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Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

This thread is a follow on (or starting over) from my previous thread Caring for a wife with borderline personality disorder – sequel to diary of wife's hospital stay, I wanted to start over and in order to leave all the trauma and negativity of last year behind me and start fresh.

Those of you who have been following our family journey will know that after a number of hospital admissions for my darling I was encouraged by my councillor to implement some boundaries (lovingly implemented guidelines, not rules to be enforced) as well as self-care for myself as what we were doing was clearly not working and my health was /still is being affected.

Well after a smoother than expected start the boundaries and self-care were forgotten with my darling having a complete melt down and further lengthy hospital admissions due to high risk of self harm and a genuine attempt to leave us. The last 6 months particularly have been quite difficult for us all. S2 particularly had a lot of issues at school during this time and is currently seeing a councillor.

The purpose of this new thread is to again document our journey of healing, working on implemented boundaries and commitment to self care. As with the previous thread this is so that I can have a visual plan for myself with some accountability to follow through with plans in place and in the hope that it may help others in similar situations to ours. And so that I can track our progress. This was especially helpful in the last thread leading up to Christmas when I was feeling down about our current position to review what I had written and see just how far we have come.

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In response to: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

@Determined, getting help from official sources is pretty much always gruelling. I was the main advocate for our Older Son (high IQ but coupled with specific learning disorder) and Older Daughter (yeah, you know about her) getting DSP, then ended up having to go through the process for myself as well due to depression. At least when it came to me, we had backup from our very competent clinical psychologist, who put together a detailed submission.
But what said psychologist pointed out to me is that when you're applying for help, you have to pull out all the bad stuff. If you go into an interview saying "Yeah, this is a problem but we're doing this to cope with it and hope it'll help long term", then you run the risk of it being seen as a temporary problem, or one that's being managed well enough already, and thus Ta-Da! you don't get the help you need.

The thing is that once you have the help approved, you can make good use of it to meet the real needs. But you don't want to get bogged down in the "bad news" that got you across the line.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

@Smc I am always anxious about disclosing how dysfunctional things can be at home as I dont want to be seen as incapable of caring for our children. Just a phobia I have despite being assured by multiple professional people I have nothing to worry about.

Re NDIS meeting I was quietly thinking more of this applies to the mummy than the child.

We did have a good example of our poor S1s shortcomings this afternoon when nanny arrived home ( have I mentioned that yet Yaaaaa!!!! Mum inlaw came home this afternoon 😁😁😁) S3 (3 y.o.) while ecstatic to see Gran ran and waited behind a post for the car to stop. S1 (13) almost ran under the car 😱😳🤯 and even opened the door before the car had stopped.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

At the start of the meeting when asked what we needed my reply was no idea. We do what we do because he is our child and dont like to measure him against what is considered normal. So the questions while intense and draining served their purpose well.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Would your Darling be amenable to utilising supports that are available with NDIS @Determined? MH support groups such as Wellways, One Door have people trained who would possibly be of help. I won't tag but Eth on LE side might have a thread about her experiences.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

PS Lovely to hear MIL home

Teenager = yikes

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

@Former-Member I have wondered about that but she resented me going to a carer qld support group meeting so thinking she would not be overly receptive. I suppose I wont know if I dont ask but dont have the emotional capacity at the moment to find out lol

She was negative to the point of nastiness about me going to the carer queensland meeting. To her me being carer = her being controlled. That is why I prefer the term support except when dealing with official channels for the reasons SMC outlined quite well above.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

@Determined

I hope I am not being discouraging, having supports in place that would help lighten your load was my thinking behind the question.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Not at all discouraging @Former-Member . Often your input is most encouraging to me and I appreciate your thoughts always.

I have often thought about it but see it as being a big barrier for darling. Insight is lacking. Or it could even be that denial v acceptance for her. Accepting all is not well may well fuel fears of rejection? Who knows when we can never talk about it.

It is much easier for her to believe that I am an obnoxious belligerent #$%! and the cause of all of her problems 😣

Sorry a out the negativity but unfortunately that sums up my thoughts on the situation.

Uni councillor (if she is still there next year... budget cuts.. people being axed everywhere) is going to support me in getting darling linked in with the local hospital mental health team. They have previously refused us due to darling seeing a private psyc but this lady seems to know what buttons to push strings to pull and things to say. So with some back up support we may get somewhere. (Assuming that is darling cooperates once all of the hard work is done).

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

@Determined, so glad to hear that your MIL is home... and that S1's excitement didn't end too badly.

Anyone dealing with child welfare gets used to seeing the differences between a stressed household and an abusive/neglectful household. I expect their reassurances are very genuine.

It's one of those hard facts that when the person being cared for won't admit they have a problem, and therefore need care, a bigger load falls back on the carer because they can't get adequte assistance in their role. Oooh that sounds clinical... It may be that S1 having "identified needs" may give you access to extra help. It would certainly be worth finding out. Am glad that at least you've got a counsellor's support.

In response to: Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

Re: Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

S1 is now approved by NDIS @Smc thanks to input from the school. If it was left to me it would have been in the too hard basket so most grateful for support.

I am expecting a call by the end of the week for another interview to discuss supports available and funded for S1.

For me it is more about long term independence post school. But we need to be linked in now to have any chance of support post school. (At least that's what everyone keeps telling me). The biggest barrier for me is I hate feeling like I have my hand out all the time. Hard wired to be a provider and self sufficient.

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