Night Shift

Am I remembering it right .. your child had sight issues. It was lovely to hear about the visit and you having their toddler to bond with.

My son was probably most angry 8 years ago. He doesnt express it outwardly very much, but it was in his mood and I was afraid for him. Mostly I am proud of how he is engaging with his passion of music.

What you said makes total sense @Appleblossom. I agree with you about being able to share candidly, it's such a change from life outside the forums. I can't say how much it means to me, it's immeasurable.

There would be carer's respite available for you if you wanted to use it. I'm not sure exactly how you'd access it where you live, but your counsellor would know how to find out. But I guess that depends on whether your son would handle it. Up here you can do it in a way that the one cared for can stay in the home and the carer is accommodated elsewhere. I found it really hard at first but my child said they enjoyed themself afterwards so it worked out well when we got used to it.

I have been doing it independently by going on little breaks doing music. I had a week away in January and a weekend recently and he coped and enjoyed it.

I am getting tired and should try sleeping soon. My son is on the piano at the ohter end of the house .. but it is not loud. He is tinkering and probably wont go down for a while. I prefer he use his time well rather than be in a constant struggle against himself.

I appreciate your company @eth When are you going away to the festival?

Thanks @Appleblossom. I've always enjoyed yours too. I really should at least try to sleep as well in the not to distant future. Glad to hear you've been getting some breaks, however you do it. I remember now you really enjoyed your music weekend.

The festival is the weekend after this one coming - so soon. I started packing today and am actually getting excited about it now. I have some moments of anxiety about being out there but I tell myself they're not very rational and it seems to have settled down now. Really looking forward to the night at the hot springs before we go to the festival too. That will be magic.

I'm going to sign off now. Goodnight @Appleblossom and sweet dreams.

I got D3 to school sort-of on time this morning, and she has stayed there, and she is stepping into regular classes as opposed to hiding out in the counsellor's office. Yay !!

The hardest part for her is when teachers respond with irritation and hot-headed grumpiness, not understanding that her pain issues and illness are real, and completely unaware of the underlying, undiagnosed, MI issue with her dad ....

Awkward. Difficult. Still doable, with patience and understanding all round ...... 🌷

Looks like it's happening.

Breathe. Hope. Love. Achieve another task. Repeat. - Notes to self ......

💗

Sending hugs to @Former-Member and @Faith-and-Hope...

Life is a funny ride. Do you like roller-coaster rides? Or do you prefer the slower more predictable merry-go-round?

One of my favourite spots in the world was in a park in Edinburgh. I would order a large pot of tea, and sit at a table, watching the merry-go-round with it's merry-go-round music and merry-go-round lights and little horsies...

A place of peace, that is what it was for me...

And such a place of beauty, as the night air started to settle in, and the quality of the light changed just before the slow fade to black...

Even in silence, the music of the merry-go-round plays on... hahaha...

Hugs...