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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

NikNikSenior Contributor23 Feb 2018, 3:14 pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

OhanaSystemSenior Contributor06 Mar 2018, 8:25 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@Phoenix_Rising

TTT sounds amazing! If you don't mind, I'm going to ask if we can encorporate maybe some aspects of her style, when my T gets back from her break.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

TeejSenior Contributor06 Mar 2018, 8:27 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Things that help

the forum

sane

groups that I attend twice weekly

more recently my family

often my dog and garden

sleep helps hugely but I don’t have that sorted.

Ive started volunteering and that is more positive than negative

for me understanding myself better is a big factor

medication

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

BlueBaySenior Contributor06 Mar 2018, 8:27 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Goodnight everyone, i think it's time for me to log off. I'm getting tired.

thanks @NikNik and @EliseSunflower for a great night. I really enjoyed it 🙂

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

EliseSunflowerSenior Contributor06 Mar 2018, 8:28 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks for participating @BlueBay - it was great to have you involved!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

NikNikSenior Contributor06 Mar 2018, 8:29 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks @BlueBay Really appreciate what you've shared tonight.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

CatcakesSenior Contributor06 Mar 2018, 8:29 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Currently I see a psychologist weekly or fortnightly. I participate in SANE forum. I don’t sleep well, I care for my elderly mother, I do little to no social activity apart from my partner and five kids, one sister occasionally.
I’m not in the paid workforce. I knit , walk my dog, sometimes paint/draw.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Mum2eightCasual Contributor06 Mar 2018, 8:30 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

My husband is my biggest support person. He is very understanding. Then I have my therapist. I’ve been in a holding pattern since I was diagnosed due to trying to get my medication and sleep right. Therapist won’t start DBT till that’s settled. I don’t have any friends probably due to my BPD. My mum has helped a little but she is a trigger too. I’ve joined a few support groups online but that’s about it. It’s hard to get out of the house at times. Plus I’ve got 8 kids that drive me up the wall too.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

difficulthumanContributor06 Mar 2018, 8:30 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

After spending five years in the mental health system, i ended up giving up on health professionals around three years ago. I found that no professional knew how to treat people with learning disabilities and mental disorders. Fortunately, i had an understanding of the health system because i had grown up with dealing with paediatricians. At the present time, I'm relying on a cocktail of drugs to get by each day and I'm reading all i can on the topic of BPD to solve my problems.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Unknown userMember06 Mar 2018, 8:30 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

i thought that going back to work was helpful for me, in order to build relationships and have a purpose, but its also highly stressful and challenging which leads to not so great coping strategies in itself.
Attending my psychologist appointments was very helpful but that has ended.
Trying to exercise and eat properly is something i need to do more of.
If i could have and sustain closer relationships and have a more balanced life i think i could cope better too...

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

EliseSunflowerSenior Contributor06 Mar 2018, 8:34 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Finding balance can be hard - and trying to find what works! Treatment and recovery will look different for everyone.

I'm going to move on to my second last question for the night: What would you recommend to someone newly diagnosed with the same personality disorder?

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