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One Day at a time here

One Day at a time here

hello everyone 😎

Was not sure where to write this

so, I have started a new thread

thank you @Oaktree , @Ru-bee for thinking of me today 😍

my results from the doctor was not really good

  • my Kidney function have decreased to 17%
  • my Liver and diabetes levels are up
  • I have Osteoporosis which i will need medication as my bone density has decreased because of the kidney disease
  • they believe that the Liver function is up because of the kidney disease
  • Kidney disease affects every part of your body
  • scan also shows the tinny of my kidney

1347 replies

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In response to: One Day at a time here

Re: One Day at a time here

You are such a lovely person @Shaz51 it is no wonder so many people local to you stop to say hi when you walk to the shops 🥰🤭. I hope you enjoy the walk - nice and early before it heats up (you are smart!) - and something yummy from the bakery. I love bakery foods, they're a real treat for me

I am currently drinking my breakfast - a nutritional-shake powder mixed into chocolate almond milk and (because the choc almond milk ran out lol) dare iced coffee 🤭. Does that count as an "iced coffee" because it is half iced coffee?

I find powder-shakes very difficult to drink / be palatable, so I bought the version that mixes with milk and use choc almond milk but i still find it hard, i have to use 2x the milk it says to use or it is too think for me and i can also taste it. Almost finished it though - go me!

In response to: Re: One Day at a time here

Re: One Day at a time here

Go you @AlwaysMyself 😊

Any plans for today ?

For me , not much , pottering around Doing this and that

Back home now and my body is saying Coffee ☕️

In response to: Re: One Day at a time here

Re: One Day at a time here

I have my weekly remedial massage (helps manage pain) and counselling appointments today. But before them the dog walker will pick up and drop back my dogs, so waiting for him to come in about half an hour.

And maybe a trip to the shops to pick up an item that 1) wasnt available in my local store for pickup, 2) so i placed a delivery order for because it said in stock at the delivery warehouse, then 3) got an email this morning refunding that order item (presumably out of stock) :face_with_rolling_eyes:, but 4) noticed the store 30min away has it "in store for click and collect" so placed that order this morning.

Waiting to see if that store fulfills the order or refunds it too! Annoying because i was a 5min drive from that store yesterday evening if i had known i could have gone then. Oh well, not a biggie.

Definitely another day for aircon here though. Expected to get to 35 degrees. Yesterday my car was struggling with the aircon cooling after it had sat in the sun. Both my appts today dont have sheltered parking so it will heat up again. 🥴

How hot is it expected to get your way @Shaz51 ?

And more storms?

It must be so humid with the heat and storms! 😬

But hopefully you get to listen to nice frogs again?

In response to: One Day at a time here

Re: One Day at a time here


@Shaz51 wrote:

Thank you for that piece of encouragement @AuntGlow

Keep on keeping on my friend 🧡 bit by bit and growing forward


Always. How are you feeling today? @Shaz51 🫶

In response to: Re: One Day at a time here

Re: One Day at a time here

feeling ok here @AuntGlow , @AlwaysMyself

very hot and cloudy here, not sure if we will get any rain today but you never know

walked to the bakery for some bread

been awake since 3am so this is my 2nd coffee

got a couple of big bear hugs this morning down town 😁

In response to: Re: One Day at a time here

Re: One Day at a time here

I love a good safe bear hug too @Shaz51 🥰😍 so glad you are receiving the love and care you deserve on your walk to the shops.

I'm sitting having a small bite to eat between my 2 appts. However i chose a small local cafe to support, and they only have outdoor (shaded) seating. 12:30pm and 36 degrees. Ooph. But thankfully there is an occasional breeze which makes it much better.

Muscles are more relaxed now post-massage.

In response to: Re: One Day at a time here

Re: One Day at a time here

Muscles are more relaxed now post-massage.--- thats good @AlwaysMyself

11.30am here

my right arm and shoulder was sore last night so put lots of cream on, restless night , not too bad today

In response to: Re: One Day at a time here

Re: One Day at a time here

Glad the cream seems to have helped / not as bad pain today @Shaz51 @. I hate chronic pain 😓. The massage has made a big difference to my ability to cope mentally this year, plus the chiro which i added on a few months ago has improved it further too.

Can I ask where you experience the pain?

Its also OK 100% if you dont want to talk about it. I know sometimes the mental attention to pain can make it worse more than the social-emotional support from recognition of the challenge can provide. *hugs*

Whatever helps you best is what i seek primarily.

In response to: Re: One Day at a time here

Re: One Day at a time here

lots of places @AlwaysMyself

I have osteoporosis in my spine and lower back and in my right foot and osteoarthritis

my whole leg hurts a lot; I get cramps and restless legs caused by the kidney disease

In response to: Re: One Day at a time here

Re: One Day at a time here

Ouch, that sounds like a lot of painful places - do you find they tend to "all hit at once" (e.g. the osteoarthritis areas) or different days in different joints?

I find different days I will have different areas in pain - my ankles, lower back and wrists are usually related to usage. However my knees they are temperamental - and I suspect they respond to the air pressure or temperature or something because winter sets them off, but also interesting I realised one year my knees were really bad for a week and I was speaking later on two separate occasions to others who also had knee arthritis and they had their knees start hurting the exact same week for the whole week too - one of them said something about barometric pressure.

People who don't know me well that are older than me (which isn't hard, I'm in my 30's and many of my friends and coworkers are 50+) talk about how "when you get old and your body starts to hurt and have arthritis..." and I look at them a moment, listen to them, then tell them that I can already relate because I was diagnosed with knee osteoarthritis at 20! 🤣 My chiro actually didn't believe it was arthritis (saying sometimes misalignment or muscle tension can mimic the pain, which is true) until I told him they diagnosed it from an MRI scan -- then he accepted that OK it legitimately was osteoarthritis. I am grateful to not have it more severe, and it doesn't seem to be worsening fast, and I am grateful it is not rheumatoid either (although a coworker said they have medication that keeps their rheumatoid arthritis from flaring up, which I reckon is pretty cool that that exists now!).

I joke the reason I relate so well to my seniors is because my body already thinks it is 80 🤣. Hmm... if only I could be like benjamin button and my body get younger as I age?? Fingers crossed maybe there will be more medical intervention tech before mine deteriorates too painfully. For now, massage,chiro and very occasional NSAIDs help. 😊

If you ever have good tips for what helps you with the pain, I am all ears. 😊

I used to work at a social club which had members mostly over 60 and retired. In winter the attendance rates would always drop A LOT (25-50%?) because so many people would travel to QLD for the warmer weather due to arthritis or disliking the cold. 😋

In the summer, half the city goes to the Coast for holidays. 🤣

I had no idea kidney disease caused cramps and restless leg syndrome; I guess I don't know much about kidney disease except for that when kidneys fail people need dialysis and if possible transplants - and that when they do a transplant they add the kidney but don't take out the old one! (I forget how I learnt that last fact, I think it was my from my cousin who is a nurse and now works in a dialysis clinic.)

If you ever want to explain more about your condition, I am also all ears. But only if having someone understand in more detail what your experience is like is healthy for you. I like to learn and listen from people's experience, but I never want people to feel traumatised or distressed by sharing. 🤗

It has started to rain here just now. And of course one of my dogs (the extra fluffy one) wants to go out!

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