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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

"Trying to eat healthy (or sometimes eating chocolate - because that's an essential form of self care, right @NikNik Smiley LOL)."
100% @Phoenix_Rising !

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I would have to say, find a therapist who is experienced and interested in working with people who meet the criteria for BPD.
Interview carefully before engaging with a therapist. Don’t waste your precious subsidised sessions seeing someone who DOESNT KNOW WHAT THEYRE DOING.
Also, try to maintain relationships if possible and find a support group.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi all, I'm moving on to my final question of the night:

What would you like to see changed in the way personality disorders are treated in Australia?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

there needs to be services in regional and country australia that are not only targeted to crisis situations.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@Phoenix_Rising

So true! Mine already has some aspects, like checking in frequently about whether everything's feeling safe etc, letting things proceed at a pace that feels safe to me (we're a year in and still only just beginning to touch on trauma), and lots of reassurance, and I wouldn't trade her, but it'd be nice to be able to bring in things like the story (especially because the younger traumatised parts don't always feel welcome in an adult community mental health setting). I looved the Mr Squiggle idea, but I don't think that would work well for us -- too much pressure.

If you have a free moment, and wouldn't mind, some time would you send me a PM with some of TTT's other unusual moves in setting the scene for you? Thanks for even thinking about it!

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Agree its important to have a ongoing dialog with a professional who can be objective. Unfortuantly it can be exhausting trying to find the right psychologist and hardest part is telling your story over and over again to every new one.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome @NameUnknown
Thanks for being so open and willing to answer questions!
We are just on our last question at the moment and are about to wrap up.
It's been an interesting discussion if you wanted to have a read back on it. It will continue to be available to read long after tonight.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT


@EliseSunflowerwrote:

I'm going to move on to my second last question for the night: What would you recommend to someone newly diagnosed with the same personality disorder?


@EliseSunflower I'd recommend reading up on it (but be selective about your sources!). I'd also recommend they come and play in Forum Land - especially here: Let's do DBT (ooooh look @CheerBear I managed to do another super subtle subliminal advertisement for our DBT thread ).

Um... I'm actually not sure what else I would recommend...which goes to show how little support there is out there to recommend to people. I am eternally grateful for TTT...but it did take me twenty-one years and a whole lot of horrendous experiences and further trauma to find her. It should not be that hard! Finding helpful helping people (or at least those who do no harm!!!!) should not be that hard!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

SO MUCH. I want to see more services that offer a range of treatment options. I want to see more DBT services, but I also want to see more OTHER therapy types like ACT and Schema being offered. I want to see clinicians letting go of their preconceived mindsets on what BPD is or looks like. I want clinicians to stop using BPD as a grab-bag for people that fit too many other boxes, or assuming those who self harm must have BPD. I want to see services like Spectrum in other parts of Australia. I want to see personality disorders be treated as the real and genuine mental illnesses they are, and I want to see that done with empathy and compassion in a trauma-informed enviornment.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I would like for there to be better availability to psychologists through out the year. 10 sessions per year and then having to wait till the next year to see them cause i cant afford the cost to continue regular appointments is really difficult on me. I start to make progress but then it stops and sometime goes backward when i have to wait so long between appointments. It would also be good to see more recognition DID cause it isnt a good impression when you have to explain it to a medical proressional
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