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How do you enforce boundaries?

How do you enforce boundaries?

How do I keep my boundaries, except to repeat them how ever many times a day he walks over them? I was told this week that I don't need to keep telling him how to behave, because he has an ABI, he can behave how he likes (including urinating outside). I shouldn't ask for a question to be answered, and not multiple times, or remind him people answer questions out loud, or not to be yelled at because I expect an answer, be argued with on everything (he even says he isn't arguing when I ask him not to argue), or expect him to shower, clean food off his face, clean his teeth, clean his dentures, change his clothes, wash his hands, with soap and for more than 2 seconds, after touching animals before touching food, or touching raw meat, or use the dish cloth on the floor then on the plates, or not be told every little thing I should be doing and when. And "That's OK." That's one of few phrases I get to everything when I eventually get an answer.

I also get "I don't remember," "not sure" or "yeah" with an upward inflection on the end. Yeah doesn't mean yes. It may mean no. Its not worth trying to come up with a real answer, just one of the phrases will do. Its not being untruthful to say yeah instead of no. It's ok. I've started ignoring him when he asks questions, but I'm being rude if I do it, and he isn't.

I shouldn't expect that pain has anything to do with why I don't do all the things he has decided I should do. I shouldn't expect that he will do as he's asked if it doesn't suit him and get anger, excuses or lies about why he hasn't bothered, but I should do whatever he's planned for me for the day. I get told what I'll be doing as soon as I wake up. It's not negotiable. Its like he has an anxiety attack if the day doesn't go as he's decided. I can't expect to be in another room for more than a minute before he comes to see where I am (includes the bathroom if I don't expressly mention that's where I'm going). And I can't expect to talk to my friends or family on the phone with any privacy. At the moment, I have to go outside because the phone signal in the house we're staying in is non-existent. He will come and stand by me. He gets very angry and gestures threateningly if I tell him to go away.

I've calculated the horrific financial cost of his ABI since he had his surgery 4 years ago (he was starved of oxygen - probably - it can only be diagnosed with autopsy). It wasn't diagnosed for 3 years, because we had moved overseas, and he has had no help. He doesn't want help. He says the problem is all mine, and it's ok. I didn't have such bad arthritis before his ABI - though I had a lot of hard days, but I worked. He insists that my osteo-arthritis is curable, but it doesn't have to be for others.

He's told me I should leave if he's so horrible. I get the carers pension and he is on disability. We have no home - we live in a caravan, wandering aimlessly and currently are housesitting. He says I'll be fine - I barely move some days due to arthritis. We don't have enough money between us but he's sure half will be enough. He has no concept of money, but he's quite obsessed with spending it. He can't understand budgets and loses his temper if I tell him he can't spend money. He has no access to the accounts, because he'd manage to bleed them dry. He breaks and damages so much through being careless we're doing a good job anyway. We have lost hundreds of thousands since his surgery, in part due to his complete disinterest in the business we had just purchased in the same month as his surgery. We lost it and a lot more besides, before I consider what we haven't been able to earn since this happened.

His solution for me is that I sell myself or go hook up with someone else. Or simply, I'll be fine, and something will come along. That should be easy to find someone he says. He seems to find my pain very amusing. I have a plan to get out, but it will take time. I need to be in one location, I want to buy a house, but he's obsessed with running and has made sure so far I don't get to talk to agents about houses that are in our price range. He's obsessed with keeping me isolated and alone. My best friend is dying and he says I don't need to see her again this week. I have plenty of time according to him. According to her, she has weeks at best. I can't get there if he doesn't drive me, due to the arthritis.

I am very angry that the life we had planned is gone. That I am trapped with someone who treats me like the enemy. That the man I married died during that operation. Someone on here said that I had a lot of grief to deal with. Until she wrote that, I hadn't even recognised I had anything to grieve. Which makes me angry at the counsellors I've seen who never mentioned that at all. And more than that, I'm exhausted.

67 replies

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In response to: How do you enforce boundaries?

Re: Meltdown moment

So now I'm up and about again a bit, he's backed off the aggression and hostility, but he's not self aware of his actions. He blames me for 'picking on him' but can't recognise I say the same things again and again and again when he ignores the boundaries.

I have osteoarthritis in my neck which causes severe migraines, coupled with chronic lower back pain and another illness which causes chronic dizziness.

While I've been ill this time - flu/bronchitis/asthma plus dizziness and migraines, he's been impatient, because he doesn't get to make me do the things he wants the moment he thinks of them. He has cooked, which is great, though the portions are erratic, the combinations are peculiar and the condiments can be over the top (he did have a phase some time ago where he refused to let me put my own salt & pepper on food until I lost it and screamed at him). He managed to do some shopping, but has no way of getting money to pay (he can't remember pin numbers and I won't let him have a paywave card because he doesn't understand money at all) He forgot half of what was on his written list and got a lot of things wrong. I said nothing. I couldn't even get to the bathroom unaided (too dizzy) and was not able to stand to prepare food. I couldn't get to the supermarket myself and I have no friends or family close that can help with these kinds of things, and we don't stay anywhere long enough to make those kinds of friends.

In response to: Re: Meltdown moment

Re: Meltdown moment

Hi @artee

Good to hear from you again ... though sorry hub is aggressive.

I second @NikNik you do have a right to get YOUR needs met ... as well as being mindful of his needs.

I am wondering if there is anyway you can withdraw support from hub to enable him to realise that a less mobile living arrangement might be better for you both ... slowly ... eg less help navigating ... or just focussing more on what you need even when you are together. Not escalating .. but not enabling him to keep running??

Is that fair?

Apple

In response to: Re: Meltdown moment

Re: Meltdown moment

@Appleblossom

Thankyou, thankyou, thankyou. This is exactly what I will try. Every now and again I do the silence on navigation, just to see how he will cope. What is worrying is twice he has 'stalled' that is more or less stopped mid intersection, usually into oncoming traffic (my side of course) when he realises he's lost. Driving is a biggie I do need him for since my neck issues mean I can't drive far or often without triggering multi-day migraines.

In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Artee. You r in the same situation that I was in 10 yrs ago. I haven't read all your post. I didn't need to to get the thread of your dilemma mate. I haven't read any of the posts from others yet. I find if I do I lose the sense of your situation for me to focus on. I'm not adequately explaining myself am I. The reason why I'm responding to your post is that recently I posted to someone else the importance of having 'me time'. I didn't however mention as to how to go about it n I've only just come across your post by accident. I just assumed that because people know their own circumstances they would know best how to bring about their own kind of 'me time' that suits them. I have a busy day today so I'll have to get back to you this evening to talk some more if you like. Maybe you can fill me in about where your currently at or let me know that all is resolved now n your situation no longer exists.

Cheers for now.
MockingJay

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

@MockingJay Thanks for your support. This was my first post (warning its long) and explains where I'm at. Nothing is resolved, except for my own decisions. I know what I want to do, I just need to be able to do them. I feel like I'm at war - or a prisoner - I am watched/clung to like a child's 'safe' toy and I have almost no ability to do anything alone, which includes making phone calls I need to make out of his hearing.

Outside of that, I have a relatively crippling level of osteo-arthritis which prevents me from driving anywhere much. And of course, I'm not much of a driver, according to hubby, (which is bs), and he flatly refuses to let me drive 'his' car when I ask. It's not his car, it's was purchased jointly. We have only one car, because we do not have a fixed address - we tow a caravan. There are multiple health issues of mine, all of which are debilitating at times, all of which leave me more or less at the mercy of a person who no longer has any real concern about my welfare, even though he thinks he does. He's proven again and again he most certainly does not.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I dont like to generalise much ... but CONTEXT is everything when dealing with mental health or mental illness.

Yes driving is a biggie ... and we dont want to test hubbie's reactions in a traffic emergency ... but it would be good if he comes to see some of the issues.

I am in the opposite situation in some ways ... about the driving thing ...

I have been trying to encourage son to get driving licence for years and cease being his chauffeur ... it is what it is ...when push comes to shove ... and we are a household without access to a car at the moment ... and we are at the point of getting down to tin tacks re all life issues ... I am surviving just fine without a car ...

Good Luck @artee

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Artee. I'd like to focus on you first. Do you have family or understanding friends who r willing to provide you temporary respite. Do I understand correctly that your hubby has a brain acquired injury? Is he still capable of taking care of his physical needs,ie toilet shower dress n feed himself. If so then rather than fight him to go into respite, the caravan can act as his respite while you take time out for yourself. To resolve the issues you have with your hubby otherwise, is not going to happen anytime soon. But for now let's explore the time out possibilities. One of the ways I use to get some me time is I'd pack my husband's bags n buy him a one way ticket to his family. Then I'd get a phone call from one of his sisters telling me they don't like surprises. I told her to cheer up its not a life sentence hey. Well I'm turning in for the night now. Hooroo

MockingJay

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I want to reassure you that I don't expect you to do what I did with my husband Artee. But I do think you need to take the initiative to put yourself first presently n let your hubby find his own way for the time being. While you remain anxious about your own health issues, it won't help your already tenuous relationship with your hubby. That's why I suggest you make a decision n act on it. It wouldn't surprise me if you r in the middle of having a nervous breakdown. Talk to a GP about your circumstances, the way you feel, that your a nervous wreak, he might b able to refer you to a mental health professional at a public hospital.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I should have read all the posts before I spoke to you Artee. QLD is a good place to live in. It will help you with your debilitating arthritis because of the warmer climate. That's why I do. Living half way between Brissy n Cairns I don't suffer the cold weather conditions. All the advice I've read from the posts to you is very intuitive. Have you done any research on the internet about Aquired Brain Injury. I know very little about it. Having an operation to remove the stage 3 brain cancer would undoubtedly have a significant affect on the prognosis of your hubby's recovery. Did you receive any support or counselling prior to the operation n follow up support after the operation. To prepare you about how to take care of your hubby now that he has a form of ABI. About what you'll b dealing with, what to expect or not to expect? It's a serious game changer to anyone's life going by your information. It's not surprising you're health is as bad as you say.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Suffered a nervous breakdown about 7 years ago. I'm not going there again and I know I'm not near there. The stress is bad though. I have just discovered an excellent doctor (after decades of searching).
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