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Son (22) with schizophrenia

Son (22) with schizophrenia

Living with someone who suffers from schizophrenia is very difficult. Even medicated it seems he lives in a different world and stares a lot whilst smoking cigarettes like a steam train.
Sleeps during the day, spooks around at night.
Any advice about healthy diet, less coffee and smokes, is ignored.
He will never live a productive life.
We've lost family members close to us on the way because of his behaviour and them not understanding mental illness.
Ofcourse I worry about our future.
I need to be single as no other man can live with us.
I need to work full time to provide a roof over our heads and pay the bills. Without me, he'll be homeless, jobless and suicidal as his paranoia would kick in, specially when he thinks the meds are only given to him as he is a guinea pig and 'they' are trying to change his DNA...
I've always wanted children but no one never told me how tough it would be if a mental illness strikes the 'Brady bunch' family image with a thunderbolt.
A medal to anyone who cares for someone suffering mental illness.
They need all the help and support they can get. They deserve better too. Mental illness you don't see from the outside, my son looks like a healthy good looking young man but has no future. Maybe with support and someone pushing him out of his shell but some have tried and given up.
I have given up a marriage and another 7 years old relationship and noe bought a small unit to care for my son, indefinite. We have no other family here as Migrated here in 1987.

My love for my son is very deep and I am so proud of him he went to hospital last year and still takes his depot shot every month. However, I feel anxious and worry all the time. He has applied for DSP (disability pension) but he tells me if he gets rejected, and 'they' want him to work, he will stop the depot needle. It takes his motivation and energy away, He knows he can't work 8-5pm, neither with or without meds.
My good sense of humour is slowly fading but where there's life, there's hope, right?
Thanks for reading my story.

470 replies

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In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Former-Member@Former-Member@patientpatient@Faith-and-Hope@Sunshine888555

My son is still on his depot, a monthly injection. In the last year we have tried to lessen the amount but when my son's dad flew in from Asia and made a brief appearance for two days, my son requested to be put back in hospital. He hadn't slept for days, being anxious to see his dad again (Their relationship I can write a book over) and when we brought him back to the airport, my son got very unwell in the car. He mumbled we were not his mum and dad and he had always known we were transdimensial reptiles etc etc.

I took him home and he crashed so I let him sleep, as we had an appointment to see his Psych next day anyway. From then on his meds were increased again, and we flew to Holland in June.

When we came back, the extra wafers he was given on top of his doubled injection, had to be reduced.

We found without these extra wafers, he can't go to sleep until early morning hours. So at times he does take a wafer or two. The Psych now wants to try new medication.

My son needs to be in hospital for 2 weeks, and after that regular blood tests.

He has told the Psych he is now ready for it, but after we come back from our trips in May.

He doesnt want the blood test get into the way of our trips, which is very considerate of him.

I love him to bits. He still get weekly 3 hours visit of a mental care health worker and they just sit and talk.

I have never met the guy, but i think he is wonderful, it must not be easy sitting with someone for 3 hours who is not very social.

The main reasson my son wants to try the new medication is, he wants to get his motivation back. He is sick of sitting home alone, bored out of his brain. He does occassional volunteering, but there is not much around. (that he likes) He tried volunteering once a week at a nursing home. He found it fullfilling, but he couldn't continue as he said he has his own issues to deal with. So he stopped after going twice, which was a shame.

Anyway, gotta go, have a great day you all!

xx

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

thank you for letting us know how you both are..

you have both been through so much...

your son does sound very intuned with himself when making decisions despite being on such strong medication...

I think that this is very encouraging...even if there are still times of lacking motivation,,interest..energy..

very sensible to postpone until after the trip..

yes you love him to bits...that shines through so strongly..

I can understand the volunteering at a nursing home perhaps too much of a parallel with some of the patient's conditions....capabilities..

the mental health worker definitely sounds like one to hang on to..

sending you both a huge hug

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

good morning @Grasshopper3 @Former-Member @patientpatient @Sunshine888555 @Faith-and-Hope

how are things in your world...?

hoping that you can catch a smile from the one/s you care for....

only respond when you feel able....sitting in the background silently is accepted here and something I do often on other threads...

all part of self-care

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Former-Member @patientpatient @Faith-and-Hope @Former-Member

To all carers (I can't remember anymore names to tag @lol)

HAPPY VALENTINES DAY

LOTS OF LOVE TO YOU ALL

from Grasshopper3

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

You too @Grasshopper3 .... ❣️

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hey @Former-Member .... 🤗👋💕

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

good morning @Grasshopper3

thinking of you both...

sending you calm and serenity mixed together with love xx

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@MIFANTCARER
I bumped into your post about the MIFANT drop in centre.
You deserve a medal, keep up the good work, you're beautiful soul
I'm checking out (again) if there is such thing in W.A. for my son and I to go to.
Thanks again,
Grasshopper3

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Good afternoon @Grasshopper3

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