FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Events and updates

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for your loved ones living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your loved ones experiences accessing support and treatment services in Australia and your experiences accessing support as a carer. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

59 replies

21 - 30 of 59

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

hello @EliseSunflower

not sure if this is what is discussed , sorry

but My husband has been diagnosed with lots of MI in the last 11 years that I have been married as i am his second wife but in the 11 years he has been diagnosed with major depression, ADHD, Inherited Depression , GAD, SAD and Bipolar 11 other`s , unsure about before then except for OCD

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Determined I'm glad to hear you've had some positive experiences with your current psychiatrist.

What have the two of you found the most useful in terms of treatment and support services?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Hi @Shaz51 it certainly sounds like your husband has had a lot of experience with mental illness and different diagnoses.

Tonight our discussion is specific to personality disorders (e.g. borderline personality disorder). Has been been diagnosed with a personality disorder? If not, you might still find some of the discussion interesting/relevant

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Primarily treatment for my darling has involved medication (psychiatrist) and mindfulness etc (psychologist).

She had attend group classes while in hospital and some outpatient day group classes. I believe these helped short term but results were not sustained.

Last year she received 3 of prescribed ect treatments, treatment was ceased due to negative side effects.

She started some DBT at the beginning of last year but that stopped when she went back into hospital and refuaed to go back since because it is too far to travel and costs too much.

I have seen psychologists on and off and been on anti depressants, somewhere in the middle of all that I was seeing a psychiatrist and diagnosed with ADHD and treated accordingly. Since given him the flick.

The solution the first psychologist I saw for support was for me to leave my wife because and quit my job and all would be good.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Determined Thank you - sounds like between the two of you, you have tried quite a few different types of support services, although experiences have not always been positive.

The forums is one obvious place of support - have you accessed other support services specific to your role as a carer?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

For my darling bu way of treatmwnt I think the inpatient group classes.

For me the best support I have recieved is from my work supervisor. Not even mh related but someone I can talk to when things are falling apart for me.

By far the best support is in financial support in the way of carer allowance and my darling being on a dsp. Without that I dont know where we would be.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Determined Having supportive friends and coworkers can make a massive difference!

What sort of strategies or resources do you use to look after yourself? (self-care or otherwise)

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@EliseSunflower
What led to Dx - Mr D first had symptoms following a revelation his father was an alleged paedophille. He had previous mild OCD traits but his anxiety skyrocketed and he sought help; he has a poor history with therapists and this may be one factor that eventually led to his diagnosis. I think as his psychosis was non bizarre and may have not been as brief as they first thought.

It has not been easy, yes I had to do a lot of the detective work.

Thoughts about diagnoses? Mr D has marked memory loss from ECT - I have no idea what he was told at the time of most of the Dx as I was not actively caring for him (caring in the medical sense). He is accepting of his BPii Dx and has no idea what a PD is or that he was diagnosed with one. I did bring up the working diagnosis at one stage and the pdoc back peddled very quickly when they could see Mr D was not going to understand. This was at the stage when I started to be more assertive about better communication.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT


Elise_Research

The forums is one obvious place of support - have you accessed other support services specific to your role as a carer?


And of course the forums, how remis of me.

I honestly dont know how I would have survived the last 12 months without sane forums. This space and the people have been invaluable. They have helped me through some pretty dark days over the past year.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Former-Member How do you feel about doctors withholding the PD diagnosis from him?

I know you've mentioned hospital-based treatment and ECT - I'd love to hear more about treatment and support services that Mr D has accessed, if that's alright with you.

21 - 30 of 59