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Coping with life's difficulties

Coping with life's difficulties

following on from https://lifeline.saneforums.org/t5/Our-stories/My-Place/m-p/1622791/highlight/true#M243373

@Till23

My way of handling things has usually been to just go into zombie mode. I completely withdraw and just lose motivation to do anything. I did that for a week or say at the start of last year after finding out I had become resistant to the first hormone therapy. I was told i would be on it for 3 years, go off it... monitor the PSA... if it started going up too much, go back on it for a while and repeat. It seemed like a good deal to me at the time if that was all i had to deal with. I only made it to the 2nd PSA test in late December 2023 to get the bad news, so i never got close to the 3 years. Zombie mode hit and it took my months to really start to get my head together again. I think it was May that I found here and joined.

I have heard that a lot of CSA survivors do turn to drugs and alcohol and the damage that it does to their lives. So i think its a lot of credit to you that you didn't go down such a destructive route. But even so it's hard to imagine who difficult it must have been for you, even to just to trust anyone.


I have come up with so many reasons why people can just sort of disappear when someone they know gets cancer. You listed some of the man ones but i came up with quite a few. In the end I decided I didn't care what their reasons were. If they weren't going to be there for me, I didn't want them around. I wasn't going to pretend and people please anymore, thinking I had to people what people wanted, always be the happy, funny person so they would want me around which I had done for most of my life. Realising that had got me nowhere but a handful of people who disappeared as soon as i really needed them after never asking anything from them, i just decided "no more". I think that was probably the main thought that made me look for somewhere to reach out and brought me here. I had decided that if i didn't want these unsupportive people around, then maybe I could find people who would support me. I was also a couple of months into the planning for the cancer support group i was working on which had really got me motivated to get back into life again.

I was lucky I guess when I had my 8 weeks of radiation. I didn't have work and my partner was working from home a lot so she would just drop me off, i'd whizz in to get done and she would come pick me up. The were upgrading one of the 2 machines they had for the first 6 weeks i was there so they were done to one machine. To make up for it they ran until 9pm, so getting sessions later in the day was fairly easy.


It was a bit annoying because when i went it for the planning session and the baseline image they take, they suddenly ask me once i was laying there was it okay if the give me three little tattooed dots so they could align me in the same position for all the sessions. What was I going to say? So i have tattoos now even though i've looked but i cant find them anymore. So it's not very impressive if someone asks to see my tats. ‌‌ The annoying bit is the new machine didn't need the tattoos! But in hindsight, I'm kind of glad i did so I can say i have 3 tattoos but i'm not showing you.


In the past year I have joined cancer support groups, adoptee support groups and MH support groups. And one thing I've heard time and time again from new people joining is the first think I thought... that I thought these feelings were just me and/or it so great to talk to people who understand what it's like. It really is nice to be able to talk to someone and not spend most of the conversation trying to explain what it like. Especially when some of it you don't even know how to really explain. Rather just talk to someone and you both know the other person just gets it.


That's the excuse they generally use. That they're just concerned about me and that it might be too much. The past one i tried, the one that was with the chemo patients, I go to go there and have a tour and a chat. I was very upfront about where I was in my treatments and that it was always going to be ongoing. That I had done all of these support things, including starting the support group and this is what helped me the most and drove me. She seemed very impressed and said she needed to speak to head office and organize the paperwork and i would be able to start in about 3 weeks. I got an email a week later saying she had talked to head office and they decided to put a pause on my application and that i was welcome to come back in 6 months when my treatment was finished. Like I said, I was very clear about where I was treatment was, and they are a cancer treatment centre so they know my situation. It just felt like a don't call us, we'll call you. And it was just an email. That was the last one i tried as I just could keep doing it.

I have found some volunteer opportunities since then. A member of a steering committee at the local hospital for a nationwide register/database of prostate cancer patients and their outcomes over time. Various studies, workshops, and research projects. All of them are due to me being a "consumer" but they all do seem to value my input from a patients point of view on a multitude of areas, so any little thing i can do and find another little positive or two from my situation.


It must be so rewarding volunteering and helping out homeless people and others really struggling financially. It's so great that they have you there to treat them with some dignity and talk to them and understand them. I'm sure it means the world to them to be treated like a person and not feel like they're there being looked down upon or being judged. As someone who had spent most of their lives finding it near impossible to ask for help, I can't imagine how hard it must be to have to ask for something so simple like food. The main solution with homeless people seems to be just get them out of sight in a lot of places. So anything, or anyone that makes them feel like the have some dignity and respect is so important. If my parents both died when i was in my 20s for example. The house would have needed to be sold and the proceeds divided between us. No because then i found it so hard to find a job because of my own issues as soon as they money run out from paying rent and all the other expenses of living somewhere by myself, I could so easily of become homeless myself. It only takes a couple of things to go wrong at the wrong time for anyone. But unfortunately it does seem to be so much harder for people dealing with traumas and just trying to do their best to cope and get through life. Some of us can hide it better than others and some people have more to deal with but it can be so hard and it's nice to get a little understanding and compassion. It goes such a long way when you can find it. Those childhood traumas stick with you! It becomes the way your brain is wired and it's so hard to change. I honestly don't think you ever do get rid of it, you can just learn to find ways to work around it and get some wins against it. But it takes a lot of time, luck and help.


A lot of people are surprise at my social issues, especially here i think because it's all online. I have time to think about responses, edit them, reword them, change them. It takes me a while. In person I don't have that luxury and i think i freeze. While I do admit i've become better at it, all that anxiety, self-doubt, and low self-esteem issues are still there. I think I've always been good at faking it, but in person it's very had to hide and i think it's much more obvious that i'm not that comfortable around people. Although i think a lot of people may see it as other things. Like maybe I don't care, or i'm disinterested, of maybe even arrogance because I keep to myself. If someone starts a conversation with me now, i think i'm a lot better and more comfortable doing that now. But stick me in a room with someone else and I will sit there in awkward silence longer than anyone else. I will never start the conversation. These days it's not even really because I don't know what to say or think i will embarrass myself like i would have in the past. I think now it's just more of those doubts still say "Don't talk to them, they don't want to talk to you. If they did they would have said something by now." I know it's wrong in most cases and most times the person would be very polite and have a conversation, but those doubts are strong and still have a lot of power of the more rational side of my brain.

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In response to: Coping with life's difficulties

Re: Coping with life's difficulties

Hi @MJG017 sorry for the delayed reply.

You sound like you've been very busy with your studies.

Do you have to travel far for the in-person role plays?

No one can know everything and everyone has different experiences with their mental health as you know from the forums.

You've been very good with the things within in your experience though and as you are only too aware, people with cancer, or even other terminal disease need MH support.

Then to find out about the adoption peer support is brilliant.

I really hope that works out for you.

I feel you need a bit of a boost and distraction away from your own health problems.

With dealing with your health stuff on your own, do you feel you can talk to your partner?

I know it's not the same but aren't you seeing a counsellor/psychologist for the cancer related stuff?

Apart from my psych I deal with my physical health stuff myself too.

With my psych I have seen them since I last posted and they said they would rather I see someone else with more experience in dissociative cPTSD (like I'm going to find that person in the place I live). So I'm feeling very alone now. I went quite on the forums and in general life, not leaving the house for days etc. Then I thought F it. I'm just going to put one foot in front of the other like I always have and just keep going by myself - I've had a lifetime of practice with that after all!

I look forward to hearing about your new peer support role

Do you have the rest of this year to go on your peer worker course?

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Hi @Till23, I just quickly logged on myself while I'm waiting for an appointment at the Cancer Council. Traffic was light so I got her a bit early. So I will reply to your previous post when I get back home, but just wanted to thank for you pointing out that story.

One of the prostate nurses I work with for the group pointing it out to me this morning, so I've posted it to the group to let everyone else know. It's a massive issue for a lot of guys on ADT. Coincidentally, someone posted in our group this morning about he stopped taking his 2 weeks ago without telling his oncologist because he wanted a bit of a break.

I was also told ABC TV are apparently covering this on Australian Story tonight.

There is a big push by the PCFA to get more attention on this issue and get better support, especially mentally, for men on ADT. Hopefully this coverage can bring some attention to it.

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Yes @MJG017 I'm pretty sure it is going to be on Australian Story tonight. That and it being on ABC will get a fair bit of attention on the issue, which will be good. Even just people knowing they are not the only ones helps I think.

It's an issue for women too, with oestrogen/progesterone driven cancers like breast and ovarian because women are given oestrogen deprivation therapy and and especially if they have their ovaries taken out to reduce oestrogen further. If they are young that's an early menopause and we get osteoporosis, skin, sexual, musculoskeletal (muscle loss, joint aches) cardiac etc issues. But it is never talked about, because effect on breasts like mastectomy or double mastectomy gets talked about and then that's it and being women everyone just thinks women have to put up with menopause symptoms and obviously women aren't allowed to talk about libido or sexual function. A lot of women stop taking oestrogen deprivation therapy within 5 years. Also like blokes, there is little psychological support post surgery, chemo and radiotherapy.

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

@Till23

I'm not sure what it is, but there does seem to be a perception out there that when you're getting life saving (or extending) cancer treatment, that it's not a big issue because it's saving your life or keeping you alive... so everyone is happy getting it. I've talked about this at a few workshops/studies, that no one prepares you at the start for the mental stress. You get told about all the physical effects you're likely to encounter, but the mental side effects are never really talked about. You basically discover them for yourself. Then you think no one mentioned it, so it must just be me. And you keep it to yourself. And if you don't have many (if any) family or friends around to support you... well that's just a 'you problem'. I have been asked multiple times by doctors and nurses if I have much family support around me. When I say no, the topic just ends.

My studies are over now until next term... it finishes at the end of the year. I was given a link to a short online course about 'Supporting people affected by adoption' by my lecturer after that conversation we had. It's a course they provide themselves. So that will give me something to do during the break. It's not very long, but it should be very interesting.

The place I have to go to for the in-person stuff is just outside the city. It's about an hour drive at the moment if I have to be there early because of peak hour traffic and the endless amount of roadworks going on here in Adelaide. It's about 30-40 mins if I have to be there early afternoon.

I do talk to my partner a little bit about how i'm feeling with everything. We are a bit similar in this regard, so we both tend to keep things to ourselves until it gets a bit much and we both get upset. Then we talk about it. Not ideal, but we're getting better at it. And we understand when the other gets upset so neither of us take it personally as we both understand the need to release it sometimes. It has only happened about 3 times so far, which is probably not enough talking about it overall. But she is coming with me to my next psych appointment, but that's not until August 12th!

I saw the counselor at the Cancer Council this afternoon, my 3rd session with her. I'm not sure how I felt about it. She brought up a few things that gave me things to think about, but also a bit of a knock to my confidence. For example, when I told her how I was feeling she asked if I felt it as true that I hadn't improved since I started going there. I said no. But it immediately brought up memories of the first psych service I tried where I was eventually pressured into discharging myself. Like how much is a person in a position like mine supposed to improved in 3 sessions?! Hopefully it's not the way she meant it. There was a few other things, but I'd be here typing the rest of the afternoon if I started on it at the moment. 😔

What is it with psych's seeming wanting to endlessly palm us off? It's really starting to feel this way to me. I get that they may feel we have issues that someone else would be better suited to, but there's ways to talk about that and ways not to. Plus it's a bit dismissive and presumptuous in assuming it's so easy to access these options. So i do understand only too well that sense of feeling alone. Like you' I've had a lifetime of practice so reasonably well equipped to keep myself going. But it feels like I shouldn't have to. Like it shouldn't be this hard. I don't know, I think i'm just a bit frustrated and over it all. If you want a job done right... do it yourself! 🙂

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Oh wow @MJG017 that's sounds great that you are able to move forward (in a pretty timely manner I might add) to an area that you are passionate about and really makes good use of your lived experience with the adoption stuff. This peer work course seems to have worked out well for you.

Well having lived in Sydney where it was an hour in the morning to get to work and an hour and a half home at night, I'd probably find that a breeze but when I moved here and they said it might take 30mins to get home some nights are you sure you want to live all the way out there? I thought oh maybe I was doing a lot of commuting!

But your is a bit of a commute - lucky you only have to go a few times a term?

Just to let you know I've got a bit riled up in this post. I am going to put everything in a trigger warning, just because I'm mindful other people don't like medical stuff and others on here may be going through have a relative etc going through cancer traetment

TW: Mentions medical treatment and side effects

Content/trigger warning
Mentions medical treatment and side effects

Yes, it's the old problem with MH no-one really took it that seriously earlier when they just threw people into asylums basically to wait until they died (who wouldn't top themselves, some of those places were worse than prisons). Then nothing was in place when they closed the asylums and now because no one took it seriously earlier there is no precedent so it just lags behind as an under funded, under-infrastructured bolted on to other parts of medicine thing.

So now to try to get around that everything is this session limited treatment crap because there's no money and we are not training enough people. It was great for governments when there was heaps of stigma around MH because there appeared not to be any call for it, but people were in misery, living in ridiculous circumstances or dead.

I really had good service at psycho-oncology but it was 6 sessions with possibility of 2 more in special cases. You just found out you have a disease you might die from, they cut a bit out of you, which in my case is pretty obvious and can't wear tightish clothing without it being noticeable (and mine is not as bad as some people with double mastectomies etc), not to mention if you had something on your face or neck, which would be worse, you have to endure radio or chemo or both, so you are tired and sick and if your hair falls out etc everyone is looking at you again. You might not be able to work, financial problems, depending where you live transport and accommodation problems, family responsibilities etc - but don't worry we can fix that in 6 sessions and you haven't even started on the long-term therapies like hormone deprivation.

Then there's the well your life was saved now just get on with it, you should be appreciative that you're still here etc etc.

But even still I don't think they go through all the physical stuff that much. Like do people really understand about osteoporosis risk and for women increased cardiac risk, do you think you really understood the muscle loss and how that effects you. I've had a lot of wastage and I'm training like 3 times a week. Sexual function and that stuff - not discussed and many women have mentioned that even when their partner is in room. In my case you might well no partner, but you need oestrogen for non-sexual function of some of those parts, increased urinary tract infection risk. Change in body hair distribution, if you have hadly any oestrogen and you still have testosterone - because women have testosterone throughout their lives - then yes you might start to get facial hair! And obviously with these increased perfect body standard - that's just one embarrassing thing you have to negotiate.

Like this stuff is not going to affect your MH!

I love it when you're on here I feel like I can say stuff I can't say to others, because they just don't get it.

I hope it's not too much though - don't be afraid to let me know. I'm a bit fired up tonight. I think that's because I might be going to my last psych session tomorrow.

I love it when you're on here I feel like I can say stuff I can't say to others, because they just don't get it.

I hope it's not too much though - don't be afraid to let me know. I'm a bit fired up tonight. I think that's because I might be going to my last psych session tomorrow.

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

I am really happy to see that you both have each other here @Till23 @MJG017 🩷

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Yeah @MJG017 It's on Aust Story on ABC in 20mins for you

Don't forget you can see it ogn iView as well

I will re-watch it as well, because you miss stuff

Okay - It's almost over here - if you watch it I'm going to be on and off until midnight in case you want to chat

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Hi @Till23, sorry about taking a while to get back to you. I've had a few appointments and support groups stuff to attend to, as well as my partner's father has, and still is, in hospital. So a lot of stuff going on at them moment. And obviously spending this extra time is a hospital, even as a visitor, can take a bit of a toll and brings up a lot of things.

You definitely sounded fired up! But everything you said is true and o much of this is so neglected, misunderstood, and dare I say... intentionally ignored. Getting professional support is a task in itself, getting that support who understands and doesn't dismiss how you feel is another thing entirely. A quick tip for any counselors/psychologists out there... If you have a time limited session (which most are), don't ask some deep question or delve into something important when there's a minute left, so that the other person can really start to discuss it and dig into some thoughts and feelings that are confronting... only to hear "sorry, that's our time!" soon after they get started talking about it. And if one more 'therapist' tells me that 'anyone could be gone tomorrow' I'm going to scream. I'm fully aware of the point you are trying to make, but you know it's not the same thing! It doesn't help!! There's a reason we don't all lay awake at night worrying about being hit by a bus the next day, or some other freak accident.

I had an appointment with a my counselor a few days ago. We were about 10 minutes into our 3rd session and i talked about how I was feeling like my thoughts and general motivation and outlook hadn't really improved and that it all still just felt numb and the same overall sense of inevitability. So she asked my if I felt like I hadn't improved since our first session. I've had 2 full sessions, with a little bit of the third... the first one was mainly going over my situation... and now i'm supposed to be doing better? Maybe she was just clarifying how I was feeling, which is fair enough, but it just brought back that feeling I had a year ago when I was pressured to discharge myself from the onco-psychology service I was using at my local hospital. That same feeling of "do I need to pretend i'm doing better than I am next session?" returned and the past time I just gave up psychology all together. But that was straight out pressure to not come back and there wasn't much room for interpretation. The "you're making me feel bad because you keep coming back and I feel like i'm not helping you" followed by "You're using these sessions as a crutch, because you know you can just keep coming back, so you're not trying to improve" is that sort of read-between-the lines subtlety that even a social inept fool like myself can detect. If you don't feel like you can help me, TELL ME! Be honest FFS. I'd much appreciate and prefer that so I can move on without being made to feel like it's all my fault or my failing. But... you know, I wouldn't want to make you feel like you had a bad day at work.

Okay - <deep breath>. I was just going to mention what the counselor told me on Monday and how it brought some stuff back for me... I think I blacked out and just kept writing at that point! 😌

Anyway... you mentioned you got riled up for your previous post. I get that. 😁 And don't worry, I doubt you could write anything that I would feel is 'too much'. That's not a dare by the way. 😀 As @AuntGlow mentioned, it is great to have someone to talk about these things, because there's very few people who will. Even other people going through cancer can be very reluctant to talk about the really challenging stuff. I wonder if a lot of counselors/psychs understand that they may only see the worst of us. By that I mean we have to maintain this positive, optimistic front with so many people and that when we get to talk about our struggles with a MH professional it all just comes out. Our lives aren't all thoughts and feelings of doom and gloom... but they are there at times, and what better person to dig into them with?!

I think this is why I feel like the clinical psych i've been seeing over the past few months is so good. We do talk about the good things, but we also talk about the things that really upset and worry me. And she doesn't dismiss any of it. Ive never felt once talking to her that I wasn't improving fast enough or that I was struggling too much. The only real issue I have is it can take a while between appointments because she's so booked up. My last appointment was 3 weeks ago, and the next available time was in 4 weeks from now! So it can be a fair time between appointments.

Speaking of appointments, how did you last one go? You mentioned that it may be your last one. Are they giving you any more? Assuming you wanted to continue them of course. I know i'm counting mine off until my last one, but it's made somewhat easier by knowing I can hopefully see her for another 10 visits next year. Or if I do need a few more this year, I can just pay and take the financial hit without getting anything back from medicare. Hopefully she just doesn't leave or get a job somewhere else.

I did watch that ABC program after no being completely convinced I should. It was emotional, but not too much. It's definitely such an important story to tell and just how much damage the neglecting MH support with, not just cancer, but so many things can bring. Maybe this can shine a bit of a spotlight on it and bring some much needed serious discussion on the subject and maybe we can start to see some more positive changes.

As soon as she talk about about being at that ABBA tribute band concert and her husband said it wasn't his thing and left, I just knew where it was going and I thought can it just happen like that? I know they talked about him having issues with depression before he was diagnosed, let alone started on ADT, but you can't help but think about what was going through his mind when he told his wife he didn't want to listen to the music anymore. It's that pressure that just builds and builds. And is exacerbated by trying to keep the pain to yourself. If that story doesn't tell the need for far better MH support, I'm not sure what will. It brought to mind someone I know. He just finished his 3 years of ADT late last year. He actually asked to finish it 2 months early because he'd had enough of it. His PSA is now creeping up but he says he definitely doesn't want to go on to ADT again. So hes been looking into all these herbal supplements and remedies. I worry about when the PSA gets too high and he's face with that choice when he's told he needs to go back on it. Either he'll decide not to, and with Gleason 9, it would probably be bad news. Or he will decide to go back on, but the depression may get too much a 2nd time on it.

I hope you're doing okay and once again, I really appreciate these chats with you and its great to know you find it helpful to share these things with me as well.

In response to: Re: Coping with life's difficulties

Re: Coping with life's difficulties

Hi @MJG017 How are you?

I cannot apologise enough about being pretty absent, to totally absent from the forums which especially meant that I was not chatting with you. I'm really sorry about that.

I sort of was on a bit when I got back from my trip and thought everything was good.

Then there was some comments on forums that I found very hurtful and invalidating and that made me back off and then I've been back and forth but no where near as much as before and pretty much absent really. I became really unwell and decided I'd had enough of the world. But I did not leave it, as was my intention. However, I have not really been here much since, just an occasional comment if someone tags me specifically (I don't answer the group tags, because there are other people who can chat).

The main thing about the forums I thought about while I was absent was not engaging with you. I have been engaging with a person in Yarning Space, which I hope is helpful for them I also wanted to keep up some engagement there.

I went to a state level sport comp in Sydney on the weekend and again met up with the cancer survivors from around NSW in our specific events. I see prostate cancer survivors there at times and it reminded me of you.

I have just been engaged by my state's health department to do some Lived Experience work for educating health workers on people who are adult survivors of CSA and their interactions (or not) with health services. Initial it will be engagement with drug and alcohol services, but I want it to expand to all areas of health including cancer.

I don't log in much now but I noticed that you don't seem to either.

I hope you are ok and was wondering how your father-in-law is.

I hope you are able to continue on with your studies ok, it sounds like you've been busy.

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