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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Goto go to Bed now @Former-Member It's past my Bed (Sleep) Time.

Thanks for asking.

I was supposed to Log Off 1 hour ago.

I don't sleep, if I try to go straight to Bed - Without "Winding Down" for quite a while (eg 1 hour) before.

Have a good night.

So sorry to hear about your Dad, that's really sad & upsetting for you.

Hugs ((((EOR))))

My Brain is Gone, goto lie down.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge, sorry that wound keeps breaking down. UV rays might help. Keep it clean and dry. Sometimes we really to have to search hard, even create our 'good news" it's hard, even seems unreal to to have to create our own good news, bit we must keep trying. Glad your bloods ok. Sleep tight Adge 💙💚💛🧡💜

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hello @Former-Member , @Adge

@Faith-and-Hope, @outlander

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Shaz51 You need lots of care, with your kidney too...

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

I know that this year has been a tough one, for many people. @Former-Member @Shaz51 @Faith-and-Hope @Angels333 @Anastasia @eth @Appleblossom @Zoe7

For me too, having lost my Job (employer using Covid as justification) back in May - & not having had much Job success, since then.

On the physical/ Body front -

I've managed with my Numb Fingers on left hand & loss of coordination in my left arm - for over 8 weeks, so far (no improvement).

My Referral to a Private Neurologist (which was supposed to be Quick - Resulted in a 6 month wait for any appointment (not until April next year).

Last time, several years ago - I got to see Neurologist within 2 weeks (not 6 months).

My GP is stumped, as he has no treatment options - & does not know what else to do.

Other than encourage me to wait for that Neurologist's appointment (April).

I have another Referral to a Public Hospital, for the same condition (numb fingers) - To have Nerve Testing done.

That will most likely be a longer wait, more than 6 months.

I don't know what else to say.

It's kind of like Plodding along on that "Road to Nowhere" (as the Song goes).

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Oh @Adge praying for a miracle for you my friend and sending it to the Universe as well.

I'm sorry it's been such a :pile_of_poo: year.

Hugs hugs and more hugs x

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Thanks Heaps @Anastasia I appreciate your thought.

I love it when people use that :pile_of_poo: picture.

I think it's hilarious - it makes me laugh (or smile).

:pile_of_poo:Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

❤️:pile_of_poo: @Adge ......

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Haha I love it too @Adge

I'm glad it brought you a smile x

:pile_of_poo:💞🙏:pile_of_poo:

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Such a long time to wait @Adge That must be both frustrating and disappointing - April is still a long time off That combined with your recent loss of job is more than you need to deal with. They were certainly taking advantage of you though and it is their loss - you deserve so much better than the way they dealt with you buddy. Keeping you in my thoughts and hoping that you can find some resolution to both the numb fingers/loss of co-ordination in your arm and on the work front.

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