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living with DID/ Dissociative Identity Disorder

living with DID/ Dissociative Identity Disorder

hi @Former-Member, @CheerBear, @Spookytookims, @Former-Member and everyone else

I've had a few ask about what its like living with DID. So I decided to do a new thread. First off for those who dont know there are varying degrees of DID, from just feeling far away or distanced to having distinct alternate personalities or identies. In my case I have distinct alters to the point they have names and one has even been diagnosed with autisim which is rare.

So to make it so people can get a better idea I'm Aj the owner of the body. Then there is Kelly she is around the age of 4. Kelly actually started off as my imaginary friend when i was little then I went through a period of wanting to be the imaginary one due to abuse from someone i trusted. so Kelly is also the Autistic one, she will scream when touched and doesnt talk often sits and watches the clouds. the longest she has been out is 2 weeks. I am not co-consious with any of my alters when they are out i lose time. Kelly will come out usually if i feel scared or insecure and can be hard on my partner when our son wants mummy.

Next is sarah she is around 6 and is the easiest to handle often my partner cant tell she is out til she starts humming somesort of tune (we havent worked out what it is) she is a typical 6 yr old and the best part is my little boy isnt afected by her when shes out he just thinks mummy has taken time to play with him.

Then there is Casey while she comes out very little she needs constant monitoring as she self-harms but she doesnt usually come out unless get real down. thankfully my son has never had to encounter her.

i also have another alter but she is not as distinct as the others.

yes most of my alters a littles or children, i have been told this is because of my age when my childhood abuse started and when significant truma was present.

i was three when my abuse started. i was 22 when i finally cut the cord of emotional abuse my mother used on me. if anyone has questions i am happy to answer them

168 replies

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In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@Former-Member Thank you, I will try that. It is awful, really awful. I hate DID, stamps a foot. Lol. 🐤🐤🐦🐦🐧🐔

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi

its b een a while but was wonder if this site and forum is still going

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Sure is @sketa Good to see you.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hey @sketa

I'm one of the moderators, I'll definitely echo @Maggie to say we are still going as a peer support forum. Good to see you

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

I think most of the others who have responded here have moved on. I just wish there was someone who understood this complicated and twisted story. It’s a worse feeling than alone, but I don’t know how else to describe it. I get it that no one can get it, but that’s of no help at all. CPTSD being part of the package adds another layer to the complications. Having read an article today while looking for a DID support site, all the psychologist had to say was, it possible doesn’t exist, plus a whole lot of archaic thinking. Sad to know they are still out there, judging and degrading, in ignorance.

Also something else I read said “ Loneliness and feeling unwanted is the worst kind of poverty” Yep, I know that well. I hoped to find someone with a small degree of understanding, I know each journey has its alone times. I guess I’m lost again, with no signpost or path ahead of me, no map, just nothing, and I’m tired of being tired, and lost and alone. I just wish someone on the planet could get this, I really do. But I understand how hard it is to get it, and I’m on the inside.

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

As a long term person with did or as i call it dpd in my case we get to know each other gradually. I have alters/others and they are not all fully functional or news. Some are soldiers there to deal with fights or difficult situations others may just serve a function such as the party person, the driver, librarian, 2nd parent and many more. Can't say i know them all but sometimes they leave impressions to let you know. I have lost count of how many there are but i know they range from children, teens, women of many ages as well as males from teen to senior years. I have come to call them the community and sometimes they chat to each other and ones who are present. I am not the original personality but i am the current main so hey every day is an adventure who knows what the future holds.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi @LadyCaroline welcome to the forums. I saw you in another thread also.

Yey to the adventure part. A roller coaster of a ride we all have. I call mine my jig saw family. We range in age and male female also.

Do you have a psych/counsellor..?.

I saw you completed nursing, well done. I did also, though I did it a long time ago. Very few DID around, but very understanding and caring people around the forums. You are welcome to join any conversation. There are lighter chatty threads if you would like a tag, or just go at your own pace. Take care.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@Maggie Thanks I will gradually find my way around the forum. My last symptom break out left me really debilitated and not able to function at all. Tech became an issue whew it was bad. I am also a carer and that takes its tole too. Thankfully some holiday time was due and i rested and revived a bit. Now that my child is away on camp i can take some time for myself. My other child doesnt require such total committment and we can just take time out.

I had a psychologist but she became unreliable so am searching for another. Most wont touch me with a barge pole. Some previously got scared of my community. Well have get by using phone counselors for now. Can bounce off some worries at least.

In response to: Re: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

@LadyCaroline It’s nice to see you here and there around the forums. There’s a careers side also which you might find helpful. Others in the caring roll facing challenges of all kinds.

I understand the ‘ most won’t touch me with a barge pole ‘ thing. It does make it harder though.

Time out from childcare commitments sounds needed. I hope you rest, and find things you enjoy doing.

Do you have hobbies/activities you enjoy. Or other stuff that’s helpful for you.? You don’t have to answer any questions if you don’t want to.

I hope today has some good in it for you.

In response to: living with DID/ Dissociative Identity Disorder

Re: living with DID/ Dissociative Identity Disorder

Hi @-Rayne- I havent contributed for a while either due other offline issues too. I get what @formermember talks about lost time and child alters have some myself. I dont call them alters they are the community for me or rather us. I just use single pronouns because i may misspeak when with other people. Not sure what it is like for @formermember but we have our own personalities but have decided to live as a group allowing each to contribute as the need arises. There is still memory loss but some small amounts of information are maintained to allow cohesion. Sounds weird i suppose but it works, people view the unit as eccentric. I am not sure who the me is but i personally am not associated with most of the family related to the unit and often feel not in the unit (body) sort of a floating feeling.

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