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Coming clean

Coming clean

How do I come clean to my Mrs about how I am currently travelling? We use the traffic light system (green is good, yellow is so so and red is kaput). I am more yellow headed towards red, but I tell her green because I don't want to upset her.

I've been sleeping ridiculous hours because it is the only time I don't feel tormented. Apparently I've been talking in my sleep a lot too about demons and things like that. I feel like I can't concentrate properly on anything and am often floating here and there about a million things at once.

Thankfully the kids have gone back to their Dad's for now because I feel like I can let my guard down just that little bit. I never know what they make of me. Today we took them to a candy warehouse and they they were all smiles, so who knows?

I feel like I want to take some time out, but my Mrs always plans all these activities so that I keep busy (which I guess I need too). Thing is there is no time to be unwell, I just have to muddle through no matter what. I feel like I am letting her down all the time. I can't help it if my voices want me to harm others and self destruct myself at the same time. I don't get it, I don't particularly feel anything other than this blackness which has enveloped me. I've found myself being irritable for no real reason. I love her and don't want to lose her.

I also feel like this is all my fault. A month ago, the carer's counsellor wanted to push for respite against my will and I finally managed to put that idea to bed. Now I am screaming for respite myself. I actually WANT to go now. What does this mean? I'm afraid to say I need the help, as she always thinks I want to leave her for some reason, which of course is completely false.

How do I come clean and get my needs looked after and get her to understand that she shouldn't take it so personally? I don't want this to escalate into a hospital admission again where I was for a month last time.

46 replies

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In response to: Coming clean

Re: Coming clean

I'm sorry to hear you're struggling @Queenie, and I'm sorry you're not getting any respite from them.
Have you seen your psych to see what they suggest? Have you been able to talk to your Mrs?

In response to: Coming clean

Re: Coming clean

You didn't mislead me @Queenie. We just got the messages crossed.
Wouldn't it be good if SANE had a safe refuge we could use when we needed time out. That would be ideal.
I'm not sure why this place you checked out say you don't fit the criteria, when you fitted the criteria at the other respite where you used to live. Are they owned by the same people? Or is it this new beaurocracy that it causing all the kerfuffle? They have to stop cutting funding to current services and clients. Seems the Government has taken money from one service to pay for another.
Hope I didn't upset you when I got the water & the voices wrong. I thought you'd finally found a way when they quieten down for you. Sorry

In response to: Re: Coming clean

Re: Coming clean

Hi @Former-Member, I spoke with my Mrs and we had a massive fight. In the heat of the moment she told me to move out (which half an hour later she retracted) so it wasn't very helpful. It seems the only help I've got is hospital, but my normal psychiatrist is overseas at the moment so unsure if I'll even getting admitted privately. It's all a hot mess at the moment.

@utopia even though the respite houses are operated by the same umbrella organisation, they apparently get their funding from different bodies. Before it was Commonwealth funding and that is relatively easy to get. Now I'm in a different catchment area because I've moved, funding is from the Department of Communities at a state level. Almost impossible to get and it wasn't helped by the fact I have to speak on the phone on behalf of my carer as she doesn't like speaking on the phone. They believe I don't qualify as having a diagnosed psychiatric disabiity even if I am on the disability support pension because of one. I don't get it. When I moved here to the city I was promised all this support but now I have none at all!

Getting really close to the extent of my limits.

In response to: Re: Coming clean

Re: Coming clean

No need to apologise @utopia about the water and the voices situation. My post wasn't that clear.

In response to: Coming clean

Re: Coming clean

That's ridiculous that your funding now needs to come through a different source @Queenie. Sounds hard to try and navigate through all their rubbish to try and get the help you need. Add in the fact that your wife and carer struggles to talk on the phone. Then you need to speak for yourself. And I guess they take that to mean that you are doing well. Stupid thinking on their part.
Respite is for when you feel your slipping into ill health - but not sick enough for hospital. They need to make something available for you.

In response to: Re: Coming clean

Re: Coming clean

Exactly @utopia, I feel like I am headed downwards but not yet sick enough for hospital. I've been researching like mad and there is a recovery house available, but you cannot go there if you're in an acute phase of illness (which I am). Also the organisation has very cliquey, the participants of the program don't like newcomers and don't make them feel very welcome. Therefore I am reluctant to go there.

My Mrs has sent an email to the carer's counsellor (gaol warden) to see if she can help. They were going to put me into respite a while ago against my will, but rethought against it. We shall see how they go if I volunteer to go. Maybe she has resources not normally available to us?

I came up with a new colour yesterday as part of the traffic light system - black. I just feel like I'm overwhelmed by black at the moment. I just hope we can get this sorted, before a lapse into a depression episode. I seem to have those every 6 months.

In response to: Coming clean

Re: Coming clean

Depression is a nasty bugger @Queenie. I hate it.
Surely someone out there can help you with respite. What about the consumer consultant from the local hospital. He/she may have some suggestions you haven't thought of.
I hope some light shines on you today.

In response to: Re: Coming clean

Re: Coming clean

@utopia you know, that's not a bad idea actually! She normally only sees inpatients as she goes only on the ward, but we can see how we go. The worst she can say is she can't help us, right?

I pulled money out of my savings account to pay for respite at the respite house, but seeing as they are near impossible to obtain for services (the Department of Communities refers you and pays the worker there overnight, however you pay for the food you eat at a rate of $20 per day). I'll just hold onto it.

In response to: Coming clean

Re: Coming clean

@Queenie - yes keep that money aside for when you get a place. As I'm sure you will find a bed in respite soon.

In response to: Re: Coming clean

Re: Coming clean

I GOT RESPITE!!

I go next week (Monday to Friday). Sorry I haven't posted about it until just now. We've momentarily lost internet at home while they sort out our ADSL to NBN installation and connection. Found out yesterday about the bed being available out of catchment. The respite house is pulling a lot of strings to get in and funding is easier to get because it is through Commonwealth funding (which is relatively easy to apply for).

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