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Compassion fatigue: When caring hurts too much

Compassion fatigue: When caring hurts too much

While caring for others usually comes from a place of compassion, over long periods of time, it can lead to compassion fatigue - feeling tired, angry and powerless, and sometimes going into dissaosciative states. A lot of stuff out there, like this article talks about how health professionals can experience a range of different symptoms. But compassion fatigue is not restricted to carers - they usually don't have a personal connection nor do they live the people they care for like many on us here.

One of our forum members, Jo, talks about disassocation here, she describes it as "a state that one can slip into when the stress and burn-out becomes too much. You go into 'automatic', carrying out everything you have to do and what's expected of you, but it's as if you're in a sort of dream state.' Has anyone experienced this? Or are you feeling burnt-out?"

This article explains that compassion fatigue can commonly occur due to "other-directed care giving" in which people "were taught at an early age to care for the needs of others before caring for their own needs."

@Cazzie @Former-Member @BeHappy @Snoo @Louise last week we spoke about feeling tired. I'm wondering what are people thoughts on this? Do you agree that there are patterns in your life that have taught you to put other people's needs before your own?

@countrymum you have spoken about the difficulties of caring for your son too much with the heart. Looking back is compassion fatigue something you can relate to?

@maddison you're currently caring for your housemate, any thoughts on this?

Looking forward to hearing people's thoughts on this,

CB

106 replies

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In response to: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

Hi Peoples. I've actually stuck my head out of the social-chatty parts of the forum. Due to being really tired out today. Particularly today. I'm having a bit of a do-nothing.

I've found lately that I don't have the capacity for coping with stress, sadly including "good stress". You know how when you get a good day's work in there should be a kind of tired euphoria from the sense of achievement? I've found lately that that's vanished and instead I go to bed feeling strung out as if I've been in a crisis.

Yesterday was a mix of both- family member's minor MI crisis plus trying to get some preserving done (which I do usually enjoy). So I got to bed late and slept badly. I'm still in a bit of a knot, and finding myself easily "pushed overboard". Plus there's a lot of general background stress going on otherwise.

I've decided tonight's dinner is going to be a "keep it simple" option. Methinks a container of homemade soup that's sitting in the freezer will do the trick, and maybe we can also watch a funny movie.

In response to: Re: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

Hello @Former-Member

In response to: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

@Former-Member this thread may help you

In response to: Re: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

hi @Smc @CherryBomb @outlander @Shaz51 @Grasshopper3, I simply cannot believe that tonight I have found this thread ! I made a list earlier on who are my support contacts. I am most def at stage 3 burn out, 😞 I cannot seem to function at all. I have one support person that I can tell all to, my mum who is 94. My friends have left after me putting off so many outings, parties etc. They are still out there but it is so difficult to call or drop in and spill a whole lot of negative stuff to someone who may have been having a good day until I turned up. So mostly I keep it to myself and sometimes have a vent on here. Have to try again tomorrow.

In response to: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

Aww hugs @JoJo99 thinking of you 💚💕

In response to: Re: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

@Maddison

Maddison wrote:

I think part of the exhaustion comes from the position of helplessness I find myself....when I want so badly to provide care, and my absolute best efforts are simply not enough. As difficult as it is to accept that someone you care about is very ill( either physically or mentally), it's the acceptance that sometimes the greatest compassion I have to offer, is simply not enough...thus I feel hopeless, helpless, exhaustion, defeated. It is harder to put into words. I guess I am saying, that sometimes I wish I had better strategies or education in how to deal with situations.

@Shaz51, @Former-Member, @Mohill, @patientpatient,

Here I was, thinking the double dose depot plus the wavers would help my son... he now sleeps from 10pm till 12, 1, 2pm in the afternoon.

Still has got no energy to start anything. He forces himself to go for a daily walk with me.

He says the increase in meds hasnt helped his mind, but he likes sleeping, he says he can't wait till 6pm when he takes his next waver.

I asked him yesterday, hey, I know there are a lot of people in the same boat as you, but there is always hope, things will get better. Do you hope this too? He shrugged his shoulders, "I dunno..."

I stared in front of me and I just wanted to cry.... He said what are you thinking off?

I wanted to tell him what Maddi wrote, see above, but I asked him this:

What is the reason you get out of bed? He said, "my smoke and my coffee"

I said I was hoping the medication would have given you some of your old energy back (unmedicated he is a ball of energy....has ADHD too)

He said nah. I said the Psych has been talking about chsnging your meds from depot to oral meds, He seems to think that miight benefit you. Would you be willing to give this a try?

Again shrugged his shoulders.

I am exhaused ot trying... going back to work after a looong weekend at home with him.

Oh I did go out to the shops, even had a lovely massage... but I used to be so much more outgoing and I really dont want to even speak or see anyone at the moment. All I have inside me is desparation, anxiety, helplessness, hopelessness, what have I become, I just dont know what to say to him anymore.

I just turn on some music and keep busy around the house, but I am not happy, as he is not happy

He has initiated to work with an organisation but the girl introduced herself last week after a 2 week wait, and is going on holidays for a week. There is only 2 more weeks and I will drag ourselves to the airport to sit in an airplane for 24 hrs travel... I better get some Nicotine patches for him.

It will probably the last time i get to see my mum, my sweet mum, battling with Parkinsons on the other side of the world. She is now refusing some of her medication making it really hard on my dad caring for her at home. I need to be with them but can only take 3 weeks off, and cannot leave my son at home alone.

not happy jan... what have I become? Living an extraordinary life like so many other carers.

I told my son if we come back from this trip, we start saving up to see his sister, who lives country QLD.

Better get ready for work, taking the car so I can drive home in my lunchbreak to see how son is going and to keep him company for a half an hour to break his day.

Compassion fatigue yep yep yep

In response to: Re: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

@Grasshopper3 I hear you loud and clear. I feel that same exshaution. Keep trying with a med change for him. The one he is on is definetly not helping the depression. Hoping you can get some respite and peace

In response to: Re: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

good morning @JoJo99, @CherryBomb, @Grasshopper3, @outlander, @Smc

Compassion fatigue yep yep yep --- that`s me

@Grasshopper3 I hear you loud and clear. I feel that same exshaution., mine is trying to find the right balance

Hello @Former-Member, how is your husband today after yesterday`s panic attack , am thinking of you and if your husband has any quesions , please ask us

In response to: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

Im still working out balances. Im.not very good at it. I always feel burnt out and i suppose i am but i have to keep going

Hugs to sll my friends here struggling with this too
@JoJo99 @Grasshopper3 @Former-Member @Shaz51 @Smc

In response to: Compassion fatigue: When caring hurts too much

Re: Compassion fatigue: When caring hurts too much

Hi All & @Grasshopper3
It absolutely means the world to me that words I wrote when I was convinced I was alone, have been relatable to someone else. Although, I am sad that you also feel the helplessness that I do.
Reading back over my comment, I realise their is no solution, but the advice i would give myself, is to try and step back. It is too much to ask to wholly provide care to someone else. Be mindfully kind to myself and others. Accept that defeat is inevitable - for everyone in every circumstance. I know it very easy to say, and much more difficult when in the midst of trauma, and that it may not be an option to separate myself. It is natural for humans to want help another, and when our actions impact someone in a positive way, we naturally feel as if we are succeeding and a sense of purpose. But the support we offer does not have 100% success rate - sometimes we are helpless, and that is OK. It is not our fault, it is not the fault of professionals, it is not even the fault of person who is MI. If today is not a success, that is OK. There will be days in the future, when your care and support will be successful, and mean everything to some one else.
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