rough time

Going back from yesterdays chat @Sans911 (your welcome too @Snowie)

the little goals I had were to focus on the basics so was kinda hard on myself as I wanted to make sure I was getting the basics done each day but after reading what you wrote I can see that not everyday I wont be able to reach them all but really want to meet the basic needs.

Diet- I am pretty much eating a bland diet atm but I just feel so unwell in the stomach that even the smells atm make me want to hurl, even the thought of it. Ill go to the fridge to get a piece of fruit or to the cupboards to get something like the biscuits and it stays down when I eat something but I cant seem to manage it. Ill have a look at the chemist so at least the nutrition is still there as I can manage drinks in smaller amounts.

I had a think about the sleep routine and im going to try what you suggested and keep doing it and log off the forums by a certain time like 1030/11 but will be strict about it and make sure I stick to it and if I feel like coming on then ill turn my phone off so I dont have the temptation there either. Im going to speak to my gp about some other sleep meds or speak to another gp. I noticed something last night-its every night I feel the need to move- as long as im moving then I can remain abit calmer so all night I was actually just moving my foot like sliding it along the sheets or tapping my foot and it helped for around half an hr at a time but it still take s me hrs and hrs to even stop tossing and turning. But its every night, its like I get this adrenaline surge and I just cant stop moving even though I have tears of frustration and cramps and pulled muscles I just cant stop moving and then it gets to the point where I panic and cant breathe at all because I get worked up so I really need to address this part and now- not after therapy like my gp thinks. So I see her tomorrow and I need to speak to her about it.

So my goals for each day after thinking about what you said are:

-get into a sleep routine and stick to it that includes logging off the forums as well

- keep up fluids

-and try to keep up small snacks

- make sure I keep my hygeine- shower, teeth etc.

-abit of exercise

so those are my goals the ones I am currently struggling with a lot is the eating and the sleep as described above..

hope its ok that im taking notes of what your saying while your helping me with RA and the routines..

morning sis @Snowie i got about 4 hrs so thats ok for now. how did you sleep? sounds like a rest day today... any specific self care activites planned? im holding steady but can say im ok as i am going normally atm. mum and the tribe are over, i thought they mightve left by now but not as yet, they do have plans soon so hopefully not too much longer with lots of news. theres an ok chat happening atm and we are all actually getting along so that is a bonus.

@Sans911how are you going today? how did you sleep?

@outlanderI think setting up a sleep routine is a great idea. Making sure you log off here by a certain time. I have been thrying to do that and take my meds earlier at night.

Please don't be too hard on yourself if you don't achieve your goals, we all have bad days where nothing goes to plan and that is ok too.

Glad you got some sleep and things are going ok with family over atm.

I am going okish

@Snowieglad your going okish, its hard adjusting back so take your time with that one too

family have left now so can try and resettle abit more but at least no arguments which is good.

im having a think about a better routine as in what can i do as well as log off earlier. im thinking i would like to add in abit more reading of a good book as well

@outlanderlook up sleep hygeine, it will give you some good ideas.

I now take my night meds between 8-9pm on a normal night, limit coffee, try and logg off here before 10pm, listen to a relaxation recording in bed, have my sensory box and safety list next to me in case I wake up during the night and resist the urge to use my phone/ipad once in bed.

I am not sure if it is the new meds or this, but it is helping me.

thank you for sharing @Snowie that all sounds really good!

a nice quiet day sounds nice @Sans911

Hello Claire @outlander ,
So proud to hear your battle plans. I've got a couple of cents worth to throw in. I've noticed you mention a couple of times the limiting of caffine - desperate times often require desperate measures; have you considered cutting caffine out entirely? I've noticed a couple of terms in a couple of posts, that I didn't think was allowed; hemp & Valarian are very helpful, have you tried anti-hystamines? I have had doctors tell me it's fine to use them for sleep, it is not harmful nor addictive. I think I've mentioned Ensure before, there is also a hospital strength Sustagen, these are nutritional supplement drinks; might turn your poo a bit slimey, but it's better than starving 😉 I also used to have a vibrating mat/massage pad it was not very expensive {about $20}, I wonder whether it might help with the need for movement during sleep?
Love to you Claire