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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT


@EliseSunflowerwrote:

Thanks everyone - I wish I could reply to all your comments.

My next question is: What strategies or supports are you currently accessing to continue your recovery?

This may include formal treatment/support services, but I'm also interested in things like sleep/eating, hobbies, apps, friends and family - whatever you wish to talk about!


@EliseSunflower this question pre-supposes that we agree with the concept of recovery...which I don't because I don't subscribe to the medical model. I don't believe I am "ill" (and thus I don't aspire to recover). Rather, I believe I experience perfectly normal reactions to an extremely abnormal situation.

I tend to think in terms of managing my big feelings. Aside from seeing TTT, the things I do to manage my big feelings include:

  • Playing my violin.
  • Learning to crochet (a brand new adventure!).
  • Playing in my garden.
  • Walking by the ocean/river
  • Hanging out in Forum Land.
  • Trying to eat healthy (or sometimes eating chocolate - because that's an essential form of self care, right @NikNik ).
  • I have just discovered the app called "calm" which I'm exploring.
  • I play a lot of meditation type music on youtube.
  • Volunteering once a week at a fun thing that involves kids and animals.

The general theme throughout most of this list is mindfulness. I find that things like playing my violin, crocheting and gardening are all different forms of mindfulness. My violin playing is particularly cool because I HAVE to be relaxed in order to sound any good. If I have any tension, my bow bounces. Thus it's kind-of a form of biofeedback - the quality of my playing immediately tells me if I'm relaxed or not and I can consciously focus on becoming more relaxed.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi all

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks @Phoenix_Rising - you're right, the word 'recovery' is certainly not universal in this sense.

What an awesome list - definitely a lot of mindfulness in there, which is great to see. Glad you've identified some things that work for you!

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Seeking a psycholgist you can trust and be completely honest with.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I guess i joined a bit late but I have DID and happy to answer questions on it while my diagnosis is new i have had it since i was 9.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I think the best two bits of advice for someone newly diagnosed with BPD are:
1. Don't believe anything or any*one* that tells you BPD makes you unloveable; and

2. It can get better than this. I promise.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I would recommend not to get caught up in the label. Be patient and learn what works for you. Everyone is different within a diagnosis so don’t compare too much.......yep learning this one the hard way. It’s easy to think you are failing because others get something you are struggling with. Know that others might not be the same as you but there are so many people who get lots of things even though they experience them differently (also learned the hard way). You are not alone!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@BlueBay I super wish I could clone TTT and send you a copy of her. She really is truly amazing. She's quite young - much younger than me, and yet more skillful than a bazillion other therapists I've seen who would have many years of experience on her!

@OhanaSystem I wish EVERY therapist would incorporate aspects of TTT's style. TTT previously worked with kids in out-of-home care before going into private practice and thus attachment and trauma related issues are very much her focus.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

That can be so important @difficulthuman - and hard, especially when it can take time to build up that trust. There's a lot of research to say that the relationship you have with a psychologist is one of the most important aspects of therapy - sometimes more important than the the type of therapy itself.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @difficulthuman

It definitely can take time to find the right person, but I hope by reading others' stories here tonight you can see that it is possible and worthwhile.

While I'm not certain on the 'cocktail of drugs' you're referring to, self medicating can be really risky, so please keep in contact with a doctor to keep an eye on things, if you're not already.
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