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Talking through trauma and PTSD

The me no one knows - SI warning

The me no one knows - SI warning

I’ve made this space to have somewhere safe to talk and share things.

to chat with every one who has shown concern about and for me.

I have spent almost all my life masking, from as far back as primary school (possibly younger).

almost no one knows the real me. Not sure if I even know the real me.

my past is filled with lots of darkness. People I’ve tried to speak with during my life either don’t believe me or don’t want to know

@AlwaysMyself @Bunniekins @Captain24 @Cuddlebear @rav3n @Jynx

hiding behind the mask pretending nothing is wrong. Putting on brave face whilst inside I’m a shattered pieces. Feeling lost and completely alone. No one wants anything to do with me. Relatives only contact when they want something. Going to bed every night hoping to never wake again

752 replies

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In response to: The me no one knows - SI warning

Re: The me no one knows - SI warning

Thanks for the reply @AlwaysMyself

you are welcome to tag me in all your posts. I might not get to read them until maybe once a week. I want to be able to keep up to date with you and what ever is happening, similar to all in info/updates in your posts a few weeks ago. To hear about the tapering, impacts on you etc. to hear about progress with preparation for the trial, all info about the trial you are able to share. As I said, I’d like tall the different things in your posts a prior to few weeks ago that you used to share with me

I have felt that something isn’t right last few weeks as I’ve been missing out on being able to keep up to date with the things above plus whatever else is happening with and for you.

I felt something wasn’t right when I didn’t get answers to my post couple days ago. A post through which I was trying and hoping we could maybe head towards something similar to our chats couple mths ago

id like to be here for you anytime you want or need to talk, vent etc, if that’s something you are ok with

with me only signing into the forums if I’ve being tagged in posts, if I’m not tagged I’m going to continue feeling like I’m in the dark.

Definite miscommunication. I didn’t intend my post to result in you thinking you can’t tag me in all your posts or send me messages at any time. One of those situations were lots and lots more wording might have helped. Apologies for all the confusion I’ve caused. It is not going to worry me if, when I log in, I’ve got lots of notifications regarding posts from you. I actually enjoy reading xx number posts from someone at one time, allows me to catch up on everything and then send appropriate reply. At times things can change quickly (similar to lots of things I’m currently trying to deal with and have been since early last week) and can change from day to day that reading multiple posts from multiple days can be an advantage

In response to: The me no one knows - SI warning

Re: The me no one knows - SI warning

Hope the appt went ok today @Flutterbug9 and glad that you're feeling better too 😊

Glad to see you and @AlwaysMyself talking things through a lil miscommunication. Warms me to know how open and honest you can be with each other 💜

In response to: The me no one knows - SI warning

Re: The me no one knows - SI warning

Hello @Flutterbug9 thanks for the tag 😊, you must be relived that that you have finished those meds my friend. How did you get on with the blinds? Get the answers you were hoping for?

Yeah no real changes here. Actually feeling a bit better today and yesterday a bit more at baseline which was nice, despite the later nights. It’s a continuing battle to work out what throws me off but I have a few ideas. How good would a CGM be for when you are off your baseline and that it could provide a simple answer 😅, it’s a good thought anyway lol!

How’s all your activities going? 😊

Thanks for thinking of me much appreciated 🙏, I have had a couple of days off which has been really lovely. Got some errands done which has been awesome. Caught up with one of mates today and that was really nice. A lot of my mates have left the area actually and everyone else married and kids so can get a bit lonely at times these days. But that’s okay, it happens I guess.
I saw a sea eagle at the park that was pretty funny, you should have heard the racket from all these other birds not happy at all about its presence 😅. Very cool though and a bit unexpected to see him/her at the park! lol. Unfortunately no good pics as it was a bit far away but enough to ID it anyway. So cool. Sorry about late reply 🙏

Talk soon ☀️

In response to: The me no one knows - SI warning

Re: The me no one knows - SI warning

@Flutterbug9 appologies i didnt get to reply yesterday afternoon - medication withdrawal dizziness and "zaps" even after my 3hr nap. The nap helped, but as soon as I got up and walked down the hall it was back, so i was very limited in my ability to even read messages let alone reply. 😬. I ended up going back to bed at 730pm because of it - watching tv laying down was even "too much eye movement" for my brain!!

So far today OK - hope it stays that way. Had a shower and walked around a bit to gather some things for this evening i need, and that hasnt triggered any notable dizziness. The pattern had been that the Wed & Thurs after the Monday decrease were the dizzy days, so based on that pattern i hope to be OK today (but i know it can get worse now im at smaller doses). Today is a super extra busy day! Massage & counsellor as usual, but hoping after counsellor to duck out for a couple hours to take my dog to a meet & greet a hound (promote as pets, for a rescue) at our local show. And then this evening a free outdoor shakespeare play - which mum and i will have a BYO picnic dinner during. If i do all that, i will literally only have a 30-60min "break" between my appointments 😅 everything else is back to back.

But if im dizzy, i dont take the dog to the "meet a hound".

Selling car - hope i might get the rubber button replacement part for the keys today in the post?? Else Monday i guess. I havent gotten around to listing it online yet. I had hoped to do it yesterday but the dizzy threw all my things out the window. So hopefully this weekend 😊.

Have emailed the recommended psych re: an appointment. I assume they are self-employed, as they have email-only rather than a phone number. (I know how hard it was for my mum to take calls when having back to back clients, so email makes a lot of sense. Same as the MH GP does actually). Not heard back yet, but hopefully soon. I asked a question and noted a concern in the email which i'm interested to hear her answer to also. It would be face-to-face.

I had a really interesting chat with my sister the other evening - we rarely chat on the phone. She would not be particularly surprised if i was autistic, and asked whether i reckon i could be adhd at all (which the gp also asked me on Tuesday lol). She agreed that our dad has *a lot* of adhd traits (and autistic traits - no one has ever denied that 😅), and she can see them in our childhood too (not just recently, even though theyre more pronounced since retirement). I dont know about adhd myself, i think i would be sub-clinical for it but i definitely use a lot of the same behavioural-techniques that are promoted as "omg brain hack!" for adhd people 😅. I am aware of the high rate of co-occurance of asd and adhd in women with asd, and thus dont discount the possibility of a mildly adhd brain type. Part of why it would be interesting if i am in a group in the research trial that doesnt get all 3 doses of the active medication, since the alternative is an adhd medication... 😉. Would i feel calmer? Would i feel i have more energy? Who knows! It could go either way lol. But if i have a super-calm-brain non-psychadelic session... it could be an indicator 🤔.

The 2hr questionaires interview for the trial on Tuesday was via video call. My final eligibility assessment next week is face to face with the research pdoc. I think its about 1-1.5 hours?

weight is continuing to slowly move in a good direction, and thus not currently a reason for ineligibility (ie i'm comfortably within the required range) unless i somehow shrink in height 🤣.

Oh, that poses a really interesting question. How do they adjust BMI for amputees?

I dont recall if it were yourself or someone else who also has some experience with amputations that i've read?

@Cuddlebear also may know, from personal experience? 🤔

Sorry if my mind is too curious! I'm sure they must have a medical method to "adjust" or it though! Or even for things like scoliosis which affects "height" measurements.

I mostly chatted to the support worker this week, as i was feeling quite tired, and know that i felt worse after "doing" the week before. But i was able to talk about how i feel around the aims of the program generally to "increase self-management/capacity" vs my need for "respite" from pushing myself internally to do things (and how having company which can externally encourage me to do it helps, even though that isnt a longterm/lasting benefit beyond the program length). Its hard when i have the skills to force myself to do things, but doing things doesnt provide the relief or positive feedback feelings that it is "meant to". Thats how i end up burntout from constantly forcing myself to keep doing the basics and the things that are said to prevent MH decline. I have no solution for it 😔.

My dogs love aircon 🤭. My female dog doesnt mind water and sometimes walks in the garden stream (if its running) or in the past would nose around in the pond (but i dont think she chases the goldfish?) But not frequently. If i see her *in* the pond she gets told off. If she tries to come inside with wet feet she has to get towelled off first. Thankfully the pond was cleaned out when repeairs were done, so its no longer all mud. She used to appear with brown feet and even a brown snoot (nose). I do have an old photo of her brown nose actually, i'll see if i can find it to post for you 😅.

They do cope OK with the heat when they have to be outside, but they definitely prefer the cool. The benefit of them being in heat is they sleep more 🤣🤣. But i mean, the sleep most of the time anyway!

In response to: Re: The me no one knows - SI warning

Re: The me no one knows - SI warning

@Chasingsunsets good to hear you were feeling a bit more baseline the past few days - hoping this continues for you (but here and listening whether or not that is the case!).

A CGM equiv for MH lol that would be so good hah! Low seratonin? Lets give a booster. Low dopamine? Lets give a booster! 😅 too much cortisol or adrenaline? Lets give a ... reducer?

I hear you on the friends moving out of area and/or getting married/children and how that impacts and feeling lonely. I can relate to that a lot too.

Is the flip side that if you take annual leave you get free accommodation if visiting where those mates have moved to? (If they have their own place and either a spare bed/couch or are happy for a matress on the floor?) (I also know a lot of people cant or dont like to sleep on floor matresses, so i know that may also be a barrier even if the friend doesnt mind. Im used to basic camping growing up, so a matress in a house is more comfy than camping lol).

I love how good you are at identifying birds! Its a real skill 😊. It takes me a lot of repition and rote learning to learn how to ID birds when they're far away or in the sky. I did learn how to ID a kite vs a wedgetail eagle though when I was on a roadtrip with a friend for a week (my friend could tell them apart in the sky, so she would point it out to me when we saw them and i'd start to make educated guesses). And yes i know there is a MASSIVE difference in both size and tail shape between a WTE and a kite 😅😅 but this was my level of learning to differentiate lol.

When i was in borneo last year, over the 3 days in the forest i started to be able to ID a few of the hornbill species even in flight based on very distinctive differences. 😊. My eyesight at distance is a big problem though lol.

@Flutterbug9 (if interesting re: the birds and my lack of skill but ability to rote learn over time lol)

In response to: Re: The me no one knows - SI warning

Re: The me no one knows - SI warnin

@AlwaysMyself

Info about the car, the trial and your taper shows me how much our chats have gone off track and all the things I’ve not been up to date with. Maybe not tagging me, maybe due to generally not sharing on the forums (plus X number other possibles), who knows.

other things with your taper I don’t know- what current percentage you are down to (compared to full strength being 100%), any approx time line with tapering might be finished and how you feel about that?

with the trial - how long does it run for approximately, does it involve any time in hospital, any specific supports/pdoc appointments whilst on the trial? Whenever the trial finishes, do you know what that might mean for you moving forward?

Borneo?? Is that where the little house was where you stayed in? Remember you mentioning small place you lived in when you took a break from city life and spent short time overseas

definitely seeing why things haven’t felt right between you and me for last mth or 2 plus how much info I’m been missing out on/not up to date with. Saddens me to know how much our chats have drifted apart. 😢

im not coping due to lots of things that have happened during the last couple weeks. Things constantly changing and me having to make multiple contacts trying to chase things up. Thanks for asking, not ☹️

In response to: Re: The me no one knows - SI warning

Re: The me no one knows - SI warning

Hello lovely @AlwaysMyself @Flutterbug9 🤗

Whats on for you both today?

Flutterbug did you play Mexican trains last night? I recall maybe it was Thursdays where a lot of people were playing?

oh yes @AlwaysMyself CGMs for everything please 😂😂😂, scan and know the answer, fantastic 😁, yeah I did see the loneliness coming but yeah an interesting space to sit in at times. That’s why i absolutely love hearing of all your and flutterbugs adventures and activities 😀

Oh yes travel, I wouldn’t mind a mattress on the floor hehe, I love camping and when I was in my teens I slept on a mattress on the floor so definitely fine with that. I really love being with indi and not sure I really love travel a bit anxiety provoking for me I think! But I really should travel more and I have good excuses now have mates all over hehe.

ah that’s so good you are probably better with kites and wedgies (lol) then, I find them so hard to tell them apart when they are so high!! I also have my bird friend who know a lot more so she helps me at times when I send her pics hehe.

flutterbug do you like birds? it would be so cool if you had a resident pet when you lived at your complex!! 😀

thanks for the chat you two 🫶☀️

In response to: Re: The me no one knows - SI warning

Re: The me no one knows - SI warning

Enjoyable night at Mexican Trains last night. Within the 8 min drive the black thoughts started. If it was a longer drive I don’t know if yesterday afternoon would have been the last time my cats saw me. I’m safe

@Chasingsunsets

I live in a gated lifestyle village where everyone owns their 2 bedroom unit. It’s like living in a suburb where there are approx 400 units. There are some rules about having pets ie no more than 2 pets per unit, dogs must be on lead, cats must be secured in the unit or cat enclosure.

my 2 cats are almost 6yr old. Of the other 11 units in my street there 3 dogs (1 each unit).

there is a management team who are onsite Mon - Fri approx 9:30 to 4:30. Current manager likes fish. On the reception desk there is round fish bowl, ornament and a fighting fish.

I love birds. From a preschool child I grew up with budgies and canaries in the kitchen, different types of hens plus a duck. We also had a cage in the backyard which was home to crimson lorikeets. We grew our own sunflowers just for the lorikeets. Short distance from my childhood home there is an area of natural bushland, part having been cleared from football oval and a large garden. Lots of different birds call that area their home.

you mentioning camping takes me back to early childhood. My mum used to tell me about my first camping trip, I was about 18mths and starting to come down with measles. We always took a tent and camping gear when we were staying overnight except for last 2 trips away which were to Mildura. I was about 10th first yr, my dad hired and towed a caravan from my hometown to Mildura and back. Following year when we went back to Mildura my parents hired an onsite caravan at the park we had stayed in the year before.

I saw my psychologist yesterday and one of the first things she asked about was activities. Still remember the smile on her face when I mentioned the different activities. It is meaning there are parts of every Tuesday, Wednesday, Thursday and Saturday when I’m not home.

Last night I got invited to join the group that do jigsaws, tempting but I need to work through things and get balance back into everything I do. lifestyle village has its own cinema with 2 different movies run each week, 1 movie each Sunday afternoon and the other movie each Wednesday evening. Depending on what the movie is, some weeks I’m at the cinema for both movies

In response to: Re: The me no one knows - SI warnin

Re: The me no one knows - SI warnin

@Flutterbug9 i hadnt mentioned anything about the car until this week as it had been on the backburner whilst i got around to a minor repair and deep clean, which i did last week. Its been on my to-do list since November.

I am on 12.5% now. And plan to cease altogether in a week. Although i do still have more medication if i need to make up some extra low-dosages to keep the taper a few more days (eg at a 6% dose) - but its a hassle/fiddlt to do. But getting a custom-dosage script and going to a compound pharmacy is even more hassle plus costly and a waste of the medication i already have left over (they arent allowed to use it, they have to supply brand new).

Trial treatments are over a 3 month period. Consists of a 3-weekly-cycle of:

Week 1 - an 8hr supervised medication dosage (2 therapists present).

Week 2 - integrative psychotherapy appointment (1 hour? 2 hours? Im not sure!)

Week 3 - *if required* additional psychotherapy appointment.

All outpatient, but i cannot drive for 24 hours after dosing days (or sign legal contracts, etc lol). And they give a letter to carry to say/explain that you *may* have traces or xx or yy in your blood due to treatment (eg for random drug testing) and that it is legally prescribed/administered under the trial 😅.

During the treatment phase, i have some surveys also for symptom tracking (research study!) and they continue periodically for 6 months after the treatment ends.

But i also continue to see my existing private counsellor during the time too - that doesnt get put on hold. They encourage continued support.

What does it mean for me going forward? Well, that really depends. If i didnt get any active treatment, the plan is to then do it privately with the same pdoc as is doing the trial - but i'd have to wait until after the 6mth followup survey has been completed. I would need money from my parents to pay for it.

If i get active treatment and it doesnt help, then the MH GP has suggested referral to a pdoc who specialises in the other novel medicaton treatment (but which is an ongoing expensive cost, not a once-off or annual-booster like the trial one is).

If i get active treatment and it helps... then i guess it depends how much it helps and how long it lasts. I guess boosters whenever it wear off? Each pairing of medication + integrative therapy usually costs around $10k. (So for a 3x cycle like the research study is, thats usually around $30k. Did i mention no medicare rebates for it either? Although i wonder if you can get a rebate for "psychiatry >60min" 🤭 for an 8 hour session? So maybe there would be a small rebate?).

No idea how long-lasting the effects of treatment would be. Would i need an annual cycle? Would i never need one again? Would i need one every few months? Will it have no positive impact at all? 🤷‍♀️

No, botswana was where i lived for 3 months when i got fed up with modern australian culture and city life lol. 😅

Borneo was part of my holiday last November.

I'm sorry you felt I haven't been asking how things are for you. I've been reading along and replying to things - e.g. the referrals, antibiotics, the blinds/electrician, the waiting for pdoc appointment. My support button hasnt been working much the past week though, so that probanly doesnt help with being able to show which messages i have read 🥺.

In response to: Re: The me no one knows - SI warning

Re: The me no one knows - SI warning

I am really glad Mexican trains was good @Flutterbug9, how did you go? Getting the hang of it?

sounds like you had some really intense and uncomfortable thoughts/feelings afterwards, I wonder where they had come from? (You don’t need to answer this at all, I just always ask myself these questions briefly and get curious, try to understand things) I use to be a lot more sensitive in my body before meds, sometimes if something was really fun then the drop of it ending or finishing really sent me into a depression I just felt a heavy pain almost through my body, always on a bit of a tight rope with my equilibrium. This may not be your story of course. perhaps those thoughts and feelings had been building too.

I don’t think I knew you had cats! What kind of cats do you have? Are they related? However I do remember seeing one up a curtain on the forum 😂 but I think that was one of PeppyPattis cats 🤔. I have always had dogs so don’t really know cats, sometimes I even pat them like dogs by mistake and then realise 😂😂

It sounded like you lived in a lovely area when you were younger and you grew sunflowers!
Your place now also sounds really good.

I don’t know birds really only recently just been looking at them all more closely actually and actually now the more I have learnt hehe. You may have seen my posts of when I was in Melbourne I really struggled there but the walks were amazing and I discovered the musk lorikeet which was so awesome (before paying more attention to the animals around me I’d probably have just thought this was a rainbow lorikeet) I’ll post a pic here as I think they are beautiful!

 

Ahh camping!! Yess so good @AlwaysMyself started the camping convo, but I agree camping is amazing! Not so amazing you had measles you poor thing. Did you like camping? Nothing better than a camp meal, camp fire, wild life!!

I don’t want to load you with more pics but if you are interested I can post a pic of one time we went camping and saw all these rainbow bee eaters (normally see one or two at a time) anyway they were all in the tree sleeping it was awesome to see!!)


It’s awesome to hear you are continuing with the activities and that you enjoy them!! Your psych must be very impressed 😊, you must be a bit tired adjusting to your busy routine now, but “busy good” hopefully for ya! On your days off I hope you can relax and recover 🙏, awesome effort, let me know how you go I’d love to hear what you are up to!

Ahh I just read your last part about being invited to the jigsaw evening, but deciding to take it easy, yeah sometimes it’s needed but hopefully when you feel more powered up perhaps it’s something you may try! I still can’t believe you have a 2 cinemas where you are, so cool! I wonder what movie you may see next! 😊

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