Hey there @D1ng0 🙂
thanks @Shaz51 for the tag ☺️
I’ve just had a bit of a read back through your thread… lots of what you’ve mentioned are familiar here to me.
I’ve never had family or friends support me, in any way, while dealing with any of what I’ve faced throughout life, I live with a number of both physical and mental health conditions that mean I am thoroughly maxed out just trying to function some days, and due to one of those physical health conditions I have lived in isolation (exactly like covid lockdown isolation) since 2018…and ongoing… negotiating medical/hospital treatment for physical conditions is a nightmare of logistics, as well as having to repeatedly instruct all staff to wash their (expletive) hands after touching other patients!! (Usually I return home with a hospital acquired infection due to staff negligence which some have then taken me 2 years to recover from).
I’ve had physiotherapists injure me, crack/damage bones (I have a bone marrow disorder causing weak bones amongst other things), and take zero responsibility - even blaming me for seeking a therapy I had no right to seek due to my health status. I’ve had psychiatrists and doctors heartlessly tell me I have munchausens despite there being imaging and blood test/bone marrow biopsy evidence. They have also told me my experiences are beyond their scope of practice - referring to trauma I have experienced throughout different stages of my life. Psychologists have repeatedly rejected me due to the trauma I have experienced, again stating it is beyond their scope of practice (these were trauma informed practitioners).
I live with chronic pain after a hit and run (I was hit at around 70km/h by a driver who was breaking the law), where not only did I sustain multiple injuries, I also received an acquired brain injury.
I currently have peripheral neuropathy which means I can’t feel my legs and arms from the knees and elbows down, besides varying degrees of searing pain.
And the list goes on which includes terrible trauma from various hospitalisations and physical harms from staff, but I wanted to give a gist… 🙂🌺
Righto, having said that, I do struggle to get access to pretty much any support (It was only relatively recently I was able to get a lawyer to help get job seeker after years of struggling to survive: feed myself, no electricity at home [very tricky due to needing a ventilator to keep me alive overnight due to partial diaphragm paralysis after the impact from the car - I used to charge a battery from my neighbours place] etc, then by pure luck I was seen for an assessment for work capacity and that practitioner said you’re over 100 points on the disability tables - you should be getting DSP) but the key for me was not giving up….
There was absolutely NO way that ANYONE was going to put me down and keep me there.
I’ve had to learn to walk again twice over, and now I mobilise on crutches, but I still do everything by myself at home - I have zero supports.
it’s just recently that my Gp has said she will try to seek psychology intervention, which as mentioned I haven’t been successful in obtaining for decades. I’m also hoping she will help with ndis.
I know a bit about what it’s like to be in a bad way, be rejected or hurt repeatedly, and then try to keep the same decorum and stability as others who don’t face the same challenges.
No doubt, it damages.
But, I hope all this can help you in knowing that you’re not alone, other people know you’re hurting because they also feel it, and they (and me!) are right beside you, to help smooth the edges, and hold that all important space for you when you need it 🌺🙂
PinkFlamingo, Peer Guide volunteer at your service 🙌🏻☺️🌺