The me no one knows - SI warning

BP monitor only came with standard cuff, and yes i need longer one, but i knew my mum had a longer cuff at home which she bought for her but has since lost size and no longer needs to use. But she didnt want me to be swapping it on hers all the time because of worry that the plastic tube will wear out with the extra on/off wear and tear between them.

I am definitely more sensitive to the heat, but never considered whether or not this is due to the CFS. I know that when I do feel the cold, that is a pretty good indicator that either my CFS is starting to rear its head or that my body is starting to fight a cold/flu --- its my most reliable early warning sign of physical fatgiue lol. Otherwise i like the cold and only wear jumpers because i like the feel of them.

Glad the Content box was finally added. 😊. I had to wait ages the other night too. Not sure if there are some rules about who can or cant edit the posts with regards to mods - or may just be a a matter of the newer training. The other night when i requested, the mod had to check with someone else first if they/other were able to. I dont understand it, but figured sharing this may help you understand the long delay too.

@Cuddlebear I’ve got similar issues with body size. Decades ago I wore size ** women’s clothing, circumstances that led to me fitting that size were far from bearable. [edited by moderator] 63 this year, GI issues and OA, not a good combination for getting and keeping weight off. Being a sweet tooth also doesn’t help. For me, stress = eating chocolate.

ive never been comfortable saying or hearing discussions about female body. Was raised with various things being taboo which I think is the root. Yesterday I decided not to insert the removal padded cups into crop top styles I’ve worn for a while, immediately noticed the different. Small bumps inside of what felt like mountains. Went to Kmart and bought mix of female undergarments.

lady here (M L) made me feel welcome from first time I met her which is couple yrs ago now. Has her own MH issues and trauma background.

some of the things you mentioned about the taper resonate with me but in a different way, if that makes sense. I saw my husband go through similar conversations with general team of oncologist who came around the ward. His wasn’t taper though. His was opposite in regards to strength. He also felt he was pushed into things. After near fatal incident with him in ED I’d had enough and I stepped him, got appointment with his regular oncologist who completely cancelled all chemo (which was best decision).

it’s horrible feeling you are not listened to or being punished. Did GP provide you with an acceptable reason why he now sees you once a fortnight?

with everything you mentioned about way GP has treated you, would you want to continue having weekly appointments? (Not sure I would)

Next step will be catching up with a friend couple days after hairdresser appointment. She comes across as a ‘black or white only’ person which is 100% ok with me. I know she has very strong opinions on some things eg animal rights/cruelty. She has chosen a moderate size cafe, am hoping all goes smooth.

if you ask or say something I’m not comfortable with or has upset me, I would politely let you know.

as I’ve said to @AlwaysMyself, I don’t judge people and, majority of the time, nothing upsets or triggers me.

I hope you feel comfortable talking with me about anything.

@Cuddlebear , i think @Flutterbug9 said this perfectly, so I am copying their words and posting them here again to say "i said this too".

"you are not worthless. You are a wonderful, caring lady who is important. Those of us who have come to you know you via the forums cherish you. Please talk to us here as often as you like about whatever you like. Sorry we can’t be with you in person, if I could I would."

I cant say it better myself! 🥰😍

I find it interesting the similarities between us 3, even though of course we all have differences too!

All 3 of us with shorter (shoulder or less) hair. All 3 of us have had, currently have, or will have a pixie-like haircut 😋 and think they're great.

@Cuddlebear i've forgotten again what colours you like?

(Seriously this brain of mine the past few months! Lol. Where do i return it under extended warranty please?? I'm not even 40 yet! By body and brain think they are 70-80 some days 🤣).

I opted to cover all bases.

email, thread about possible changes, feedback form ( @tyme mentioned feedback form with another item, forms a record and can help with training)

from personal experience, expectation to train others is not always easy to achieve. Feedback can, at times, be very helpful

my husband through some of his connections bought a larger cuff for mine. So easy to use plus recording numbers in book helps to identify patterns (if there is any)

now we know the reason for the Nana Naps @AlwaysMyself 🤣🤣🤣

@Cuddlebear

Hey @Flutterbug9 ,

Thank you for sharing about your experiences relating to talking about the female body etc. It is such an important post. I just wanted to let you know that our moderation system blocks posts that contain a number related to clothing size so I've had to make a slight edit to remove the number. This is simply a blanket rule due to concerns for people with eating disorders.

I understand this can be soooo frustrating!

If you have feedback about this, feel free to email us.

Once again, thank you for your post. It's really great to follow the conversation here in this thread @Flutterbug9 @AlwaysMyself @Cuddlebear as we all have our vulnerabilities and challenges.

We're here for each other.

Oops, my mistake. Sorry @tyme 🌸🌺🌷

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@Flutterbug9 wrote:

I opted to cover all bases.

email, thread about possible changes, feedback form ( @tyme mentioned feedback form with another item, forms a record and can help with training)

from personal experience, expectation to train others is not always easy to achieve. Feedback can, at times, be very helpful

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Yes @Flutterbug9 , definitely. We want to hear what people want - what's working and what's not working. Yes they gave the legal element to consider, but that's for them. Feedback is very important. I find it helps me grow and learn.

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@Flutterbug9 wrote:

Oops, my mistake. Sorry @tyme 🌸🌺🌷

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All good. Just a little slip that I would've done too.

Did I tell you that I just to be a regular forum user? I also made these slip ups. I remember wanting to share photos at one stage and I accidentally shared all these identifying photos... oops!

Can be so easy to do at times, completely in error.

your post has me laughing.

@AlwaysMyself I’ve been scrolling over our various recent chats, trying to make sure I’ve answered to everything I’m comfortable to answer.

pre-stroke, I’d say things were just typical parents raising a child who needed to be taught right from wrong.

post stroke - xxx months after the stroke things started to change and over time gradually got worse.

Remember mum saying family GP used to tell her my dad was getting better and she had to be patient when she saw GP on her own. Same GP when my parents saw him together spoke to my dad first, my dad saying my mum had imagined everything, that there was nothing wrong apart from my mum not dealing with women’s things (early menopause/ change of life as my mum called it). This went on for few years.

other things that happened post stroke (trying to keep within community guidelines).

- dads work and non work friends stopping coming to visit him after one too many times something physical or verbal ‘thrown’

- clean laundry thrown outside onto wet, dirty driveway as something had been said or done that my dad didn’t approval of

- meal requirements. Everyone had to be at the table, meal ready at exact xx time etc. neighbour knew about anything didn’t meet requirements

cat I mentioned that likes swimming

our ginger tabby that I ‘introduced to bath water’, much to my parents displeasure enjoyed paddling and standing in shallow water in the bath thereafter. He would hear the water running and go running to the bathroom talking. 😆😆

live been in a happy, silly mood last few hrs, starting to wear off very quickly. Early bed for me