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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

NikNikSenior Contributor23 Feb 2018, 3:18 pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for your loved ones living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your loved ones experiences accessing support and treatment services in Australia and your experiences accessing support as a carer. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

59 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Shaz51Senior Contributor13 Mar 2018, 8:24 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

thank you @EliseSunflower, @Former-Member

I am finding the discussion very interesting and helpful and I love to learn more so I can help others and to understand what the person and their carers are going through

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

DeterminedSenior Contributor13 Mar 2018, 8:24 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@EliseSunflower self care is not something I am very good at, a work in progress. Anything that I do for me gets swept aside when my darling is not in a good space as it takes all of my energy to keep her safe and support the children.

My main self care is my university studies, this is something measurable (through results) that I can focus. I receive a lot of support through the universities disability support services that makes it possible for me to engage with university studies.

I have been accepting help more from our mothers in recent time and delegatingminding duties (both children and my darling) where previously I have tried to do it all myself.

(Sorry if some of these answers are getting out of sync, taking some time to consider my responses).

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

EliseSunflowerSenior Contributor13 Mar 2018, 8:25 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Hi @Former-Member @Determined and anyone else who may be reading.

I'm wary of time so going to post my second-last question, for when you have a chance to get to it: What would you recommend to a carer supporting someone with the same personality disorder?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Unknown userMember13 Mar 2018, 8:29 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Shaz51 really great that you are finding this interesting and are taking the opportunity to learn, I'm sure the others posting here tonight appreciate that as well!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

DeterminedSenior Contributor13 Mar 2018, 8:30 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@EliseSunflower

Self care and seeking professional help.

More importantly shop around if at first you are not satisfied.

After my first attempt and being told to leave my wife I did not see anyone for some years, something in hindsight was not in my best interests.

Also seek support from friends and family rather than try cover things up and do it all alone. That only results in burnout.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

EliseSunflowerSenior Contributor13 Mar 2018, 8:35 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Great suggestions @Determined! It can be extremely challenging to seek support after a negative experience - to trust another professional.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

DeterminedSenior Contributor13 Mar 2018, 8:38 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

For me @EliseSunflower the biggest challenge is taking time out to look after myself when my darling is so needy.

And I mean that as a love response not a have to response.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Unknown userMember13 Mar 2018, 8:39 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@EliseSunflower
Left out my thoughts about present Dx - not sure - I think most of us would have some PD traits - don't know if Mr D would have any more or any less than the rest of us, although can see some merit in the PD (NOS) Dx. The BPii Dx is probably one I can reconcile his symptoms with much better than with some others that had been tendered, some doubt remains.

Re: withholding Dx - I do not know if they said anything to him or not previously as I was not in on the conversations, by the time I was there, BPii was thought to be the primary complaint.

I cannot reconcile a lot of the treatment Mr D was given to a number the diagnoses that I am aware of. The ECT was given I believe for MDD diagnosis. God only knows what the pdocs were thinking with some of the treatment Mr D was given as I cannot align some of them with any evidence based treatment protocols.

To me learning about the diagnoses Mr D gas been given made so much difference. I have been able to reduce expressed emotion, understand that it was the illness not him. I have seen counsellors and a psychologist (found the counsellors better).

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Unknown userMember13 Mar 2018, 8:42 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

I too was told by a member of a treating team to consider my relationship @EliseSunflower, cannot remember the exact words but I understood it to mean that I should consider leaving Mr D

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

EliseSunflowerSenior Contributor13 Mar 2018, 8:44 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Former-Member Thanks for your replies. That's something I've heard a few times now in my research - carers being encouraged to end their relationships.

What treatments or supports have the two of you found to be the most positive or helpful?

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