot more now. I also really want to get into our routine but our routine on school holidays is that there really isn't one. All up we had a pretty good day though and went for a long walk/ride around the lake so that was nice. Crochet and cup of tea time for me now 😊

Hope everyone is well tonight 💗

In response to: Re: A long rave

Re: A long rave

@PeppiPatty

In response to: Re: A long rave

Re: A long rave

Hi guys, anyone on for a chat

In response to: A long rave

Re: A long rave

hi @Mazarita@The-red-centaur@PeppiPatty@Bunniekins and all who pass through or may still be awake.

hows your evening treating you?

In response to: Re: A long rave

Re: A long rave

Hello Everyone 🙂

I'm just about to make coffee number 2 {I try to stick to 2 coffee's, I think you do too don't you @CheerBear ?} But waking up a little earlier often means I act the rebel & go for the third 🙂

I think the reason I'm waking a little earlier is because it's a little cooler & that causes the likes of bladders to contract a little more. So my staffy wakes up a little earlier & makes a little whinge & when I wake up a little he then jumps up on the bed, which is when I realize he might need to go. . . & I often shut the back door in winter, so I realize I have to get up & open it for him - that realization tends to trigger another, which is 'oh . . . I have to go too!'. Once I've gotten out of bed & we both 'go', I'm awake & well, that's that then. I do sometimes jump back into bed & lay in the warmth waiting for some light to happen, as I did this morning 🙂

I ran out of power last night, so I'm running on my secondary solar system at the moment; hopefully it'll last until the sun reaches it & I can use it all day, giving the primary system a chance to recover properly. Though the secondary system runs on my 'farm cars' battery & I'm going to need the farm car soon to get another load of breakable branches for the firebox - & it'll need a days recovery to be able to start the car.

I'm getting a little tired of the winter routine, but not the temperature. I don't want much, I'd just like it to be Autumn all year round . . . I'd say Spring all year, except spring out here is like summer . . . summer is like . . . hell!

Anyhow, enough of a rave, Thanks

May you be able to see something positive through today

In response to: Re: A long rave

Re: A long rave

Good morning all, another long night's sleep here. The most recent new med I've started has really got me sleeping at night. It seems like a miracle. No overnighters for me lately. I'm usually too tired as the evening advances to do that, so end up in bed much earlier. I'm mostly not even making it to pumpkin hour. Last night, for example, I went to bed at 9pm. Then, when I wake up in the middle of the night two or three times, as I still do to go to the loo, I'm so tired I just want to go back to bed instead of getting on the computer and staying on it for sometimes hours, as I used to. For anyone who knows what my sleeping patterns have been like for all three years I've been on the forum, it is a miracle.

@CheerBear, thanks for the news on your DSP process. I'm really interested to follow it with you. So hoping it comes off for you this first time round. Great that you are able to settle with the knowledge that you have done all you can for it. Do the school holidays end this week? Hope your routine returns as soon as possible.

@Exoplanet, I hear you about getting tired of your routines. Yesterday I felt very bored of my life. Not just a moment or period of boredom, but one of those moods in which everything about it seems boring and repetitive. I think I would be really out of my mind with boredom if I didn't have video making. But I finished one earlier in the week, it took a long time to make, and I'm just not ready yet to dive into another. Leaves quite a vacuum in my days. May contentment find us quickly and more enduringly.

@PeppiPatty, @outlander, @The-red-centaur, @eth, @Bunniekins, @Appleblossom, @Faith-and-Hope and everyone, sending love and warm wishes for the new day.

In response to: Re: A long rave

Re: A long rave

Hi everyone @Mazarita @CheerBear@Bunniekins @Appleblossom @outlander @Exoplanet @The-red-centaur @PeppiPatty and anyone else around here this morning.

Hoping today has started smoothly for you all.

@Mazarita No wonder you feel like your health is a full-time job at the moment. Great news about the all-clear on the big C. Hoping all the fillings are easy ones and that process unfolds eventlessly. Good luck with the neurologist, sorry to hear you're in more pain in more parts than usual lately. Hope you can draw the boundaries with the new 'friend' without confrontation. Look forward to catching up for a chat.

@CheerBear Hoping you hear about one or both of your applications soon. The waiting is so hard. Have a lovely time with your kids today

Lots of posts since I was last on, can't reply to them all, but I'm following and feeling for those of you being challenged at the moment.

In response to: Re: A long rave

Re: A long rave

Sorry @Mazarita - to answer your question - path test is pathology test - a full battery of blood tests that gets done a few times a year. Partly to guard against some of the longer term side-effects ('undesired effects'!) of the psych meds e.g. prediabetes, liver issues, kidney function etc ..... you probably know about all that already.

In response to: Re: A long rave

Re: A long rave

@eth, around now for chat, if you are too. Any plans for today? I know you usually have the support worker today, but that she came yesterday. Hope you got everything done you wanted done with her. I had the thought this morning that I could write to the new friend instead of speak on the phone. As in send an old fashioned snail mail letter. I express myself better and probably more compassionately in written words. I wonder if this is a crazy idea. Thanks for your good wishes about the health challenges. Like I said, I mostly feel better than I have for some time, but there are things to address. Phew on escaping the big C, though the one that was suspected is a highly treatable form of it (with surgery). Very relieved I don't have to go through that.

Oh, just got your second message. Path test, should have known it meant pathology, lol. In fact, I rarely to tests like that for side effects of meds. It's probably a bit of a lack in my treatment now you come to mention it. Usually the blood tests I have happen about once a year, and it's often to check on crohns issues, though there are probably checks for possible bad side effects of meds too.

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