Son (22) with schizophrenia

@Former-Member @Grasshopper3 @Shaz51 @patientpatient

I need some help.

I have just seen a very upsetting post and responded. Not sure if I have said the right thing or not. I can't believe how upset and fragile I feel.

Living experience, enjoying time with others - schizo

could you please look and support with a comment.

Hello @Grasshopper3

Thank you for the link. Hard to watch facing reality.

I live day by day. I can't allow myself to think ahead for I have no control over the future.

I received another text message about importance of meditation and looking into "military breathing techniques". He is doing a lot of healthy research even though very intense from the sidelines I am guessing.

I have explained previously about using skype when I am overseas and he said yes. I worry that he will forget and try to ring me. I wont be able to answer due to costing thousands of dollars.

yes grasshopper you are doing very much the same, living in the day by day and being there with your son.

follow up on the support side as with working full time, you need some self care as Darcy and patient patient will reinforce.

I am not much use at the moment.

Have to go and see mum in the nursing home soon and she is not settling quite frightened. I am flying out and leaving my soon to be 91 year old mother to visit my 94 year old aunt and 91 year old uncle and meet my large family. Hopefully mum will be ok. Just more of living day by day.

will write again when in a better frame of mind. that other post on living forum has really upset me.

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@Grasshopper3 wrote:

..I said I am checking today if I can help in anyway. If you still feel like you did last night, we could ring someone, or even go past hospital where you might want to go for a rest.

He said I don't want to do anything, and he kept staring.

I thought well, I have offered, I will be with him, observing him, but I must keep doing what I like doing, not to get drawn into thinking the worst...

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For many months my son was like that; placid, not doing much, uncommunicative. I think we have to be careful with perspective and drawing conclusions. What I saw as inactivity, my son later described as being completely overwhelmed by his thoughts and perceptions, there was a vast amount of activity inside his head... and still is, though suppressed by the meds. Years later, there are still long delays before replies or no replies at all, and odd ideas that just seem to appear from nowhere. I've been reading some of the older Tuesday Topics, there's one where people discuss and describe their experience of psychosis. Link is here and some of the insights are very interesting. Some carers are dealing with situations like holes punched in walls and abuse, and I don't know how I could cope with that. Thanks to all the forum posters, there's lots to learn from others' experiences.

@ Darcy- re: your link to Dr Xavier Amador - youtube link (I am not sick, I dont need help)

- love listening to it both part one and two xx

that other post on living forum has really upset me.-- are you ok @Former-Member xx

@Former-Member

RE: I need some help.

I have just seen a very upsetting post and responded. Not sure if I have said the right thing or not. I can't believe how upset and fragile I feel.

Living experience, enjoying time with others - schizo

sorry late reply, I will look it up now

I had a look, and I think it is the question about any Schyzo groups in Melbourne that has upset you?

What is it that has upset you? I would like to know more about how you feel after you read and replied to it?

Keep in touch, I'm listening, we will work it out!

Love,

hello @Grasshopper3 @Shaz51

I feel very silly now that I have seen the later responses.

It was just the use of the term "schizo". I just felt this strong, protective instinct that our loved ones were being referred to in a derogatory, insulting way. I wasnt sure whether the person was being sincere. I felt that my son's essence was being violated. Very deep, very silly. It is just that he is so far away from me and I dont know when, if ever I will see him. I hate to hear other people make fun of, or call people names like that. I have always felt strongly about things like this even as a child. I was the quiet little girl who would stand up to the bullies.

Plus today was the last day I see my mum. Took her on the esplanade, bought ice creams and watched the ocean. Was lovely.

I am just being oversensitive. I will be fine.

Thank you both for showing concern. xxx

I hope that you are both ok.