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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for your loved ones living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your loved ones experiences accessing support and treatment services in Australia and your experiences accessing support as a carer. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

59 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

I am in rural WA
The wait for psychiatrists is about 4 weeks
It’s a lonely wait when someone is struggling

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Early days yet on the relationship councilling @EliseSunflower, my darling has connected with the councillor early which is a big plus.

Last visit was quite draining but hoping we should start seing some progress. We are starting to deal with some foundational issues that have been swept under the carpet for many years due to the volitality of the pd.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Thankyou @Former-Member @elsie_resarch

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Hi @Indi7,

Its great that you have come by, unfortunately we are at the end of tonights topic tuesday. However, I do invite you to read through tonight's comments as they may help you to feel less alone in what you are going through. I also encourage you to post in the main forums space tonight if you are wanting to connect further at the moment.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

@Determined and @Former-Member thank you for your last comments. Unfortunately it's time for me to log off.

Thanks @Former-Member for your support and a huge thank you to everyone who participated in tonight's discussion! I enjoyed speaking to you all.

Thank you for sharing your stories and experiences. All your insights are extremely valuable.

Have a great night everyone!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Thank you @EliseSunflower

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

I think a name change would be a good start - personality disorder is a dreadful title. Some sort of trauma is often involved and something in relation to coping mechanisms might serve patients and their carers better - this factor was not known about Mr D at the time - paternal alcoholism and witnessing of domestic violence featured in his formative years - this was something he kept hidden from me for 32 years and I only found out from one of his brothers when I was putting his chart together - found an article on personality traits of adult children of alcoholic parents, one of which described Mr D relatively accurately.

Supporting carers makes so much sense, we live with the patients, can contribute so much in observations, being excluded is plain rude (esp when partner has given permission). These are potentially terminal conditions - imagine the uproar if oncologists excluded family. Providing information as to supports that are available, explaining that MI puts a strain on even the most robust if relationships and guiding us to appropriate places as to where to get the support we need to enable us to cope.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Thank you @EliseSunflower @Former-Member

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 13 March, 7pm AEDT

I second everything @Former-Member has said above. especially the name change and involvement of carers.

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