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How do you enforce boundaries?

How do you enforce boundaries?

How do I keep my boundaries, except to repeat them how ever many times a day he walks over them? I was told this week that I don't need to keep telling him how to behave, because he has an ABI, he can behave how he likes (including urinating outside). I shouldn't ask for a question to be answered, and not multiple times, or remind him people answer questions out loud, or not to be yelled at because I expect an answer, be argued with on everything (he even says he isn't arguing when I ask him not to argue), or expect him to shower, clean food off his face, clean his teeth, clean his dentures, change his clothes, wash his hands, with soap and for more than 2 seconds, after touching animals before touching food, or touching raw meat, or use the dish cloth on the floor then on the plates, or not be told every little thing I should be doing and when. And "That's OK." That's one of few phrases I get to everything when I eventually get an answer.

I also get "I don't remember," "not sure" or "yeah" with an upward inflection on the end. Yeah doesn't mean yes. It may mean no. Its not worth trying to come up with a real answer, just one of the phrases will do. Its not being untruthful to say yeah instead of no. It's ok. I've started ignoring him when he asks questions, but I'm being rude if I do it, and he isn't.

I shouldn't expect that pain has anything to do with why I don't do all the things he has decided I should do. I shouldn't expect that he will do as he's asked if it doesn't suit him and get anger, excuses or lies about why he hasn't bothered, but I should do whatever he's planned for me for the day. I get told what I'll be doing as soon as I wake up. It's not negotiable. Its like he has an anxiety attack if the day doesn't go as he's decided. I can't expect to be in another room for more than a minute before he comes to see where I am (includes the bathroom if I don't expressly mention that's where I'm going). And I can't expect to talk to my friends or family on the phone with any privacy. At the moment, I have to go outside because the phone signal in the house we're staying in is non-existent. He will come and stand by me. He gets very angry and gestures threateningly if I tell him to go away.

I've calculated the horrific financial cost of his ABI since he had his surgery 4 years ago (he was starved of oxygen - probably - it can only be diagnosed with autopsy). It wasn't diagnosed for 3 years, because we had moved overseas, and he has had no help. He doesn't want help. He says the problem is all mine, and it's ok. I didn't have such bad arthritis before his ABI - though I had a lot of hard days, but I worked. He insists that my osteo-arthritis is curable, but it doesn't have to be for others.

He's told me I should leave if he's so horrible. I get the carers pension and he is on disability. We have no home - we live in a caravan, wandering aimlessly and currently are housesitting. He says I'll be fine - I barely move some days due to arthritis. We don't have enough money between us but he's sure half will be enough. He has no concept of money, but he's quite obsessed with spending it. He can't understand budgets and loses his temper if I tell him he can't spend money. He has no access to the accounts, because he'd manage to bleed them dry. He breaks and damages so much through being careless we're doing a good job anyway. We have lost hundreds of thousands since his surgery, in part due to his complete disinterest in the business we had just purchased in the same month as his surgery. We lost it and a lot more besides, before I consider what we haven't been able to earn since this happened.

His solution for me is that I sell myself or go hook up with someone else. Or simply, I'll be fine, and something will come along. That should be easy to find someone he says. He seems to find my pain very amusing. I have a plan to get out, but it will take time. I need to be in one location, I want to buy a house, but he's obsessed with running and has made sure so far I don't get to talk to agents about houses that are in our price range. He's obsessed with keeping me isolated and alone. My best friend is dying and he says I don't need to see her again this week. I have plenty of time according to him. According to her, she has weeks at best. I can't get there if he doesn't drive me, due to the arthritis.

I am very angry that the life we had planned is gone. That I am trapped with someone who treats me like the enemy. That the man I married died during that operation. Someone on here said that I had a lot of grief to deal with. Until she wrote that, I hadn't even recognised I had anything to grieve. Which makes me angry at the counsellors I've seen who never mentioned that at all. And more than that, I'm exhausted.

67 replies

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In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

The cancer was colon. They starved him of oxygen during surgery (so every part of his brain was damaged - which doesn't happen any other way), but surgical notes don't show any issues, not even the ones he had post-op that we knew about. His follow up and support has been terrible. I have seen a psychologist and other counsellors, but the hospital has shown no interest in him or his issue. All they ever tell us is that the surgery was very successful. I've been studying everything I can find, and trying everything I learn, but there is not one single thing I've tried that has any effect on him. His empathy is almost gone, so he just doesn't care how he behaves or how it affects me. He still believes he cares.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

@artee I am horrified to read that about the surgeons .... I know that both my scienced educated ex- husband and brother are very wary about doctors. For some Medicine has become an industry and often legal issues are prioritised over health issues.

My ex hubby's family holidayed with a brain surgoen's family ... there were enough stories to scare the living daylights out of him.

Can you protect yourself and get some stability ... and not get too involved in the questions about your hub's emapthy or caring .... ABI is notorious for creating short fuses in its sufferers ... If you can get some space and attention and meet your own health needs FIRST .... then deal with the marital and relational aspects.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

@artee,

Have you had a chance to ring the Synapse place yet to see if there is anything they can assist you with?

Has your husband retained any of the good qualities at all that he had prior to the ABI?

Sometimes,in the midst of anger it can be hard to think of them but maybe in a "calmer moment" might be a betetr time for reflecting on that.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hello @artee,

Have been following your thread however not sure that I can help you. It is funny how things can affect the brain. My partner had an accident earlier this year and I think it triggered a change for the better in him although I am not sure why.

I was wondering when I read how your partner acquired his brain injury if you have spoken to a lawyer. If he was well before the surgery and not after it would seem that there must be some argument for compensation. Also if there was any way you could get your partner to settle in one place. It would seem that being on the move is not good for you.

It is good that you have found a doctor you like. It is very important and I had a good doctor for many years who retired, Since then I have had several doctors and they just keep moving away. Maybe a problem with being in a rural area.

cheers

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I haven't contacted Synapse yet since I have been very sick for quite a few weeks now, suffering from asthma and have trouble not coughing when talking. I have struggled to find something good that's left of who I knew pre-ABI and have spent a lot of time over several years now looking, but there is not even one tiny little thing I can find and that is just so sad.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

We contacted a lawyer (several in fact) before the statute of limitation (which was 3 years, now 2) ran out on being able to take action against a medical procedure and were told very clearly there was nothing in the notes they could use. I am working hard to try to find us a permanent home, but have massive resistance to that - like I get to pretty much everything I want to do.

In response to: Re: How do you enforce boundaries?

Some Re: How do you enforce boundaries?

I want to scream or punch something. Some days are worse than others and some days my patience is sorely tested. Today is yet another of those.

So he's moving the car from the verandah where it was stored out of potential hail harm yesterday. And while reversing (and rotating the car 90 degrees) he's driving way too fast and backs into the retaining wall. It's not our property. So I scream out stop and he gets upset and agressive because I've yelled at him (I was about 8 metres from the car at the time) and then does exactly the same thing again. I'm so sick of him not bothering to pay attention. I asked him what had to happen for him to pay attention and he said "who knows". I'm sick of all the excuse phrases that avoid making any effort to try.

He insists he didn't damage the wall - he did but he doesn't care. Just more damages he's caused. He's a walking disaster and I can't literally can't afford the horrendous amount of damage he creates from carelessness. The car is back in the shop again having thousands more spent on it.

On the way under the verandah, he hit the post, because he said he couldn't see me indicating he should stop, or hear me yelling at him, because of course, he had the window up. And I should have known he 'couldn't see a thing becuase the windows were fogged'. He told me to f*k off when I told him the car shouldn't have been moving if he couldn't see where he was going. Now he's getting more verbally abusive and I know it's because we're heading off soon and will travel to see my family over Xmas and he doesn't want to see them. He hates my family, but they've never harmed him. He has alienated his entire family years and years ago.

we went looking at options to get us into a house yesterday and he's now adamant that we can't have any kind of mortgage even though he has zero comprehension on money. Of course, now that I've come up wiith a very viable option, he'll fight like crazy against settling anywhere. I found a great rental too, but he's flatly refused to go look and I can't go alone as where we've decided to go is 250km from where we are now and I cannot drive that far myself.


Yesterday he was incredibly rude and hostile because dinner wasn't ready when he wanted it.

I'm just so over having to say every single thing up to 8 times without any response then be yelled at, or still ignored, or not answered, or laughed at for being in pain or a thousand things that make me the enemy. I have my new year's resolution in place. I will not be doing this by this time next year. I've told him again and again he can behave however he likes and ignore my boundaries, but there are always consequences. I'm over caring about how he feels about anything. I'm giving back what I've been getting.

In response to: Some Re: How do you enforce boundaries?

Re: Some Re: How do you enforce boundaries?

Hi @artee

I know im coming in late with the discussion, but there is a great website a book written by a lady named Sue Konnigan who helps people develop boundaries within their family. Her website is here worth a look! I would recommend the book!

Outlanderali

In response to: Some Re: How do you enforce boundaries?

Re: Some Re: How do you enforce boundaries?

Hi @artee thanks for your ongoing updates with the circumstances you are facing with your husband. I am sorry to hear things continue to be so difficult for you. I understand your husband suffers from an ABI, and he is a victim in this situation too as he has been left with a disability. Your situation is unique, but noone ever deserves to be treated with abuse.

In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Thank you Ivana for your responses. ABI is almost impossible to comprehend, unless you have lived it. I have. You cant judge what is happening through any normal lens. What may appear to be irresponsible or irrational, is actually something else going on.

For example "fixation" becomes a necessary tool. For trying to maintain focus on one particular thing while trying to "figure it out" which may take months, not moments. Reduced capacity to process information. Memory loss. You don't actually still "know" what you used to know, so it isnt part of the process. It can be like being a kid starting school all over. Everything has to be "learned" and figured out again. But you dont have the knowledge that you "lost" knowledge, because it doesnt feel like anything is missing.

Impulsive behaviour. My god. I never used to be affected by or influenced by advertising before, now I seriously am! But for me it's a combination of my world consists of right where I am, and what is right in front of my eyes, right now. And there is this weird thing of I still go through the process of how I would use it, do I need it, but as I explore this, I "picture" it being used or in place (just as before) but it then becomes solid in my mind it is there, and I am using it. What I wold have previously rejected as I DO NOT NEED becomes slotted into life. The old process. But a different result because of the alteration to visual processing and also short term memory (the right now thing). And for the life of me I somehow was arriving at "good decision" when I should have recognised it for "frivolous purchase".

The good news is. I eventually realised it was happening and that I am now affected by visual "bait" and so I make myself ONLY go shopping for what I NEED and I make myself NOT LOOK (mine is visual) at anything other than that. If I find myself "seriously contemplating" a purchase, my mind kicks in and I now doubt that contemplation, make myself walk away knowing I can come back if I still decide I want it, and guess what? Out of sight, out of mind. Immediately. It's become a solution that works FOR me while the same "problem" is what means I burn dinner if I am not cooking on the lowest temp.

I guess what I am trying to say here is, the visual "nowness" and the short term memory issues have both an upside and a downside, but its the same thing. Coming to know and understand what is going on (or now doesnt go on) is what allows us to "manage" life and get good outcomes, but taking those things into account when doing things.

But it takes time. We have to relearn almost everything. And going from wife to teacher of learning infant in adults body, isnt easy. Because you will have the same or similar expectations of the person, who is no longer that person. But can be close to that person again (over time) if they are allowed to relearn things in a different way.

I said often in the period when I was starting to recover a bit (became aware of what was going on) thank god I live alone because I'm driving myself mad enough with the things that are happening. I understood even then how hard it would be for someone else to contend with things.

It's hard. Every tiny little thing is hard, and exhausting, and takes so much concentration and even then it screws up more often than not. The "little things" take a long long long way back seat (I stopped worrying about them at all) because everything I had to give, was being given to just get the most important things done (like walking when you cant actually feel the ground you are on and randomly tip over and fall regularly) and working out how to turn that same tap on, again, and again.

Things dont stick, not for a long time. But then it starts to get better. And time.

Speaking of time. Time and space had no way to be measured for me. No matter how hard I tried. I couldnt tell if something was a minute or a week. I still cant judge the step down off a curb and can land hard. I read your frustration and upset about your sick friend and your husband's response. He might not be being selfish or unfeeling. But when a week can be like a minute or a minute like a month, time as we know it, takes on frightening dimensions so we either stress over getting to an appointment on the right day at the right time (with luck) or we dismiss anything that involves measurement of time, because it is so horrendous to try and do the measurements.

Its impossible to understand how such seemingly ordinary things can become so overwhelming and debilitating. But if the brain will not process it, or can not process it, it simply can not. It's not that we were/are "unwilling to" or arent trying, or are being selfish or inconsiderate. But I do hear you, and I do understand your hurt and frustration.

Make goals. But make it a long game. I had no idea just how long it would take and I too was angry and frustrated I couldnt just "fix this" in a hurry by trying harder. But when you make those goals, you might need to work out different ways those same things can "now" be achieved, by doing things a very different way, using different methods, to get the same results. That can only be achieved by knowing and understanding what is not working as it used to, to create those work arounds.

One thing I now "can not" do is write short responses or speak short responses. Not that I dont want to. Not that I didnt used to. And I have no idea what I cant. But I cant. I have tried and tried. Its broken. I've lost it. The same as a limb has been removed. And yes I am going to say I have an ABI and there is nothing I "can" do to change it. So i ask respectfully that you accommodate me a little here and understand I am doing this the only way I "can".

Hang in there. It gets better.

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