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Something’s not right

Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hopefully, you hear back soon, waiting for something so important can seem like an eternity 🤞🏼

@Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks so much @Former-Member

I had to chase it up today.

I knew something was not right.

As the Manager had promised me the Paperwork/ Contract 7 days ago.

I had received nothing.

Today the Manager had done a complete turnaround.

He said Full-time or nothing - We won't even consider taking you on as Permanent Part-time.

So I was then faced with the impossible dilemma that is not workable, that does not meet my needs.

I said Yes because I felt backed into a corner with no other feasible options.

This may have substantial negative impacts - There are physical health reasons for my working only part-time hours.

As well as my only emotional support- My Psychology appointment being booked on the non working week day.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hello @Adge how are you going today my friend

@Faith-and-Hope , @Anastasia , @Zoe7 , @FloatingFeather , @hanami , @tyme , @Former-Member

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hello @Adge , i hope you had a nice birthday my friend

how are you going and your wonderful birds furbabies xxxxx

In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Shaz51

does arnica help? Have you tried it?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Instead of asking, I should just google it, right @Kyle1 ? But maybe it might help the community too 🙂

I have not idea what all these foods (?) are.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@tyme Arnica is a herbal cream ... reduces pain and such

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Kyle1 Arghhhh. Thanks.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks @Kyle1 I get lots of aches and pains

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

hello @Adge ☕

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