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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Sounds like you sure could use a holiday away @Adge I can relate to IT challenges. So much of modern life depends on it now. Stupid. I recently got criticised by dad's public guardian for not skyping him. I've never Skyped in my life. I do ring him often - as I have done all my life. And how does she know? What's with this constant backstabbing? Probably siblings thinking there's some competition at play. Triggers me bgvtimevsll thrm.
Do you have to apply for x10 jobs a fortnight? even in a pandemic? Maybe don't push working while this wound is healing. "Forced Relaxation" that's your silver lining :face_with_rolling_eyes: . . . or not. What did DR do pathology for? Wound swab? Infection? Blood test? Hope you're ok. How's he birds?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Former-Member The Pathology Blood tests are to check on possible infection (generally).

Because my Diverticulosis/ Diverticular disease is causing me gut pain (inflammation).

Also frequent, irregular bowels - because of having large part of Colon removed, during 1st & 2nd emergency bowel surgeries.

Even tiny scratches on my arm, from pruning shrubs & doing my aviaries - are getting inflamed (red rashes etc) with minutes of getting scratched.

So that's another issue - allergy or infection from scratch? We don't know.

Fortunately it's only 5 job applications.

Yet seems pointless, with high unemployment rate - when so hard to get an interview or job for any job at all (no matter what).

So much extra competition, in job market.

Yes backstabbing is horrible, pointless & not understandable - especially from relatives (or from my Mum).

Forced relaxation to recover, is absolutely necessary.

Whenever I push myself, even for a few hours - my body says Noooo, & I crash big-time (have to stop).

Takes longer to recover then.

Slowly building up my physical stamina, yet still rather bodily weak.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

My Birds seem good & Happy @Former-Member Thanks.

Especially when I give my Canaries Nasturtium leaves (they love that) - then they all pounce on it, gobble gobble (straight away).

My backyard is covered in Nasturiums at the moment, so there is plenty (bucket loads) for them to munch.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yum, Nasturiums, that's a peppery leaf ground cover you can put in salads 😋🌱

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Yes Yum Naturtiums @Former-Member Definitely a Peppery Leaf Ground Cover - that is very good for Salads (totally edible), quite tasty actually.

Certainly my Canaries love eating Nasturtium (possibly their favourite).

I had a Dentist appointment this afternoon - lucky I did too, as I had 2 tooth decays, got 2 fillings.

I had to chase up for that appointment - due to C Virus effects, Dentists shut-down for about 3 months, then they forgot to do any Reminders for follow-up appointments.

The same with my Sleep Dr (Sleep Clinic).

They would not give me any Booking, when I phoned them in June - my 12 monthly appointment was due in August.

They put me on a Waitlist (supposedly), then never phoned me to offer any appointment.

Now I find, when I phoned a few days ago - that they have been taking bookings all this time (having told me that they would not).

They are now fully booked until almost the end of this year.

I have a CT Scan for my abdominal pain, tomorrow morning - painful when GP Dr prodded my tummy.

I don't have much faith in these Scans.

So many times they have failed to show any cause of the issue - whilst the issue (cause) is still there.

Anyway, we shall see.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Oh dear @Adge, your tummy still playing up? Can't they do an MRI this time? Might cost more but worth it this time i think.
Stupid dentist protocol failure... I have no tolerance for incompetence either. Glad you got in somehow - 2 fillings. I have a decay hole that just opened up this week. Had it fixed only last year :face_with_rolling_eyes: such an expensive exercise



In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge, how are you ? How was the results of your scans?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

And blood tests?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge, you ok?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Former-Member I don't know any results, I have not seen Scan Report (or Scan) yet.

Blood tests good, no infection - blood cell levels good (I think).

Surgery wound suddenly opened up again (a few days ago) - scares me, more fluid came out again.

It should have stayed closed, it had already healed over (no scab).

I don't understand why or how....

Will be okay I think, maybe just a small Glitch....

It's just that these Glitches keep going on for ages (5 weeks since surgery).

I am Sooo hankering for some (lots of) Good Happy News.....

I just Love Sharing Good News (instead of Downers)....

My Psych would be so Happy for me - if I could bring her some Good News to share....

Adge

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