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Something’s not right

Not doing so well

Not doing so well

I am really not sure what to say because I can't find the words to express how or what I actually feeling & thinking. I was feeling not so bad up until recently. I just think no one will understand. I think I need some extra support this weekend

184 replies

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In response to: Not doing so well

Re: Not doing so well

@CatrionaB I did see the referring Doctor today because she asked if an appointment had been made and I told her yes. I did mention my concerns and she told me it was no different then talking to her. But to me its a huge difference because I don't know the person who is doing the assessment/testing. I was trying to ascertain what would happen and what is involved in the more intensive assessmet.

When I got home I did phone my specialist and she did phone me back and I told her that I was upset but I really couldn't put things into words for her and then I feel quite inadequate and sad and frustrated. I am not sure if I could see the memory specialist before the testing so that I could ask her some questions directly and she mite be able to do the mini mental again and if she is happy I mite not have to do the full assesment. I am just hoping these uncomfortable feelings subside for me.

In response to: Re: Not doing so well

Re: Not doing so well

Hugs @oceangirl

It is frustrating to not be able to express how we are feeling adequately. I find writing it down helps. Did something happen at the hospital that makes you feel you can't trust this full assessment and/or the person doing it, or is it because you feel they are not adequately qualified?

I hope your uncomfortable feelings subside for you. Would talking about them here help? Am here if you need me my friend 🤗💕

In response to: Re: Not doing so well

Re: Not doing so well

I just tag you in another thread @Former-Member . It is so lovely to hear from you. Hugs to you too @Former-Member . I do know of the specialist that is running the test not that I have seen her before but I have seen her at this current hospital and her previous hospital. To me she looks quite a cold type of a person and I think I am pretty good at reading people, I really don't see me and her gelling too well. Nothing happen at the hospital in Sydney they did phone me last week (Thursday) and I hope to catch with one of the managers from there during this coming week.

I am not sure if I am overreacting to the memory problem, at least if I have the testing now, I will have a baseline for future reference. I do know I am worried and that I am concerned. It may well be a combination of factors, I think I will leave it up to them to do their job. I am actually feeling a bit better tonight. I have about a week to think about it and of course I could have the testing somewhere else too. How are you my friend and I often think of you and your husband...

In response to: Re: Not doing so well

Re: Not doing so well

Hugs @oceangirl

I do understand what you mean as I too am usually intuitive when it comes to others character - it wouldn't give adequate results if you are not comfortable with the assessor as that anxiety will effect your concentration and not give the right results. I agree in that case it just wouldn't be productive. I think it's good if you mention this and the problems you would have, explaining it as above to the necessary medical professionals you are under and then I am sure another option will be made available to you. Don't worry my friend, it will all be sorted and work out. Promise.

Glad you feel better tonight. Do you feel your memory has actually become worse or your anxiety is becoming somewhat worse? The catch 22 is that anxiety issues can effect memory badly as well. It can become confusing. It's also understandable when the hormones are fluctuating madly at these times in our lives. I sympathise as the anxiety they cause can be maddening for awhile.And it can also cause temporary memory loss. So please don't feel inadequate as it's perfectly understandable. Are you on any hormone treatment now?

The whole situation must be making you worry as you are feeling a loss of control over your memory. The flip side is that you are in good hands and have the support of the hospital which would be comforting. These things can take some times to sort themselves out but I promise you in time they will and your body will heal and adjust. The best in life lyes before you. It's hard when we have to struggle with things like this alone which can be frightening. I understand and wish I could do more.

Easier said than done I know, but try and not worry as that's will make your anxiety and memory worse. Just live for the day and do your best in it and the rest will sort itself out. I promise. And try and keep connected with others and activities like your volunteer work etc during the day. All this will help make you feel better and aid towards healing. One step at a time without thinking about tomorrow...Are you still doing the volunteering?

Thanks for thinking of me. I have been struggling with health issues too, concern over my husband's health and concern for my daughter's lifestyle. My best friend was just diagnosed with renal cancer. So as usual the stress is still there, but I have my better days and enjoy the peaceful ones. My husband has been a good support and my daughter is a lot calmer and more reasonable than she was. So there are some positives. I just need to be more patient and positive. I struggle abit with disillusionment at times. I think since I have'nt been doing my volunteer work I have had too much time to think and am out of sorts. Should be better once I throw myself into those activities again.

Arh such is life my friend, the trials and tribulations - but there's the good days and happy moments, the love that makes it all worthwhile. Life is so precious and way too short. I don't like wasting it and feel I have been a bit sedentary lately feeling low and plan on working on it. Actually I have been very low.

There is a new movie out called "The Shack" that suppose to be an interesting feel good movie. So I might take hubby out for a meal and to see it Monday. Any plans for the week? 💕🤗xx

In response to: Re: Not doing so well

Re: Not doing so well

Hugs to you too @Former-Member

I'll have a good thing about my plan action during the week. You are beautiful and caring person. I try to live for today and let the rest sort it self out. I have only just started taking the hormone tablet and I am feeling a bit better with this.

What you have written makes a lot of sense and I know if I am not comfortable with the person doing the testing, it can affect the results. I know stress and anxiety affects memory too. The specialist will be running a lot of other tests other then the memory testing and that will pick up any genetic problem too.

Tomorrow I am just going to head to the pool for the day and Monday I have my volunteer work. And the rest of the week I have appointments- GP, exercise physiologist, psychiatrist (twice) and IVF specialist.

Thank you for reaching out to me and empathizing with my situation and that has helped ease my fear around what is happening and made me feel more comfortable. I really appreciate our friendship. The interaction at my volunteering is really helping me and I am growing because of this wonderful experience. If you don't mind, I will write back sometime during the week and let you know what is happening.

I am glad to hear your daughter is somewhat calmer and I truly hope she settles down for you. I am glad to hear your husband has been of good support. My Pop had renal cancer when I was a child and he had his kidney removed. I am hoping you start to have better good days- and I wish for you the best of life but more important a peaceful life. I am hoping to catch a movie and to go out for lunch during the week with a friend. Enjoy your movie and dinner out @Former-Member

In response to: Re: Not doing so well

Re: Not doing so well

Hi @Former-Member

In response to: Re: Not doing so well

Re: Not doing so well

Hi

I am really struggling with how I am feeling tonight. I have not heard back from the hospital. I tend to put on quite a brave face even when I am not doing so good. I still feel really inadequate atm. Hope someone is around to chat....

In response to: Re: Not doing so well

Re: Not doing so well

Hi @oceangirl

In response to: Re: Not doing so well

Re: Not doing so well

Hi @Eden1919

what have you been up to today?

are you studying or working?

In response to: Re: Not doing so well

Re: Not doing so well

@oceangirl I have not done much today i saw my caseworker but that was about it. I am studying at the moment. how about you?

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