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Support for D1ng0 ‌‌‌‌:)

Support for D1ng0 ‌‌‌‌:)

Hey all, just making a thread for our new member @D1ng0 - they're feeling pretty isolated at the moment so hopefully this can be a good chance for them to connect with some lovely forumites and maybe get some ideas - they mentioned looking for ideas to cope when things start to pile up!

@D1ng0 just wondering if there's something in particular that is proving to be the biggest struggle for you right now. Like is it one of your diagnoses playing havoc, or struggling with the basics, or maybe finding it challenging to get out and about?

You can of course share as much or as little as you like hun, we're here to listen and sit beside you through the rough stuff 💜

38 replies

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In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey @RiverSeal, thanks heaps for your kind words, I really appreciate it. I like that cycle diagram too, because it feels more realistic than aiming for a total, full-stop recovery, which is a trap I've fallen into a few times. I'm working really hard to survive everything that's going on, especially since I have so little personal support, and it's cool to have someone recognise that. Have a good one!

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

No problem @D1ng0! Hope it all goes well ❤️ RiverSeal

In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey @Former-Member, thank you for sharing what you've been through and are currently going through, it's very inspiring and makes me feel less hopeless. Firstly though, I really feel for you, and it's so terrible that you've been let down to such an extent. I really wish you hadn't gone through all that awfulness, but your strength sounds incredible. I hope your GP can help you and get you the psychological support you need, it sure sounds like you deserve it. Thank you for talking about what you've conquered and what you've struggled with.

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Even if you don’t feel it at the time @D1ng0 , there’s always hope to be found in others who hold that for you 🙌🏻🙂🌺

SANE Forum’ers are a really top bunch with loads of empathy and a soft landing for those jagged edges days - I’m really glad you’re here ☺️

And I want to say a kind thank you for seeing a bit of my story, and feeling it is relatable in ways that can help you 🙂💜🌺

Connection is part of coping and your words lift me up like mine do for you 🙂🌺

I hope you can have a better day today 🦩🙂

In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

I’m very sorry @D1ng0 that happened to you from a church group/pastor - didn’t mean to push religion on you. It sounds like you got so many struggles - and doing it on your own is monumental 😕

Just to let you know you’re not alone.

There are some good people out there, but sometimes hard to find.

Don’t give up ! 🐥

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

No worries @Hannelore, I didn't feel that religion was being pushed on me, and I didn't sense any malice in your words 😊 I just prefer to steer away from the topic of religion in general, when seeking support. Late last year a psychologist actually did push religion onto me, as the answer for my nerve sensitisation, and was incredibly condescending/insulting when I said that such an approach would not work for me. So, I recognise the difference between someone sharing their story and someone telling me how to live my life. And I'm thankful for your kind words!

Though we may have different approaches, I hope you persist with support-seeking as well, and that your struggles ease.

In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hi @D1ng0 🙂

Firstly, it sounds like you've had a humungous week that just passed! It's great that you've been able to make better sense and relate to your new diagnosis. I can imagine it's a lot to take in, and know that that is OK as it's not an easy process to just accept and go on always - there's a series of steps I feel many of us take, and I want to encourage you to take the steps you need in order to accept this news.

As for friendships/losing contact - it does sound like it was a bit one-sided with some of those friendships, but it's beautoful to know you have 2 treasured friends who are more understanding of mental health.. I feel like these are the people who - like you said, can go for ages without talking, and then when you do, it's like no time has passed! Even though it has.. or you just have a bunch of things to talk about and still there is never time - but you always have the best time together anyway 🙂

On the other hand, I know when you have friends dealing with their own daily struggles and life, it can still feel lonely because the direct and immediate support and connection may not be there.. that's why for 1 - I am glad you're using this space to connect with the SANE community, but also wonder - what else may you have the spoons for, considering what works with your own mental health, wellbeing and work priorities? (One thing that came to mind RIGHT then was booking in a time and day for little catch-ups so you mutually have something to look forward to! & online spaces other than this forum - like peer work in other spaces?)

Finally, I am glad to know that you have a very understanding boss - it's so crucial to our wellbeing at work to have someone who can understand, accept and allow us to do what we need to do at work in order to complete our best work! (Efficiently, too!) Sounds like your work is important to you also, and that you have a lot of gratitude for not only your boss but your work itself! This makes me smile!

I am curious - if you feel comfortable - what type of work accomodations have you asked for (if you have asked directly)? And have you been able to identify a noticeable difference in the way you work?

P.S. Sorry for the long response back - take your time, at the same time, no stress or obligation to reply ever 🙂

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey @PizzaMondo, thank you for your support. Last week was definitely a massive week. Thanks for the words of wisdom re: accepting this diagnosis and processing it. It's nice to know that this community is here when I feel the need for more support. Needing to summarise things for multiple practitioners, and organising my health information into lists, is actually helping me absorb this diagnosis, so that's nice. It's also a way of advocating for myself and saying, "here's what my health situation is" in clear terms.

I definitely hope that those two friendships can persist in that way. But I also feel a bit resigned to whatever happens, because I'm doing as much as I can. A private goal of mine is achieving a level of mental/physical health where I can do things like join casual sporting clubs or hobby groups. Even though I'm definitely not capable of that right now, the goal gives me hope, because I could do that at any time in the future (after all, gatherings like that won't ever stop existing). That makes my current stagnation seem less hopeless. The world will still be there when I'm ready for it, if that makes sense.

I have received peer support from someone in my community, recently. It's been quite good. I don't think I can take on more at the moment. Even my own solitary hobbies feel very exhausting, and it's hard to see the point in them anymore. Even though I know that's my depression talking, I also think my interests are changing. I used to draw/paint daily, but now it seems boring. I take a sketchbook with me when I'm waiting around for appointments to start, but that's about it. I used to really enjoy weightlifting, and I'm dreaming of a day when I can do that again.

My boss has been totally chill with me working from home, I'm very grateful for it. That means I work in an environment where my desk, chair, and computer are set up in an ergonomic way which reduces pain. And if my pain flares up, I can lay down and wait for it to recede... which would probably be impossible/awkward onsite 🤣

No worries about the long response, I'm grateful for every word. Thank you for taking the time to chat to me! And I hope you're doing okay, too. 😊

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