Hi Karen,
I am so sorry you are suffering like this. It is just so damn unfair!
So when I'm unwell:
Sometimes I read threads of other's posts, especially ones I know are unlikely to be triggering
If I feel up to it I might post a reply if I feel like it, or just clicking "Like" is another way of expressing encouragement for the person posting
When I am very distressed I will do a huge "blurt" on the page and do a really long post about what's happening or how I'm feeling
If I am getting too manic I will back off from the forums for a while and not post or even come on the forum much - just read my daily digest (which I read when I wake up in the morning as an encouragement for my day)
I walk along the river or sit on "my" log, and if it's not too cool I paddle my feet in it - I find that's great for calming me when I am in hyper-arousal
When I am really struggling I tend to spend a lot of time playing a fairly old strategy computer game (so the graphics aren't too over-stimulating) which both serves as an effective distraction from my distress and also allows me to think in the background about what's going on and process it a bit that way. (I hope this makes sense?)
Sometimes when I am very distressed I find changing what I'm doing, or even my position whilst seated or standing, can make a surprisingly big difference in alleviating it
I hope these things are some help. I wish i could do more. Cyber hugs
.
Hope for the healing sounds of the river endures...
Keep taking care of you my friend, you are doing incredibly well under horrendous circumstances which no one should be put through.
Kindest regards,
Kristin