My silent battles

In short @tyme Am I ok = no. (Wish could send email direct to you to explain. Due to guidelines, I know I can’t explain things on the forums)

Only using this thread to reply to you.

(see previous posts on here from a PSW and Community Guide).

Hi @Flutterbug9

Just wanted to let you know that @tyme isn't around right now but I am for most of the day.

Sorry to read that you're not feeling ok at the moment, is there anything we can do to support you this morning?

Hey what are the new spaces you're contributing in? I might head over that way with my coffee and fruit toast and have a read myself 🤓☕

Sending you all my best...

hopeful_hannah 💌

Hi @hopeful_hannah Due to the community guidelines I can’t explain things on the forums. I know @tyme @will see my post at some stage

New thread

@Chasingsunsets I can’t go into the reasons that have led to this decision. I’m no longer using this thread. I haven’t set up a new one. Physical and MH for me isn’t good

Hey @Flutterbug9 ,

Thank you for your patience! Sorry, I've been away - camping with the kiddos while they are on school holidays.

I will email you tomorrow. Hope that is okay?

No probs @tyme . No rush, whenever you have capacity.

spending time with the kids camping sounds nice.

brings back memories for me of times up to mid primary.

fun, happy memories

Hiya @Flutterbug9 if you ever choose to pop back to this thread feel free to tag me if you want 🙏

Hope you are traveling ok ☀️

Some things are not raw anymore. Coming back on here at times sounds good.

Atm @Chasingsunsets I’m caught in ongoing downward spiral. Benefit from pain relief infusion I had at start of December last year has now fully run out. Impact of lot of physical pain is causing limited mobility, that is causing emotional upsets and dragging my mental health down.
benefit of infusion started wearing off about 10days ago. 20mins maximum today and I’ve had to sit or lay down. Even at rest I’m getting stabs of pain at times. By now feel I’m spiralling into bottomless pit.

atm due to have next infusion in late May, depending if get green light from a different specialist.

how are things travelling with you?

Great to see you and get an update @Flutterbug9 . I'm sorry about the ongoing pain. Are you looking forward to the May infusion?

Take care

Sounds good @Flutterbug9 always happy to be tagged wherever 😊

Ah the dreaded spiral, definitely know the feeling and hear uncomfortable this is for you right now both mentally and physically since you infusion medicine has stopped working.
I wonder what you find helpful in these times?

How can we best support you here when things are rough?

I am ok thanks for asking, definitely could be better, trying to stay somewhat steady as I have surgery next week. Just spent 4 hours plus at the hospital for last checks so felt like I lost the day really. But lost the last week so you know not really winning but that’s ok. Just got to keep moving I guess. I had sweat FA energy today and of course this evening I walk past a puddle that was rapidly running out of water some fish were already dead and yeah nature is nature but I couldn’t walk past without helping these little lives so just ended up scooping up what I could and putting them in a bigger puddle did like 5 trips 😂. To my surprise there were fish and tadpoles!! lol

whats on for your next couple of days? Lovely chatting 💛