FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Friends, families and carers

How do you enforce boundaries?

How do you enforce boundaries?

How do I keep my boundaries, except to repeat them how ever many times a day he walks over them? I was told this week that I don't need to keep telling him how to behave, because he has an ABI, he can behave how he likes (including urinating outside). I shouldn't ask for a question to be answered, and not multiple times, or remind him people answer questions out loud, or not to be yelled at because I expect an answer, be argued with on everything (he even says he isn't arguing when I ask him not to argue), or expect him to shower, clean food off his face, clean his teeth, clean his dentures, change his clothes, wash his hands, with soap and for more than 2 seconds, after touching animals before touching food, or touching raw meat, or use the dish cloth on the floor then on the plates, or not be told every little thing I should be doing and when. And "That's OK." That's one of few phrases I get to everything when I eventually get an answer.

I also get "I don't remember," "not sure" or "yeah" with an upward inflection on the end. Yeah doesn't mean yes. It may mean no. Its not worth trying to come up with a real answer, just one of the phrases will do. Its not being untruthful to say yeah instead of no. It's ok. I've started ignoring him when he asks questions, but I'm being rude if I do it, and he isn't.

I shouldn't expect that pain has anything to do with why I don't do all the things he has decided I should do. I shouldn't expect that he will do as he's asked if it doesn't suit him and get anger, excuses or lies about why he hasn't bothered, but I should do whatever he's planned for me for the day. I get told what I'll be doing as soon as I wake up. It's not negotiable. Its like he has an anxiety attack if the day doesn't go as he's decided. I can't expect to be in another room for more than a minute before he comes to see where I am (includes the bathroom if I don't expressly mention that's where I'm going). And I can't expect to talk to my friends or family on the phone with any privacy. At the moment, I have to go outside because the phone signal in the house we're staying in is non-existent. He will come and stand by me. He gets very angry and gestures threateningly if I tell him to go away.

I've calculated the horrific financial cost of his ABI since he had his surgery 4 years ago (he was starved of oxygen - probably - it can only be diagnosed with autopsy). It wasn't diagnosed for 3 years, because we had moved overseas, and he has had no help. He doesn't want help. He says the problem is all mine, and it's ok. I didn't have such bad arthritis before his ABI - though I had a lot of hard days, but I worked. He insists that my osteo-arthritis is curable, but it doesn't have to be for others.

He's told me I should leave if he's so horrible. I get the carers pension and he is on disability. We have no home - we live in a caravan, wandering aimlessly and currently are housesitting. He says I'll be fine - I barely move some days due to arthritis. We don't have enough money between us but he's sure half will be enough. He has no concept of money, but he's quite obsessed with spending it. He can't understand budgets and loses his temper if I tell him he can't spend money. He has no access to the accounts, because he'd manage to bleed them dry. He breaks and damages so much through being careless we're doing a good job anyway. We have lost hundreds of thousands since his surgery, in part due to his complete disinterest in the business we had just purchased in the same month as his surgery. We lost it and a lot more besides, before I consider what we haven't been able to earn since this happened.

His solution for me is that I sell myself or go hook up with someone else. Or simply, I'll be fine, and something will come along. That should be easy to find someone he says. He seems to find my pain very amusing. I have a plan to get out, but it will take time. I need to be in one location, I want to buy a house, but he's obsessed with running and has made sure so far I don't get to talk to agents about houses that are in our price range. He's obsessed with keeping me isolated and alone. My best friend is dying and he says I don't need to see her again this week. I have plenty of time according to him. According to her, she has weeks at best. I can't get there if he doesn't drive me, due to the arthritis.

I am very angry that the life we had planned is gone. That I am trapped with someone who treats me like the enemy. That the man I married died during that operation. Someone on here said that I had a lot of grief to deal with. Until she wrote that, I hadn't even recognised I had anything to grieve. Which makes me angry at the counsellors I've seen who never mentioned that at all. And more than that, I'm exhausted.

67 replies

61 - 67 of 67
1...67

In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi @artee

It's really great to read that you have some space to yourself at the moment in house you're looking after.

I'm concerned, as @Sally flagged, for your safety. It's excellent that your sister is aware what's going on. Is she able to assist with your situation? Could she offer a place to stay for you?

You deserve not to live in fear, you deserve to be cared for and loved and above all else, you deserve to be SAFE.

Would you like me to gather some resources and places you can call to explore your options?

Nik

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi @artee

Hope you are managing. Try and find some connections in real life. At the forum, we can only do so much. I echo the others .. you deserve some safety and quality of life.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Thanks for your concern @Appleblossom & @NikNik

I am OK. I work very hard to make friends and to keep friends. Not easy while not staying in one place, which is also why we completely fall through the cracks for help and support. The agencies can't help much when we aren't in one place for more than a week or two.

That is going to change. We have purchased a block of land and will put a house on it in a couple of months. It might still take about five or six months before we can move in. He will be given the choice of joining in the community, getting some care, allowing me respite and behaving himself or going into full time care.

That causes issues with hubby. He is very threatened by the thought of being in the one place (he still insists we must be in hiding). His behaviour around others is very, very different to how he behaves around me, which I find interesting. It means he does know exactly what he's doing and how unaccpetable his behaviours are.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

That's a huge step @artee !

Keep us updated on how you're going 🙂

In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi @artee,
I empathise with the difficulties that you are experiencing with your husband.
All states and territories provide in home supports as well as day programs for people who need extra supports due to mental illness like ABI and dementia for example.
If you call Queensland Home and Community Care, they will come to your home and assess both your needs and your husband's needs.
They can provide you with breaks by recommending day programs that your husband can attend on a weekly basis and they may also have support groups so that you can get the necessary support for your own health and well being.
Whilst it can seem very daunting to reach out to seek appropriate support, there are excellent supports available for you. Your local community health centre is also a great place to seek supports as they include multi-disciplinary care teams that are accessible and often free or heavily reduced price.
I appreciate that you are trying your best to cope with your husband's care needs on your own, however it is o.k. to give yourself the permission to say that this is a bigger health problem than one person can bear on their own. I am amazed at your resilience to try and do this on your own, however the reality is that there are times when we all need to put our hand up and say I need some help because I cannot do this own my own.
I am a firm believer in having appropriate supports and in surrounding myself with supportive people. ABI requires professional help and learning new skills as a carer.
Whilst I am not a carer of a spouse with ABI, I can relate to your stress, frustration and extreme exhaustion. Hang in there and link ib with either synapse organisation, that another person has mentioned, or call Queensland Home and Community Care and ask for someone to come and assess your hysband's and your needs or go along to your local communitu health centre and they will start putting the necessary professionals to assist you and your husband.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

@STAY_CALM thanks for your response. It's very detailed and will be very helpful. For now though, we're still itinerant in a caravan. There is no 'home' for anyone to come and assess hubby, and no regular community to put him into programs, or get any care for me either. We don't have a fixed address and spend our time between housesitting and our caravan, often free camping, saving up as much money as possible, so I can have all those things shortly. We will be in a fixed location by Christmas, then I will be contacting everyone, to find out what help I can get and the community we're moving to has already proven to be very supportive and friendly. Even before our house gets to our block, we've made friends with neighbours and been asked to join community groups when we arrive.

In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi @artee,
I am pleased that you are surrounded by supportive people now and that a permanent home location is not too far away.
Access to home and community care is available even when living in a caravan or house sitting at friends' houses. Whilst coordinated care requirements can be trickier to manage, explaining your current living arrangements, they can organise help for you and your husband over the short term and help make life more manageable until Christmas if you require supports now.
All the best.
61 - 67 of 67
1...67