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Support for D1ng0 ‌‌‌‌:)

Support for D1ng0 ‌‌‌‌:)

Hey all, just making a thread for our new member @D1ng0 - they're feeling pretty isolated at the moment so hopefully this can be a good chance for them to connect with some lovely forumites and maybe get some ideas - they mentioned looking for ideas to cope when things start to pile up!

@D1ng0 just wondering if there's something in particular that is proving to be the biggest struggle for you right now. Like is it one of your diagnoses playing havoc, or struggling with the basics, or maybe finding it challenging to get out and about?

You can of course share as much or as little as you like hun, we're here to listen and sit beside you through the rough stuff 💜

38 replies

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In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Thanks @tyme, I really appreciate it. Wishing you well 😊

In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hi Dingo - I hear you - it’s so hard doing it on your own and finding some genuine help. I’m on my own with that too, struggling with depression and anxiety and very angry and mistrusting towards just about anyone. I’ve got some really good things in my life too, but the negative stuff always overshadows it. I live in a small rural town with only basic services which are getting less and less and harder to access.

However, I am.a Christian ( a lousy one at that) and what does help me is stepping back from all the noise and agro and delving into the Bible and what God sais. I pray and ask Him for help - and even though he rarely takes the problem away He gives me the strength to go through it, and provides help along the way.

People are so fickle and unreliable, I’ve pretty much given up on them.

I hope & pray for some good things and some strength to come your way too, Dingo.

In response to: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Yes having at least 1 support is so important ! Thanks for that, it helped me too reading it 💕

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Morning @D1ng0 , @Hannelore , @Jynx , @tyme , @PizzaMondo , @Former-Member

How is everyone going today xx

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Morning @Shaz51 I'm doing well too 🙂 How are you doing today? RiverSeal

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hello @RiverSeal 😊

A bit tired from a restless night and then hubby made us a cuppa at 4am and been awake since

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey @Hannelore, thank you for your solidarity and well-wishes. I'm very glad that religion works for you, and I hope you continue to find comfort in your book. I personally experienced a lot of trauma due to christian teachings, especially because I am within the LGBT+ community and was branded a dangerous deviant by a christian community leader for that reason. While I am happy for you, I do not want religion discussed in a thread that's about supporting me, as christianity is just another source of trauma for me.

I believe that the people who are unable to support me are dealing with their own struggles and pains, and I know that my two closest friends aren't malicious for needing to prioritise their own mental illnesses and neurodivergent boundaries. The idea of giving up on people leads my mental health down a very dangerous, dark path, where I become resentful and numb. I definitely do need, and deserve, more support from people... but I won't ever give up on them.

Again though, thank you for your well-wishes, and also for your prayers. I may have gone through trauma because of christianity, but I do recognise that you are being genuine and kind when you say that you are praying for good things in my life. So, I appreciate it. And I hope you have a good Sunday.

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey @Shaz51, thank you for asking, and I hope you get a better rest tonight.

These might sound like silly victories, but I slept 8 hours last night and ate a banana for breakfast, and those feel like huge achievements in the face of my eating disorder, insomnia, depression, etc. I definitely don't feel actively good, but I feel calm. So I'll take that as a win for now.

I'm also preparing lists for GP, physiotherapy, and counselling appointments next week, thanks to the advice given in another thread. It's slow going, because I feel a bit spacey and am having difficulty concentrating, but it soothes my anxiety about upcoming healthcare. It's the calm before the storm, and I know I will struggle again soon, but I'm enjoying the mental quiet while it lasts. I'm grateful to have this community. Thank you again.

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Congratulations on your achievements @D1ng0 and even small wins and a big step in recovery!

It is really inspiring to hear you are preparing for your upcoming appointments with lists and taking advice on board. Looking at the cycle of change it sounds like you are in the action stage and that is impressive to see you look to make changes in your life.

I wish you all the best with your appointments!

Thank you for sharing with the community here on the Forums 🙂

Take care

RiverSeal

In response to: Re: Support for D1ng0 ‌‌‌‌:)

Re: Support for D1ng0 ‌‌‌‌:)

Hey there @D1ng0 🙂

thanks @Shaz51 for the tag ☺️

I’ve just had a bit of a read back through your thread… lots of what you’ve mentioned are familiar here to me.
I’ve never had family or friends support me, in any way, while dealing with any of what I’ve faced throughout life, I live with a number of both physical and mental health conditions that mean I am thoroughly maxed out just trying to function some days, and due to one of those physical health conditions I have lived in isolation (exactly like covid lockdown isolation) since 2018…and ongoing… negotiating medical/hospital treatment for physical conditions is a nightmare of logistics, as well as having to repeatedly instruct all staff to wash their (expletive) hands after touching other patients!! (Usually I return home with a hospital acquired infection due to staff negligence which some have then taken me 2 years to recover from).
I’ve had physiotherapists injure me, crack/damage bones (I have a bone marrow disorder causing weak bones amongst other things), and take zero responsibility - even blaming me for seeking a therapy I had no right to seek due to my health status. I’ve had psychiatrists and doctors heartlessly tell me I have munchausens despite there being imaging and blood test/bone marrow biopsy evidence. They have also told me my experiences are beyond their scope of practice - referring to trauma I have experienced throughout different stages of my life. Psychologists have repeatedly rejected me due to the trauma I have experienced, again stating it is beyond their scope of practice (these were trauma informed practitioners).
I live with chronic pain after a hit and run (I was hit at around 70km/h by a driver who was breaking the law), where not only did I sustain multiple injuries, I also received an acquired brain injury.
I currently have peripheral neuropathy which means I can’t feel my legs and arms from the knees and elbows down, besides varying degrees of searing pain.
And the list goes on which includes terrible trauma from various hospitalisations and physical harms from staff, but I wanted to give a gist… 🙂🌺

Righto, having said that, I do struggle to get access to pretty much any support (It was only relatively recently I was able to get a lawyer to help get job seeker after years of struggling to survive: feed myself, no electricity at home [very tricky due to needing a ventilator to keep me alive overnight due to partial diaphragm paralysis after the impact from the car - I used to charge a battery from my neighbours place] etc, then by pure luck I was seen for an assessment for work capacity and that practitioner said you’re over 100 points on the disability tables - you should be getting DSP) but the key for me was not giving up….

There was absolutely NO way that ANYONE was going to put me down and keep me there.

I’ve had to learn to walk again twice over, and now I mobilise on crutches, but I still do everything by myself at home - I have zero supports.

it’s just recently that my Gp has said she will try to seek psychology intervention, which as mentioned I haven’t been successful in obtaining for decades. I’m also hoping she will help with ndis.

I know a bit about what it’s like to be in a bad way, be rejected or hurt repeatedly, and then try to keep the same decorum and stability as others who don’t face the same challenges.
No doubt, it damages.
But, I hope all this can help you in knowing that you’re not alone, other people know you’re hurting because they also feel it, and they (and me!) are right beside you, to help smooth the edges, and hold that all important space for you when you need it 🌺🙂

PinkFlamingo, Peer Guide volunteer at your service 🙌🏻☺️🌺

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