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Life can be a Pain

Life can be a Pain

Hi @BlueBay@Zoe7@Former-Member@Faith-and-Hope@utopia@oceangirl@TAB@Shaz51@PeppiPatty

I know there are more people I could tag but maybe I will think them up as I go along - actually I already have

I think I need my own thread - mostly my problem is chronic pain syndrome - I damaged my spine with the sporting excesses of my youth - a long time ago now - and I managed to rearrange it when I fell of my pushbike in a wind storm nearly 22 years ago and that seems a long time ago now but there is nothing they can do except treat the pain - and I do have Section 8 medication and I see a pain specialist

And the pain has been worse lately and wears me down and I get fed up and very tired -

I have issues with my mother as well - and although she died 2 years ago I still have bad times now and again - she was abusive and as well as I know myself and her this can get to me at times - and this is another reason I opened my own thread

Then there is TS - my Toxic Sister - she was under my skin for a while but not at the moment

So yesterday I felt so bad when I went to see the doctor about my back pain - and my pain specialist has cut my medication back several times over the last few years and she has gone too far - and I started to tell my doctor - yes - I cope with the pain better since my mother died - but it's driving me crackers atm and so are the memories of my mother

So that's it for now - I have had trouble opening this thread for some reason but now I have - I will run my own story - I would like to think I don't need to but yes - I do

You are all such wonderful supportive people - you are my soft place to land - that is so true

And anyone I have missed I will tag as I go along

Lots of hugs everyone

Dec

5211 replies

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In response to: Life can be a Pain

Re: Life can be a Pain

@OwlunarReflecting and memory. A lot of GROUND has been covered. It was good to hear that you feel your light will keep shining. Let it glow quietly and dim it when needed.

Going to the edges of grief is difficult.

Chiaroscuro has been a favourite word of my son and I.

In response to: Re: Life can be a Pain

Re: Life can be a Pain

I really like these pics @Appleblossomand love it that chiaroscuro is one of your favourite words too and love it that your son is into this the play of light and shadows - cause that is really life

And the edge of grief - at first I was right on the edge - I don't know how I survived that but as well as terrible anguish I was really angry and the conditions at the time and determined my son had not died in vain - and indeed he has not

Now and again I get exhausted and the light gutters a little - like a candle as the spirit leaves - but it's is allowed to - it has freedom of choice like every sentient being and I do feel as if grief has a life of its own - perhaps the spirit of the life that has departed

Life is like the weather

Dec

In response to: Life can be a Pain

Re: Life can be a Pain

Hi @Appleblossom, good to see you pop up ❤❤❤

Hi @Owlunar, thanks for your encouraging words. It never occurred to my my sibs might feel guilty. They suck! Finally realising 'IT'S THEM NOT ME' But guess having been suicidal (two breakdowns) & with very little contact with them all over the yrs (re distance etc), they have a faulty concept of who i am & what i CAN do. The MH stigma is strong in my family, & I'm bundled in the same catagory as the brothers with psychosis, recreational & prescription drug abuse, gambling... Its hard because do
talk with them (though draining & scary sometimes)

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Former-MemberIt seems unfair that all the issues are bundled together, when you are quite responsible. I dont believe your sister is totally mh issue free.

@OwlunarEach time we walk down a memory lane or a grief lane the path circles in on itself but can also lead to fresh space. The photo is Whitlam giving a symbolic handful of earth to indigenous owners in the land rights movement. For the cultures to be reconciled takes a lot of work as you would know.

In response to: Life can be a Pain

Re: Life can be a Pain

Maybe @Appleblossom, family, hmm, you know more than most of us how coming lex it can be. What you doing this w'end?

How about you @Owlunar?

Did either of you make it to church? I did this year, was good ❤

In response to: Life can be a Pain

Re: Life can be a Pain

Hi Dec, Happy Easter!
In pain today and thinking of you wondering how you keep going?


Think / hope its just a case of overding it yesterday and it will pass, 😭 sooooo in pain today. The new script meds (no longer otc) don't help much, and i don't like taking them re s/e ots so disappointing when they don't work as they're a last shot. Dont think i did an injury as such (but did lift some heavy stuff), i donno.

Whatchya doing today? I didnt make it to church, re back) but i did make it Friday. Sorry, keep nodding off here grr) Today i'm supose to take dad to lunch with my cuz, his nephew, but not sure i can. Just helped him put his flash shoes on (bending even harder for h, me straightening up (rather slowly, ouch - in pain) made him laugh (sympathetically). The only sondolation is that this intensity will pass.

Sheesh, dropped ph x3 typing this.

You take care big sister Dev ❤❤❤

In response to: Life can be a Pain

Re: Life can be a Pain

@Former-Member @Owlunar ❤❤

In response to: Re: Life can be a Pain

Re: Life can be a Pain

HI @Former-Member and @outlander

I'll put up my Easter Owls here too - so they can be shared around

Pain Lapses - and yes - Outlander - you have enough of it too - and the question is Lapses - you wonder how I keep going - the answer applies to both of you I am sure

I think about the alternative - Aged Care - and this freaks me out in a major way - I have this rotten comment the person from My Aged Care who wrote that I was socially isolated which annoys me because I do not feel socially isolated - and in fact if I was in some kind of community life I would probably be classed as anti-social and that's not true either - I just like to do what I feel like it in my own space and to me that is how I handle it

But yes - I also am a charter member of Over-doers Anonymous - I over-did yesterday too - such a sunny day and my daughter tidied my garden when I was in Hobart - but I had a lot to cut back yesterday - and so I woke up sore a three times altogether so I guess the idea is pacing myself and another thing Lapses is - you have taken on a lot with your Dad and yes - there will be times when you have to care fo the carer - and you have that one too Outlander -

I guess the Carer sometimes has to say "No" to their person - and this has to be a really hard thing to do and people will be disappointed and the going will be rough.

I know - I know - I know - other people whomever they are put pressure on us to do things that are sometimes to much and this is one reason I am really glad to be alone with it

The medication - I have an idea what the tablets might be Lapses - and there are a couple of ideas I can give you

Don't wait until the pain is too bad before you take them - wait for the prescribed time but don't put of taking them too long - this really doesn't work

You will find you will be able to work out a pattern taking your medication - knowing when the pain is right at the point when to take it - I space out at around 8 - 10 hours most of the time now - but this is really hard to go when the pain is bad and I don't

I can explain better if you ask a question here and there

And today like other days alone I am enjoying being here by myself - I am enjoying it better all the time - the short hectic weeks around long weekends are much harder

And my daughter is having a few hours in hospital next week - a laparospocy for endometrios - I am sure she will be okay but yeah - she's my daughter -

Happy Easter girls and enjoy the day as best you can and make sure we all take care of ourselves as well

Dec

In response to: Life can be a Pain

Re: Life can be a Pain

TNKX Dec & Outlander, just cancelled lunch with cuz due to the back. Actually pain medz giving me fuzzy head for driving too. Normally i would push myself for everyone else but not doing that anymore. It even hurts to turn over in bed. Anyway, still feel bad 'cause they didn't reply to my apology. Anyway, we will get there
Dec😍

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hi @Former-Member

Regardless of how anyone else thinks or feels about your cancelling today's outing for your Dad you have done the right thing - I think I know what kind of tablets you are taking and I am sure there is a warning on the box that they can cause drowsiness and not to drive if you are affected

And battle on and you will get their - the whole thing is trial-and-error and it seems you are getting a bit better at self-care - that pain sounds bad -

And so they didn't reply to your apology - that says so much more about them than you - actually - you are in the right - and they "care not" - so it's up to you to "not care" - I read that somewhere

btw - about the level of pain you are getting - I take it you are seeing a doctor where you are living atm - see if you can get into a pain clinic - they do vary but when it comes to sorting out medication for chronic pain then it has to be on a person-to-person basis because everyone is different - but you have had that pain for a long time now

Oh yes - my knees got bad enough to get braces from my pharmacy - thermo-skin - they are tough stretchy material and I find standing up from sitting down less painful - this is the 4 days and my knees can still ache - but not so bad. - Cause - probably arthritis - darn I have inherited a tendency to arthritis

Sending my love Lapses

Dec

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