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Struggling to be

Struggling to be

Hi all,

I'm a new poster here, and finally stepping up to say hello. New to posting, that is, but I've been reading here for a while.

My main reason for not posting is that I haven't known what to say about myself. I still don't. I've nothing to be proud of; I'm ashamed of how I've ended up, and what a failure my life has been. I've been heavily depressed for most of it but done my best to be a "brave little soldier"; spent a little over twenty years on anti-depressants which merely dulled me as I watched life slipping out of my grasp.

I've tried. Really hard. I don't have a lot of contact with other people, because ... well, I simply don't trust people any more, and there's not a soul on the planet who cares about my well-being or even existence. I've reached out for help several times to so-called professionals, but it hasn't gone well. I don't have a reason to be here any more, but i'm too much of a coward to do anything about it. (More shame.)

I'm not fishing for reassurance or compliments. I'm aware that what I've said doesn't sound inviting of help or kindness, but it's my way of saying "I Exist", in an honest assessment.

I don't know what it would take to ignite my pilot light again. I really wish I did. But I suspect things have gone too far into the dark to ever escape the numbing shadow of What Might Have Been.

I admire those who can be positive, and brandish hope. Good luck to you all.

260 replies

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In response to: Struggling to be

Re: Struggling to be

@Aonaran

The forums sometimes refresh ... I have lost a few posts but I dont think it is always the SANE program or the mods ... sometimes I can find it again under the autosave... its a time out thing ...

Health setbacks are tricky ...I guess you have to see the doc weekly or more for a while to stabilise the iron level. I found facing my partly self-inflicted main health issue (neck) very difficult ... it took about a decade to settle down with all the agitation and blame-self/other etc ... what a bloody idiot to do that ... made it worse etc ... I did have to face it and accept it ... and adapt a life around it ... first a physio and then my osteopath was most helpful.... only found decent doc recently.

I did a bit of genetics in Biol when I was a kid and cos we were haunted by the dreaded "schizophrenia gene" ... I always stayed mindful of inheritance patterns etc ... there isnt one ... a single gene ... just predispositions and possible triggers

Dear @PeppiPatty often tangles up little stories ... like my brother ... this leads to that ... in her loverly cheery posts ... I dont know that she always gets it right ... but god I love her heart ... my backstory is complicated ... one brother died in 95 and one is dealing with cancer ... I might see him this weekend as he is in town.

My family is and has been very fragmented for a long time ... atm it is just son and my globally pingponging brother ... he goes to Germany for alternative therapies.

You contributed to a thread about creating a meaningful life by @Chris that I read today ... you had 9 likes ... it was a good post ... there is value in your point of view ... and I am not alone in saying that.

Finding meaning is solved when one is a parent ... but as my baby is now 23 ... I have been trying to give him permission not to worry about me ... the world's your oyster ... go and make it etc ...cos look darling ...I have a life ... etc etc ... he has said he wont be going anywhere for a couple of years but some of my motivation for "getting a life" was to reassure him .. its great that it becomes part of his conversation ...

I was attracted to your posts cos my celtic side is dormant ... I have an Irish name but no heritage ... dad died young and had no family ....so am happy to hear your pearls of wisdom ...

I fight my bad genetics by developing identity ... or thats the theory anyway ... I just keep lasting ... the sun just keeps coming up ... even if I didnt notice the bloody thing for years at a time ...

A lot of the people on this site are doing mandalas ... I am lousy at art but maybe I can learn some knots ... not Borromean ones ... Lacan was obssessed with those ...

cheers

In response to: Struggling to be

Re: Struggling to be

Come on @PeppiPatty U R such a natural community guide ...

I would have been worried if I didnt see you in your new overalls.

In response to: Struggling to be

Re: Struggling to be

Heya @CherryBomb,

Thanks for keeping a chair for me near the fire, while I've been off shuffling round the shelves in the musty library. 🙂

I can't imagine ever thinking of you as presumptuous; to me your sense of the appropriate is very finely tuned. So I wasn't upset about the vanishing "my friend", but I did want to acknowledge and say thanks that it was there in the first place.

I'm not really sure what to say to you right now, if I'm honest. I'm conscious of disappointment that ou conversational momentum was disrupted, but I'm conscious also of feeling that making too big a fuss of that will stamp the ground fallow and stop any further shoots from breaking the soil.

I'm really wrestling with the angel this week over all the "Mental As ..." stuff that's around. My gut feeling is that all this knowledge that's being spouted all over TV and radio (and I tend to be ABC-only these days, so I've no idea if other broadcasters have picked it up or not) may be all very well, and may be accurate, but it really doesn't take the place of lived experience. People hear these talks, and think they know about Mental Illness, but they know anything that wouldn't be made immeasurably more worthwhile by talking to someone with MI of some kind and simply asking, "What's it like for you?"

It actually makes me think of Peter Duesberg. You probably haven't heard of him, but he's a medical biologist -- an epidemiologist, I think -- and he attracted enormous derision in the 90s by pointing out that there is no actual evidence that HIV causes AIDS. In the late 80s, when the HIV retrovirus was discovered and an industry sprang up around discovering a treatment and hopefully a cure, it became established orthodoxy to say that HIV caused AIDS, because what was defined as AIDS required HIV to be present, and if you didn't accept that as a premise, then you simply didn't get funding. It was self-fulfilling. But Duesberg pointed out that no direct causal link has ever been demonstrated, and the mechanism for such a relatively simple retrovirus to cause the necessary cell changes and behaviour has never been enunciated. Duesberg notes that in central and southern Africa, where AIDS is truly an epidemic, there are large swathes of people who have all the same opportunistic infections and suppressed immune response, but who have no detectable presence of HIV or its related antibodies. Those with detectable HIV are diagnosed as having AIDS; those without HIV are simply considerd as suffering from medical issues common in southern Africa, even though there's no functional difference between the two groups. He worries that the presence or not of HIV is a false distinction that masks what's really causing the health issues for these people, and that our focus on HIV has stopped us looking for other causes. (As I remember reading somewhere once, there's nothing more dangerous than an answer that is both persuasive and wrong.)

Anyway, my point is: obviously I'm not pretending to be any Peter Duesberg, but I can't help feeling there's more to any mental illness I've personally experienced than the "experts" talk about. It's a response to life, an attempt to right the balance of a tilted ship, and the focus on what's broken often masks what's keeping it afloat. Maybe our own personal variant of the HIV spectre isn't where the real problem lies, and this drive to pathologize may make things seem manageable to the "experts" but I do wonder what it actually contributes to the people for whom this is their life.

I'm frightened of having yet another ppost summarily deleted if I say the wrong thing, so I'm cautious of saying any more. And I confess that my thoughts are also coloured by anger at the people I've turned to for help who presumed to believe they knew better than I did what my life experience was, and what I "needed". It's just so much flim-flam.

Acchh.

Aonaran

In response to: Re: Struggling to be

Re: Struggling to be

"It's a response to life, an attempt to right the balance of a tilted ship, and the focus on what's broken often masks what's keeping it afloat."

The experts are coming around to this idea, slowly - their name for it is a 'strength-based approach'. 🙂 There are a few threads in the forums here and there about the subject.

In response to: Re: Struggling to be

Re: Struggling to be

very insightful about me @Appleblossom

thanks

In response to: Re: Struggling to be

Re: Struggling to be

Dear @CannonSalt

I could'nt have written it better myself.

Thank you.

Often I sit here with my darling husband who is clearly suffering more than me......

He is a truly beautiful wonderful man.

Can I ask you of any messages you relate to on this site?

I just think @Aonaran is someone I think about and like very much reading him.

In response to: Re: Struggling to be

Re: Struggling to be

Dear @Appleblossom

Thinking about you

Yes, you are right about me.....twisty emails that roam around

What I love about you is you get me thinking. Being on Sane forums.....im too overwhelmed for much these days......

family issues

Driving my husband to chemist every day

I have lots of papers I want to write

One is my values

One is that Feminism paper

Re decorating my beautiful home....

darling Arlo is ill......

I have a genuine fondness for you. I was listening to Glen Gould playing Bach on ABC am ....he truly is my favourite ....When at Univeristy, I did some artwork influenced on his Narrative records, I used to pay them for a whole year over and over!!!

As usual I was wishing I could have a cuppa with you this morning but couldnt get on the computer to write to you

In response to: Re: Struggling to be

Re: Struggling to be

Sorry about Arlo

Sorry about the chemist trips

I have lost my writing mojo so maybe thats is why I am posting a lot.

Luv the idea of long distance cuppas doesnt have to be dandelion tea

In response to: Re: Struggling to be

Re: Struggling to be

Even though Aonaran puts it so beautifully, it can be useful to know the 'official terms' when you're searching for answers. I'm still getting my feet wet on the site, and I am finding bits and pieces here and there that resonate. Mostly I'm just enjoying the warm, friendly atmosphere. 🙂

In response to: Re: Struggling to be

Re: Struggling to be

@Aonaran, I love your depth of thinking and use of metaphor to descibe your lived experience and thinking through and explaining. This bit...

"Anyway, my point is: obviously I'm not pretending to be any Peter Duesberg, but I can't help feeling there's more to any mental illness I've personally experienced than the "experts" talk about. It's a response to life, an attempt to right the balance of a tilted ship, and the focus on what's broken often masks what's keeping it afloat. Maybe our own personal variant of the HIV spectre isn't where the real problem lies, and this drive to pathologize may make things seem manageable to the "experts" but I do wonder what it actually contributes to the people for whom this is their life."

I was diagnosed with a particular diagnoses last year with several 'co-morbidities'. As a medical 'label' they are useful in so much as the (available) treatment and potential for understanding the physical attributes of the particular diagnoses. Although truth be told they have no clue as to what 'causes' it. I am not wed to that diagnoses in as much as use it to describe (but it only really touches just a part of what I experience) the lived experience. If I had presented on a different day (say a week after my back surgey and the terrible impact the aenesthetic and pain releif had on my mental health) i am sure I would have received a different diagnoses.

The system we live with has to have the pathologized descriptors so that those in the system, Doctors, Psychiatrists, Psychologists and MI health care workers feel that they are all on the right track. As people living with the condition/s it is evident (to me anyway) most of them haven't got a clue. This system fails at the first hurdle because every one of us, every one - has a unique mix of factors, experience, life, physiology, genetics etc. I see you will be quite clear if someone here responds but has not fully understood your point/s - I would like to ask - what difference does it make if we are 'pathologized' or not if the only systems in place to deal with our 'conditions' is structured in this way? To use your HIV/AIDS metaphor - if the treatments work to prolong life, educe symptoms and provide a quality of life, even if the boffins got it wrong at the 'cause' if the treatment works, it works... There may be better tratments or even a cure for the underlying causal agent if the cause is found to be something else (than HIV) but someone else needs to find that and prove it.

I have had the benefit of psychological counselling that definately does focus on "what keeps life afloat" and find this way more helpful, affirming and applicable than any psychoanalyses. I reckon the structures we have for damn near everything in this world are messed up badly, based on false premises, economic rationalisam, war & peace, armaments manufacture, dare I say patriarchy etc - we are all living in a dream/nightmare state where the people with power feed us lies and would keep us blind, and I am not a consipracy theorist, just a realist. The depressive side of this illness I live with always bottoms out in the depths when I try to unpack where it has all gone wrong and what I as an individual can do about it to change the world's story into one of hope, equality and peace. I see depression and despair as a fair response to the ills of the world, AND I know that I am a much less effective human being when I dwell there so do my very best to change my viewpoint and grasp onto hope as soon as I catch that I have fallen into a melancholic state which can be dyas, weeks or months later. I do try to do a re-set in my thinking once I catch myself squirrelling arounbd inn my own not-helpful thinking, not in a pollyannaish false positivity but by coming into the present and dwelling there, no pressure for as long as I can (a kind of nuetral thinking space just for a little while) until I take a bit of gladness in something - " ah! great! I heard that bird song and liked it. " must be on the up.

I heard during Mental Health Week on the radio that far more young people are living with anxiety and depression than ever before (taking into consideration the 'reporting' might be diffiernet than 30 years ago). That is not suprising, the world is a mess and the one's in charge seem blythe about their part in it. Having a depth of thought and consideration about our own lives, the state of the world, and these 'conditions' whatever thay are means we may be much more likely to also have a greater grasp and empathy for others. The great thing about these forums is he immense sense of good will have toward one another and their attempts to encourage each other, I love that, we get such little encouragement in our daily lives from others (or ourselves). So, even when someone doesn't quite 'get' me or seems to identify with something they themselves think rather than what I have said, i say 'thank you!" because they reached back and said 'me too' that is giving back expanding the "I" to We. Sometimes we will get that empathy wrong, but are not wrong in trying to shape it into something where we might acknowledge similarities and embrace shared experience, even if it means and it can only mean because we are inside sacks of skin that make us individuals, that it is not quite resonating right.

It is a pleasure to read your posts and depth of thought. I am glad you are here, Aonaran.

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