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Another BlueBoard Refugee

Another BlueBoard Refugee

Hi I'm Ginger, The Whinger Part is tacked on more in honour of my Ginger cat who likes to meow a lot who's identity I have assumed for the internet 🙂

He's currently whinging to empty walls as I am in psyche. I've been in here for a week and am due to start ECT for the first time tomorrow. The ECT doc will be coming to my room within the next half hour. I hope everything gets said that needs to get said. I'm scared about the seizure activity because my body is so good at doing seizures when its not meant. I'm sure it will pass tomorrow with flying colours.

The reason I'm having ECT is for decades of treatment resistant depression.

I'll keep this short and sweet and see if I get any nibbles, I mean responses. Cheers.

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In response to: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Thank you @Former-Member,

I have absolutely NO idea why we used to go all that way to Bondi when we lived on the North Shore - makes ABSOLUTELY no sense but I remember loving the journey over the Sydney Harbour Bridge for some reason. Do you remember that jetty they used to get you to jump off during swimming lessons at Bondi - for some reason I was terrified that this particular shape under the water was a dead body lol.

Thank you for trip down memory lane and a reminder of my background. Why should this little girl born to parents in a sprawling beachside mansion feel social justice embedded into every fibre of her DNA. Why did this little girl enjoy life more when it took her to a rural, disadvantaged indigenous community where alcohol abuse was as prevalent amongst the minority whites as it was the original land owners?

Today, I have been overwhelmed by grief. I am approaching 50. I didn't study social work as an option - it was because it was it is who I am, my core values. When I started in the field 30 years ago, mainly sums of money would go to local management committees, to be administered for their local community. As a professional, the frustration was usually that management committees consisted of untrained, unexperienced people who did not understand what it was like on the coalface for workers or clients. In those days, if you weren't 100% dedicated to your clients, you would never had found work in the NGO sector. We went the extra mile, we almost laid down our lives in advocating for our clients. There were very difficult client behaviours but we still saw ourselves on the same side - their side.

Thirty years later we have massive national corporate like entities, operating on "business models" with directives coming from head office in Sydney or Melbourne. "Broken people" are milked as their cash cows. It's about gettting and keeping their jobs - and climbing the ladder - not a client-centred approach.

As you know I have found a sense of "home" in one of Australia's most disadvantaged areas. My heart breaks as the people in my community as seen as "less than" and "worthless" by these entities paid millions to "help" us. Our community is more than just our problems - there is inherent personal worth and there are also valuable personal assets in each individual in this so called "broken", "irreedemable" region.

So many out of area worker's mortgages are getting paid, and people feeling proud of their fancy new titles and their plush new offices - to "fix" us people the workers view as worthless. Very little of those funds reach the people in need - it's all gobbled up in administration. Those networking meetings need some fancy catering you know! They are well catered dates with Palmela Handerson, - (the collective nature of the event may skew the euphenism though).

At the moment, community members are even bumping into each other in the street and bursting into tears comforting each other, reminding each other that still we have each other, that together as a community we have strengths and together we will get through. We have businesses all around us, collecting millions of dollars to "service" our community's "brokeness" but they discriminate against us, and pocket the funds for themselves. Their abuses exaccerbate our issues.

I understand we all have personal values and there is no way that we can ever hope for the world to align completely with our personal values. Of course my heart will break for what has been lost - the last organisation in our area that treated us with respect and dignity and helped us heal and empower ourselves. It is a real and tragic loss for me on many levels but all I can ever control is me - and aligning my own behaviour with my values - and surrounding myself with like-minded people.

As deep as my grief and disillusionment is, my cat is safe and well, my son is safe and well, I have a roof over my head and food in my belly. I have connections with others that are consolidating. Overall my health has improved since ECT and I think I am managing my ptsd quite well, considering. I'm taking pretty good care of myself - and that's all we can ever do when something feels overwhelming.

It's like focussing on our breath when we stub our toe. The pain draws our attention towards our toe but we need to see that there is more to us than our toe, that more is right with us than wrong with us... and that there are good things in the world too.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Learning to swim is iconic Aussie .. OTE and Ginger My migrant family don't swim well ... look hilarious in the water ... my dad was the only Aussie relative I knew ... I was discharged from being "in care", to my parents and we lived in Sydney. It was like I was an only child, whilst the others were in their various foster placements ... I was 8-10 so have clear memories of a caring father. Dad took me around the harbour on hikes and swims ... exploring new spots .. We lived 5 mins from Garden Island .. so I got to see ships and meet a captain or an odd friend in the mess. I credit that period of stability with both parents saved my life .. there only a few odd behaviours that would suggest their MI to me a that age. My mother hated it though so I was silenced if I mentioned any of it ... Interesting that your folks drove you all that way over the bridge. I think it was just the sea water-pool and the surf combination were a good motivation for me to try and swim .. no lessons ... just dad ... but he was schizophrenic ... but he wasn't when he was allowed to interact with me ... I might be delusional about that but ??? There are a lot of people who grow up with a strong leaning for social justice. I too felt closer to Indigenous people but probably not able to make as much of a difference as you Ginger. I try to level the playing field and bring the downcast 'up' in my own way. My sister lived with a North Shore family for 4 years who genuinely cared about her. It was actually the split loyalties and ways of living there or the housing commission flats ... after she visited for a wedding .. that made it tougher for her .. ... she was more subtle about social stuff than me, though she was younger. So I learned a lot from her before she went. My brother called today from near the Georges River. I still have a big love of Sydney though I do prefer Melbourne for driving ... lol .. How old is your son? I am interested that you advocate ECT for yourself. Ginger ... I was terrified when they planned to do it my son, but now I wonder if I should get some done ... it might be less invasive in some ways than chemical meds .. ???

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

@Appleblossom It was beautiful to hear about your life. Even though some of it was so sad to read, it certainly would have been far much harder for you to have to live through - hugs. It's quite amazing what the human spirit can endure and prevail through. I take my hat off to you.

I wonder how @Former-Member is? She's be quiet for a while.

How are you @BeeGee?

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

I'm trundling along. I'm sitting at my desk, eyes hanging out with fatigue, trying to find some relevant research on non-tuberculous mycobacterial infection and treatment to prepare a case for presentation on Friday, and not having much success. Man, I want this year to be over.

I'm in week 4 of my latest med now and surprise surprise am so far completely unresponsive. I will push on but hope is dimming for this one. I'm trying to decide whether to go with an add-on to this one in another couple of months or whether to switch to something else.

Generally I'm feeling tired and flat, and some days my brain is just a big bowl of blue mush. I just turned 50 yesterday; we're going out for a slap-up dinner tomorrow night so I'm trying to muster some enthusiasm for that rather than the detached indifference I feel for everything. Some days I almost wish I could have bouts of feeling miserable - at least that would be something! But no, it's just the same relentless grey grind, day after day, year after year, decade after decade. Geez I do sound like a miserable old b#####d don't I!

Clearly I am over-tired. I will take myself off to bed now.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Happy Birthday @BeeGee

My friend in medical research. I have flicked her an email to tell her you have to present a case to treat non-tuberculous mycobacterial infection tomorrow and see if she has an tips or links in regards to solid research on the matter.

(If its any consolation. She's young and her eyes hang out with fatigue and her brain feels like a big bowl of blue mush too. I have so much admiration for her persistence, as I do yours. I feel honoured to be the person she vents to when her lingards refuse to complex - and that is the least of the her problems - the political, financial, interpersonal, managerial issues that accompany her research is purely astounding. She finds the supervision of her students difficult. And she does it all without meds or psychotherapy - and an abusive family of origin. Like I said she's young though... possibily that helps towards her herculan achievements. For her career success is her ticket out of her unhappy situation... a way of placing herself on the international stage..... so that keeps her focussed and indomitable in the face of her many disappointments).

Mycobacterical infection is not her field of expertise and she is really busy but she is a powerhouse and in the swing of medical research. She may decide to put aside her workload to help a friend. It's 11pm where she is, so it is unlikely she will see the email until the morning... which will be too late... but she doesn't sleep much so we might be in luck.

Did I happen to mention - happy birthday - you grumpy old man 🙂

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Thanks Ginge.

I'm staying home today to keep pounding away at the assignment as tonight will be a write-off (in terms of getting any work done that is!). Hopefully I can maintain motivation to get the damn thing finished.

Thanks for your contact with your research friend. I have huge admiration for medical researchers. They work in a field that provides extremely poor support, soldier away against the odds on shoestring budgets (if they get any funding at all) and produce phenomenal results that benefit vast numbers of people. And they keep doing it, with little recognition or thanks (with the occasional exception of the Ian Frazers of this world). The major difficulty with my literature review is that the research I find needs to be relevant to my patient at this time... there is lots of research but little of it can be tied in with my case, sadly.

I confess I have no idea what a lingard is, or how it might complex or with what... clearly a level of esotericism I will probably never scale!

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

@BeeGeeWell you will be pleased to know I give Howard Florey due credit in the historical fiction I'm writing - but I'll let you get back to your complex patient who is helping you to develop into a substantial medical practitioner

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Hello @GingerWhinger

So sorry I have not posted for awhile. This week has been a very difficult one for me. My husband is still in chronic pain (and he has a high tolerance, so that's not good), and I have been running around making sure the pressure is off him and then keeping up with my commitments at the shop. My daughter has also broken up with her boyfriend (he just used her evidently), and I am really worried about the effect on her mentally and what she may do. She didnt go into work today. All in all a very depressing week but will take it one day at a time hoping the situation for my loved ones will improve. Daughter is the main concern - she may go off the rails or do something harmful.

We are offering all our love and support - I just hope it's enough.

And I have been so tired, so drained but refuse presently to let all this stop me from functioning and having a relatively normal life. But my heart is so heavy.

I hope all is well with you my friend and that @BeeGee gets a much deserved break from all the pressure too. Hoping you are okay too @Appleblossom. Thinking of you all and will post again soon. Lots of love x❤️

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

So sorry to hear things are not going well in your world at the moment. Thinking of you all.

I'm having a mini breath-catcher - I just finished the first half of this rotation, infectious diseases, and am starting the second half tomorrow - palliative care. I'm quite looking forward to it, and hope I have the opportunity to spend some quality time with patients and their families rather than being hustled through some arbitrary agenda.

I hope hubby manages to get on top of his pain. I wonder if you have access to any pain clinics or specialist pain physicians where/near where you live? They can sometimes do almost miraculous things in the management of chronic pain.

Hoping too that your daughter does not fall over the edge (!) after this break-up, and that she is able to see the positive aspects of it if the bf was just a user. Of course this may just reinforce her BPD maladaptations too...

Sending you lots of hugs.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

@Former-Member

Hey Sweetheart,

I'm sorry to read that you are going through a dark patch. Is there anything you can do to bring a bit of joy into your day momentarily? Even if it is to have a friend over or spending some time in the garden? Can you do your cross-stitch? Can you get support for you as you support the members of your family? Please remember you are a valuable person and you need to be nurtured too.

You must feel so powerless seeing the man you love in such constant pain. (The drug that we shall not mention has very good results for chronic pain, so if things continue to worsen for Mr OTE, it is a topic you might want to raise with his consultant)

Given that Miss OTE is not acting out yet, do you have a window of opportunity to gently suggest to her self-care options which might help her through endure the pain that such situations bring, in the least harmful ways to herself (and the people who love her most?)

Just trying to brainstorm options... Only from what you've written I've got the feeling that life might be feeling a little small for you atm. I may be totally off target. In which place, please excuse me. In that feeling state though, our problems can overwhelm us, and as your friend, I wish for you a healthy level of recreation and relaxation in your life; a balance.

Even if I have "missed the mark", my post is well intentioned and full of love for you and your family.

Warmth and friendship,

Ginger xo

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