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Another BlueBoard Refugee

Another BlueBoard Refugee

Hi I'm Ginger, The Whinger Part is tacked on more in honour of my Ginger cat who likes to meow a lot who's identity I have assumed for the internet 🙂

He's currently whinging to empty walls as I am in psyche. I've been in here for a week and am due to start ECT for the first time tomorrow. The ECT doc will be coming to my room within the next half hour. I hope everything gets said that needs to get said. I'm scared about the seizure activity because my body is so good at doing seizures when its not meant. I'm sure it will pass tomorrow with flying colours.

The reason I'm having ECT is for decades of treatment resistant depression.

I'll keep this short and sweet and see if I get any nibbles, I mean responses. Cheers.

113 replies

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In response to: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Hi @BeeGee

Congrats on your decision to follow the Rural GP pathway! Big steps ahead!

Thanks for also sharing your different trials with different medications and therapies. I thought i'd just take the time to mention to the other contributors to remember that not all the same medications and therapies work best for you, and like @BeeGee has done, the best thing to do is consult with your GP or clinician to discuss whats best for you.

Good luck and look forward to hearing more about your journey!

Outlanderali

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Howdy,

Those who know me from Blueboard know that I'm usually a little more regular in my posts than this.

I have found that for me ECT certainly reset my brain and the changes in my brain ripples out to changes in behaviour and therefore changes in my life.

In my 46 years every therapy and treatment I have dedicated myself to has largely failed. I therefore have not encountered the challenges that rapid improvement can bring with it. I will state empathically that even with the challenges of rapid improvement, I am grateful for the rapid improvement. It doesn't mean that every day is a good day but it does mean that for the first time in my life I can have days of peace, clarity and happy. Having been born with depression, is like being born psychiatrically blind and it is now like I have days where I can "see".

Because I have worked so hard on the psychological components on the depression, it was like once the psychiatric cause (in my case) was effectively treated, I could have that rapid improvement because I'd done many years of ground work for less depressive thinking to take effect. However, like most things in life, it is not that black and white. PTSD is my major illness. Trauma from infancy does change the brains structure, it does cause brain damage but it of course has that psychological component that still needs consistent work. The ketamine doctor hopes that ketamine will somewhat help break down and prevent that immediate trigger response to some degree.

I actually had severe memory loss in the first four weeks of discharge and no post discharge support whatsoever. My private health insurer set up impossible hoops for me to jump through for my claims to be covered. I had tried to sort it out three times and had total amnesia of each attempt. The service providers were lovely and told me we had had this conversation before. They could understand that I had no family and no carer. They told me to ring the Ombudsman and the Ombudsman had the insurer paying my claims within three days no more questions asked. That level of amnesia was quite a concern though. I seem to be remembering everything four weeks post the last treatment though.

I'm very disappointed with the lack of post discharge support. I feel like I could get so much more out of the treatment I've been given if I had that post-treatment support. ECT has reset my brain. Although my illnesses work in the same way, the way I see my life has changed. I have different desires, you could even call it motiviation, but still without sufficient health to chip away at many of those goals. That said, I have broken down and chipped away at some things in the past 5 weeks but it has taken every bit of determination I have in me for the simplest of tasks.

I have bought a mop bucket. I have bought a mouse trap. I have banked a cheque. These tasks although regarded "simple" have been each been broken into smaller steps that have taken every bit of strength and persistence I possessed. They are however, things that would not have got done prior to ECT.

I take your point BG about what has been achieved and is possible.

I would like to make an outpatients appointment with the psychiatrist I had in hospital, as a way of trying to maximise treatment and try to further some of the goals I have, as well as consolidate the gains I have made.

I've spent 46 years of my life in the wilderness. While every day can't be a good day, I want to treasure and maximise the amount of health available to me in my twilight years.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Ginger, I really relate to what you are saying about learning to live in a less/non depressed state... that resonates with me so much. Although I don't believe I was born with depression, I've certainly been depressed since early teens, so memories of pre-depression childhood aren't terribly helpful for illuminating what normal adult life is supposed to be like. I've often wondered (and posted on BB) what it would mean to be me without the depression - would I even know how to be me? Who would that be, anyway? Me minus depression must surely be a different kind of person as it has so fundamentally contributed to who I am now.

It's great to hear that your hard psychological work over the years is now finally starting to bear real fruit.

I look forward to hearing more of your journey and how normalising your "new you" pans out over time. Thank you for sharing so honestly of your experience, it's a great encouragement to me.

BTW, I presume your conference has come and gone by now? What happened with that, have you heard?

In response to: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Over the Edge,

How is your hubby's shoulder? And has he started more aggressive treatment for his prostate?

I've searched to board to see if you had a thread but couldn't find one.

Please tell me how you and Mr OTE are.

Big Warm Hugs,

Ginger xo

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Hey BG,

The conference was a SMASHING success.

One particular mental health service has finally eliminated its systemic harmful practices as a result of the very constructive discussions at the conference. They have restructured their services entirely - substantial changes in fundamental areas - and our community is already reaping enormous benefits from just that one change.

Our region has damning mental health statistics. We brought in leading edge practitioners who provided innovative suggestions to our high prevalence/low funding challenges. The conference brought service providers in our region together and working collaboratively. Working together, service providers have already attracted additional funding. But what is most important is the systems are being put in place so that funding we get is being used most effectively and not squandered away by middle management and such things.

As a consumer, it is invigorating to see the transition. I have been active in the mental health area for 28 years and I have not seen such an effective conference before. It is important that how we did what we did is being recorded, so that others can replicate what works and improve on what we have done.

A lot of dedicated hard work, by a lot of highly intelligent, resourceful people, got traction. Change in this area is not easy and some of it is just luck. The stars aligned for us.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Hi @GingerWhinger

Thank you for thinking of and asking after my husband. He is in alot of pain currently - he ended up having extensive reconstruction surgery on his shoulder which will take quite awhile to heal. And he can't take adequate painkillers - so it's been tough for him. An honour for me to take care of him.

The good news is that his PSA prostate cancer scale went down!! So no additional treatment necessary for now - just to continue the quarterly hormonal mild chemo treatment (Zoladex) he has been undertaking for the last 18 odd years. His cancer is still under control. This is largely due to the stress being taken off him with daughter becoming more independent with gaining her licence so hubby does not have to go everywhere with her at all hours now - and the fact she is working long hours and her moods/behaviour improving. I am taking care of the house, yard, pets, garden and driving him everywhere, to medical appts etc - which has also reduced the stress. Stress is a killer - no doubt about it. So all well on that front.

That is a fantastic outcome regarding the mental health conference! No luck about it - its a positive result achieved through a collective effort of caring, hard working determined, knowledgable individuals with passion. You are here for a reason. Intelligence/education/knowledge is important but it takes heart to achieve great results. Never underestimate the power of the human spirit when others rally together for a cause. Well done my friend - this accumulative effort will saves lives. Great news indeed 😊

I have been doing well mostly. Keeping up with all the added work plus my charity work and outings. At night I am still working on my cross stitch Victorian Angels - and have also collected additional kits to sew up at a later date of beautiful Victorian Celtic ladies that are adorned with gowns of purple/Lilac/red/blue/gold needlepaints, silks, beading and metallic threads to make them sparkle ✨ I had a look on eBay and noted that one of these ladies is selling for $3,000 Australian dollars unframed - not that I would sell mine as they are a work of love to treasure, but I was surprised at their worth - and that goes up when framed and in time (antique heirlooms). They are just beautiful. When finished I will put a photo of them up.

You sound so much better!! Keep going. Do you still attend Grow? Sending lots of love ❤️ (to you too @BeeGee - your future plan sounds wonderful. Will you have a month or two break after completing your course before you commence the GP rural pathway? It will be interesting to see if your mood lifts somewhat at that time - take the opportunity to smell the roses then and you will be amazed)

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Hey OTE, How are you?

Isn't perception an interesting thing? That "a sore shoulder" can give a human more grief more than The Big C? It is nice that the bond that exist between you and your husband makes caring for him, a source of satisfaction for you.

Things are finally starting to turn around with your daughter? That has been a stubborn ship to turn aroung. The fact that she is working long hours and cope shows that her mental health overall has improved a great deal. I'm very happy for your family unit.

Today I'm a bit hypo. I had caffeine after a dose of medical ketamine - that proved too high. (I was debilitatedly depressed prior to the ketamine). I'm starting to come down off the caffeine high though and am sure I will be fine once I have my night meds. I had lunch with friend, an academic mental health interview for research with the uni, had challenging discussion with a service provider. (They had an issue with the referring service provider and as the client I was able to clear up their professional misunderstandings and was prepared to do so and then I had a very intellectual advocacy discussion.

"Its a positive result achieved through a collective effort of caring, hard working determined, knowledgable individuals with passion." That's a very nice thing for you to say OTE. Thanks for that. Today I did feel a sense of purpose. I did feel that my resourcefulness was able to help situations. And it did take me to have my heart in the right place to use my skills constructively. And it was nice to feel that connection with the humanity in others for a joint community goal. I'm really worried about PBS and medicare changes putting strains on individuals and families that our disadvantaged demographic cannot sustain. Wholely disadvantaged people will congregate in the areas where no one else wants to live where the cost of living is less. Community funds are distributed, not by need, but by power leverage, so the bigger slice of the pie goes to the top end of town.

I'm glad you are getting so much joy from your Victorian Celtic ladies. I had a look at pinterest to understand what they were. They are very calming and relaxing to look at.

Yes, OTE, I'm still very involved in Grow. I'm finding good benefit from it. @BeeGee, do you have any ideas on how I might be able to interest a gp in providing medical ketamine with full training and supervision and support from a psychiatrist? An existing gp in my region has not been found to be interested and there is a fully fitted out surgery and there has been no problem in the past with the provision of provider numbers etc, if a gp was looking at reentering the workforce after maternity leave or something like that. I hear that it is a "doctor's market" rather than a "practice market" - that practices are having trouble finding enough doctors as it is. I commend you on your commitment to be a rural doctor - to go where the need is - not where it is cushy and easy for you and your family. It is an honourable sacrifice and I admire you and your wife for making that decision.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Thanks Ginge!

Honestly - I think you'd struggle to find many GPs who'd be prepared to go there. Ketamine is typically used as a general anaesthetic and unless they've had anaesthetics training most GPs would be reluctant to use it. Perhaps your best bet might be rural hospital doctors looking to moonlight a little and make some extra cash on the side. If they do work in the ED they they will probably have some experience with ketamine in an ED setting. They would also need to have the right to private practice if they are currently hospital doctors.

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Gah @BeeGee... I already had an appt with the ED last week but it was cancelled. Today a manager gave me the minutes of a recent community consult that they had. Haven't read through it yet. Have heard so many recent horror stories through the grapevine... not in the mood for the rhetorical justifications just at the minute.

Had a chat with a mental health service manager today who was quite unapologetic that her service was there for the staff not the clients. She offered me a job as a consumer rep. I declined.

Did you watch the Four Corners episode Australia's Shame? As an ex youth worker and no stranger to just how challenging youth justice issues and behaviours can be, I can find no justification for the brutality that is being metered out regularly over years.

Medical ketamine tomorrow. Let hope it helps take the edge off the PTSD a bit.

How are you Bee Gee and @Former-Member

In response to: Re: Another BlueBoard Refugee

Re: Another BlueBoard Refugee

Shame about your cancelled appointment - although the idea of an appointment in an ED is quite intriguing! Must be an interesting hospital.

That's appalling about the MH service being "for the staff"... OMG, that just reeks of Sir Humphrey Appleby (of "Yes Minister" fame if you never watched it - classic). What on earth does she imagine the staff are there for??

I didn't watch the Four Corners episode, although I have downloaded it from iView for later viewing - if I have the stomach for it. What I have seen on the news already just makes me sick. I hope the right people get hung out to dry for this... but they usually have a way of getting the teflon suits on in the nick of time and finding a handy scapegoat.

I'm pretty fed up with the student life, tbh. Thoroughly over it and just want it to be finished already. I'm finding it's taking a bit of a toll on my mood and the more time goes by the more I'm struggling to have "good days". My last rotation was quite fun - obs & gyn. Caught four babies - yay! I'm currently doing infectious diseases and it sounds much more interesting than it actually is. The days drag a bit. On the bright side I do have a job for next year (can't remember if I've already said that... sorry if I'm repeating) - in a smallish outer metro satellite hospital. They have all the same specialties as where I am currently but about half the number of beds. It's also on the coast, so that's nice, but the commute will be a bit of a killer - probably 1.5 hours each way with traffic. Oh well, it's a job, and people in Sydney routinely spend at least that much time getting to work so I shouldn't complain.

My current med trial is not doing anything for me yet, although it's only week 2 on a proper therapeutic dose so we'll see... but past experience is not encouraging.

Are you still feeling the benefits of your ECT? Still having maintenance treatments too? I hope everything is continuing on an upwards trajectory for you.

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