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Recovering from severe chronic anhedonia

Recovering from severe chronic anhedonia

I've been having chats with @AuntGlow @Jynx and @rav3n about my experience of chronic severe anhedonia and how the traditional 'behavioural activation' has not produced the pleasure/reward stimulation (even when sustained for 20 years of doing!).

So I decided to start a thread because I've come to realise this is a bit more common with complex/chronic depression that I realised, and a discussion around it at a general level might be interesting & helpful to others too -- both intellectually and/or practically 😊.

I invite people to share their personal experiences (postive and negative; what has and has not worked for them or people they know), as well as interesting articles or research, or treatment perspectives that relate to the topic. 😊. I am very much a believer that "one size does not fit all" and hence welcome the diversity of experience and advice without judgement.

To kick it off, a link that @AuntGlow shared to me which I found resonated with me a lot when explaining the challenge with severe anhedonia (as opposed to 'traditional' anhedonia which does respond to standard behavioural activations techniques), and some ideas on what might help people to start that process of being able to recognise and experience neutral and progressively positive things again.

https://yung-sidekick.com/blog/severe-anhedonia-a-somatic-and-behavioral-protocol-for-rebuilding-the-capacity-for-reward

I found it very interesting also to read in a research article (https://www.clinicalkey.com.au/#!/content/playContent/1-s2.0-S2213158222000559) about the link between what is clinically termed 'treatment-resistant-depression' and a higher activity level in the part of the brain that processes/encodes adverse or negative stimuli and a diminished sensitivity to the reward-stimuli (this is when compared to "treatment-sensitive-depression" and 'healthy control' patients). So potentially it could be physiological, and "trying harder" may not work if our brain is literally not processing the positive/reward stimuli!

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In response to: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

Hi @AlwaysMyself

I'm trying to get my head around anhedonia. Are you saying that you've recovered from this terrifying condition? If so, what is your story on how you did it?

Regards

J.

In response to: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

I know this isn’t really much but I like that you are trying to do what they say @NightFury. While their suggestion of trying isn’t working at least you are giving it a go. I know a few people that won’t even try what has been suggested to them. I am proud that you are listening to the professionals. But please know that I understand that it doesn’t always work. I don’t think all that has come out right.. I blame the autism for not explaining well!

I know it’s not working and it’s distressing. I like the need to change the mindset. Reframing what we are thinking. I never thought of that. Just need some guidance to get there.

I have a big problem that I do what I am told as well. Childhood has followed through into adult life in sometimes not a good way. It doesn’t always give us the agency to express our opinions when things are suggested.

In response to: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@AlwaysMyself A much needed thread. Something I experience too but it’s been more recent nearly a year or so now. I’ve tried the doing things you enjoy to help bring back joy but doesn’t seem to work.

I’ll read the thread and links and come back with more to say.

In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

Well said @Captain24 !

@J_Oz , no I haven't recovered from anhedonia (yet), but it is what I am working on trying to find a way to recover from it. I have had persistent anhedonia for over 20 years, and the past 3 years things have gotton severe enough that I am making some big changes in life in order to reduce pressure, reduxe effort/fatigue, and hopefully enable myself to experience positive experiences again.

In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@AlwaysMyself I’ll have a proper read of this thread plus the links and come back.

Struggling to motivate myself to do anything more than complete essential last few days.

head not able to concentrate and take things in atm.

im safe. Very low mood still

In response to: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@AlwaysMyself That was such a good article. I keep doing what the professionals say that is do the things that would normally bring you joy and I get zero joy. Then I feel distressed and that I’m broken. That maybe I’m not trying hard enough but honestly I am really trying hard.

Everybody who has posted so far has really resonated with me. I feel that Dr and psychologists just are not on top of what we actually need in therapy especially after reading the article. I can’t afford a psychiatrist so no idea what one who’s really on top of this would be like.

I can see how it might be physiological because trying harder certainly is not helping and is having a distressing negative / effect. It makes sense what the article says about physiology.



In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@AlwaysMyself @Cuddlebear @Captain24 @J_Oz @NightFury

I will need to go back to the links and rest of thread multiple times to read them completely.

”Reframing the goal: from pleasure to regulation”. Jumped out at me.

starting XX number of years ago (too long to remember) I start an item and, before its finished, loose interest in working on it (or anything similar). Have been classified as perfectionist and/or procrastinator - neither applicable or helps.

finish an item I don’t get feeling of achievement or accomplishment. Thoughts of, that’s done what now, is all I get. There is nothing else.

psychologist I’ve was seeing was all about “where did that start from”. Total waste of time trying to get assistance with understanding etc the feeling of enjoyment/pleasure

In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@Flutterbug9 I too have been going over again. My memory at the moment is a bit off especially short term memory.

Yes reframing the goal from pleasure to regulation really made sense. When our nervous system is properly regulated those neurotransmitters for joy etc. can actually start to work. Also when our nervous system isnt properly regulated and say we are in fight/flight, frozen etc. The body is too busy reacting to “danger” and all energy and brain is focused on that.


In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

The subconscious fight/flight etc responses appear to have large impact on feelings and responses. Also in relation to sleep @Cuddlebear

Due to info I was given by 2 drs whilst I was in pain management ward Ive started taking OTC med to help me get to sleep quickly. So nice no longer laying in bed for hrs trying to go to sleep with brain on over drive

In response to: Re: Recovering from severe chronic anhedonia

Re: Recovering from severe chronic anhedonia

@Flutterbug9 How are things for you today? I know it’s really hard and the flight/fight etc have a huge impact on our emotions and physical symptoms too.

Im glad you have something to help you sleep because thwt brain overdrive is torturous. I get it first moment I wake up and it drives me crazy. No amount of self reassurance helps either.


@AlwaysMyself Is there anything that helps for you with brain overdrive from one disaster, problem to another?

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