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Self-Care with major Physical illnesses

Self-Care with major Physical illnesses

Hi @Former-Member This is an old post - it explains how medical neglect by Drs (doing no scans or tests) ended with me in hospital - the direct cause of my 1st emergency bowel surgery.

I have no current GP, since mine left (months ago) - will need to find one.

I have lived for several decades with serious physical illnesses (or conditions) -

Scoliosis, causing severe back pain

Sleep Apnea (diagnosed 11 years ago), causing debilitating daily fatigue - treatment & stimulant medication has moderately improved my functioning. Not to anywhere near a "normal" level, for someone without a Sleep Disorder (or a fatigue condition).

A bowel obstruction (tumor), with 3 major bowel surgeries (2 emergencies) - from which my body has never fully recovered.

My digestive system (which was disconnected for 6 months), has not worked effectively for the past 3 years - since my bowels were re-connected (stoma reversal surgery).

I also have Complex PTSD, from more than 2 decades of trauma.

Because PTSD is supposedly an "anxiety disorder" (so-called) - medical professionals have on several occasions attempted to "explain away" my physical symptoms as being "just anxiety".

This has stopped me from accessing adequate medical care, on several occasions.

The "just anxiety" was later found to be a life-threatening bowel obstruction (tumor) - which required immediate surgery. Then a 2nd emergency surgery, 3 days later (when the 1st went disastrously wrong). Then a 3rd bowel surgery, 6 months later to reverse the damage (& clean up the mess).

I now have 2 serious hernias, as a result of the bowel surgeries - wound split, extensive wide scarring, & hernias in the middle.

Have others experienced their physical illnesses (or medical emergencies) not being taken seriously - because of having a mental illness diagnosis?

How did you overcome these obstacles to receiving medical care (if you could)?

Self-care is difficult, when my food does not digest adequately - despite Probiotics & Gastrostop (when necessary).

I must run to the toilet with great urgency (Irritable Bowel Syndrome) - which is a cause of stress in itself, & makes working difficult.

Adge

405 replies

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In response to: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Oh dear @Adge, what's your temp? Ask the nurse to talk to dr on your behalf. You have an aluminium there. Maybe you need a wound swab for pathology workup and antibiotics. Don't wait 'till it's reeeeely bad. Just gotta work the problem. Be strong 💙

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Ali (not aluminium! grr - stupid AI auto-correct... I'm so done with social media)

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Checking up on you @Adge, hoping you're not n hospital really sick on IV ABs ?? Are you doing ok? Is wound healing better?

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Tried to post you a nice eCard by still not working on this thread sorry. Here's some emoji instead 🐥🦉🦆🕊️🐦🐧🤔(are penguins birds?) 🐦🐦🐦🌱🌻🐱💗

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

@Adge. Tried to post you a nice eCard but still not working on this thread sorry. Here's some emoji instead 🐥🦉🦆🕊️🐦🐧🤔(are penguins birds?) 🐦🐦🐦🌱🌻🐱💗

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Hi @Former-Member Thanks for checking in, thinking of me.

Emoticons are Great, thanks.

Yes Penguins are Birds, like Ostriches & Emus - Probably the only type of flightless Swimming Bird.

All this (2 times) wound split - happened after I had come home on 6th of August.

Was only 1 night in hospital this time.

I finally got to see a GP Dr (not my usual Dr) late Monday afternoon (Booked Yesterday) - that was the earliest available appointment.

Then I started turned the corner (healing up).

GP said that Locum Dr's Steristrips (10.00pm Saturday night) -

- appeared to have held wound separation together.

GP/ Nurse put new Steristrips on.

Then went back to see my normal GP on Wednesday morning - it was still together, healing up.

No, Doctor did not give me any antibiotics - even though Medical Centre Nurse said looked infected.

Wow, maybe I can finally relax (& let go) now (I thought).

No that hasn't happened yet, although I'm very glad my surgery wound is finally healing up (struggle over?).

Need to learn to Relax better....

Other stressors & triggers - feel overwhelmed (no job, dealing with Centrelink, etc).

House needs repairs, spending too much $$, so much needs doing (& I'm not up to doing it).

Sorry - yes I'm good, or going to be (getting there).

I hope you are good & getting there too.

Yes that would really hurt (heaps), how your sister thinks badly of you (for no good reason) - & has cut you off, or won't communicate with you kindly.

There is no excuse for people doing that, I don't understand it at all - my brothers (& Mum) do that to me sometimes.

One brother would not talk to me for several years.

So hard to depersonalise - it feels like it's our fault (my fault), when it isn't, they have Big issues.

Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

I forgot how to do the emoji on the computer again @Former-Member , @outlander , @Faith-and-Hope

hugs and hugs my @Adge

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

If it is a Windows computer @Shaz51, then click on the Windows key (mine is third from the left on the bottom row of the keyboard) and the full stop, and it should come up.

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

thank you again @Faith-and-Hope

In response to: Re: Self-Care with major Physical illnesses

Re: Self-Care with major Physical illnesses

Oh Wow @Faith-and-Hope @Shaz51

I had never (ever) seen that Emoji Box (on Computer) before.

In fact, I did not know that it existed.

Shaz51 only forgot how to do emojis (on computer) - I never knew how to do it, in the first place.

😜😊✔💖😁

Now I can do more than just the occasional Smiley-Face - that was all I could find before.

Adge

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