Im really not feeling it today, I dunno, I just fall over from last night. I just feel like I need to give in, Im sick of fighting with my sister, both direct and through Dad and Im sick of the firghts with my Mum. I mean they are not continous with Mum they are just everytime you have anything to do with her and if your not engaged directly in a fight its hearing the fights she is having with others and the issues she has with you via other people. There is nothing nice coming from her, Im always some kind of problem, but so is sister and Dad.
Sister does indeed have an issue with me, she has a meeting tomorrow, a case management meeting which she does not want me to attend because Im a dofus etc. All the sudden, after months of helping etc she doesnt want me involved because I am struggling to keep up with who is who in her management team, Im struggling to keep up with my own team, God I just got off the phone with her and she said about Mum and Dad leaving and I realised then why Dads car isnt out the front, I forgot that they had an appointment and it was talked about this morning. That said I get what is going on with sister, I remember most of what has and is happening but its not about knowing the ins and outs of of a ducks bum its about being there to support her. If she wants to push on ahead doing it alone, as she seems to want to, she is trying to force her own control of her medications, no matter how small amount she wants to be in charge of it. I dont honestly know how to deal with that.
The thing is, she keeps doing dodgy shit with medication. Not long ago she was keeping hold of one of her meds that she wasnt using at night, combined with OTC medication could have caused a big issue. There was fights about it and different stories the doctor told me one thing some time later sister told me another. Then she took herself to hospital a few nights ago, said she handed them the meds that she had found to the hospital. Last night she hands me more of the meds that she "forgot" about and said she had kept in case she needed them. there was enought there again, combined with OTC medication to cause a real problem and she wonders why I dont want her having any control over her medicatiion, because she cant be trusted with what she can get her hands on. Im not saying she as a person generally cant be trusted, or she is not trustworthy. What I am saying is its like being an addict, she will do anything to get what she needs to attempt to take her life. Wether she is actually wanting to do it or is just being prepared. I told my Dad today that we have to be more vigilant I suppose. Mum said after the fact that she had a feeling something was going to happen before her last attempt. I told Dad today that I have a feeling something is coming up, when my sister says she doesnt have anything to do anything I dont know I fully believe her, or that she isnt aware of a method for her to get what she would want to take to have another attempt.
All that kinda stuff I dont think is actually making it to her care team and if it is she is preventing it making it back to us. I think there is a deliberate disconnect being made between the care team and her family and that concerns me. I mean I wont force my way into things, she doesnt want all the help she can get, she thinks she knows better or that she can do it without us. I mean I get part of it might be her trying to protect me and the family from everything because we are all tired etc. I dont think thats a smart move. there are plenty of other ways she could do that that dont put her into jepordy.
Sister did decide to have a direct go at me last night about not doing enough at home. It gets me one minute she is trying to protect me from Dad's violent driving the next she is digging because I cant do stuff at home, when in fact Ive been doing more because Dad has hurt himself. She on the other hand isnt doing much, shes not even in the damn lounge fixing that up. She could empty and stack the dishwasher, neither Dad and I can do that. If I could be doing these things I would be, I was doing them all up until the procedure that initiated all the pain. Its not like I get a break from the pain, sitting down is painful, its just the least painful thing I can do bar laying down but I can only do either of those things for short periods. The pain killers arent eliminating the pain, they are making them tolerable for little activity, not for actually doing anything. If I do much above being sedative I end up needing more pain killers, which I dont like they make me itch and drowsy which isnt a great combination.
Its actually pretty hurtful people having a go or givving attitude because I cant do things, its like they think I dont want to but I have done everything to get pain relief sufficient to help at home, more so than deal with the pain for me. I mean, yes the procedure was a big part to be out of pain for me, but it would have allowed me to do so much more for my family. It might not be my primary motive but it has been a significant reason for the things Ive been doing pain management, and mental management because the healthier I am the more I can do.
Mentally Im a bit all over the place. I kinda want to give everything up and give it to someone else to deal with, Im clearly making a complete mess of everything according to everyone around me, so I feel like they can have a go and leave me alone. I went into this a bit more detail last night but yeah if I hand my finances etc to someone else then I dont have to try and to work it out anymore. Honestly, I want to concentrate on returning to work and dealing with my mental health, thats it. I dont want to worry about how I afford all my doctors appointments, food, bills etc. I cant focus on my back other than to protect it because I am just waiting on another procedure. So all I can concentrate on is my mental health.
My depression is really bad, I went 2 weeks without showering, though I think I will shower in the coming days which will be less than 2 weeks this time. My sleep is really broken. My mood is really low, I dont feel like I matter and that I am more a problem than anything else. Like I am an inconvienience and that now that my sister is pulling away from me, that I dont mean anything to her and she just wants to engage Dad as much as possible and winge to him to get her way. Dad is just seeing me as a challenge, I cant do anything, Im not able to help him. It just makes me feel like shit. Its not just them, its me, I cant do anything except the stuff on my tablet, I just consume and dont produce. So that makes my mood low, Id like to be doing more, just in general, Id like to be able to do something, non-work(housework) and enjoy something in my life. But I know I need to do the work thing before I can enjoy life. Dont get me wrong, I enjoy my job but there has to be more than just such a vanilla life, of work, pay bills and a bit of writing.
All my medical issues are getting me down. I have the new Urologist on Monday, which is pretty good timing because my pee has turned brown. I have my GP a couple times too, which again is good as I get the results of my pssychiatric assessment and can lodge my referrals for my Psychiatrist and Psychologist, but thats the high light of the week, doctors appointments and the opportunity to bring on more doctors. And its never simple, I saw Vanessa the other day and got an email from her today, Im getting a excersise physiologist so theres another medical person. I was excited that I have this person coming on board and then I was like, its good news but its medical stuff you dont get excited over medical things, not when you have as much going on as I do or should you say you shouldnt, new car yes excitement, new psychiatrist not so much.
My anxiety has calmed down but Im still shaking a fair bit, its pretty annoying. I get this feeling of doom quite a bit, just like a one of those big cement mixers dumping a load in my guts. Like the whole world is about to end and Im the only one who can stop it.
Having taken a step back in regards to my sister has helped a lot, the stress has reduced greatly. I mean now that she is home and driving there isnt much for me to do. The medication stuff stresses me out, I wish she would just pull her head in and accept the rules instead of fighting over each dose. I worry that she is going to try something again. Its a regular concern which she amps up with these "found" medications and filling in old scripts. But in general the not being intensily involved in everything and being able to concentrate on my own medical and mental health issues. Im still there for her but she doesnt need me at everything and making decisions for her. Though, being pushed aside like I did nothing for several months is pretty hurtful.
I'm really tired all the time. I don't know if it's the meds or depression to be honest. But I just want to be in bed all the time, it's not just sleep but it's comforting. I think that's why I'm wearing my Oodie as much, I mean it's cold but it's very comforting and calming. If I was just watching TV I'd have scooby my pillow pet. I just want the comforting feeling at the moment.
Psychotic symptoms have stopped which is nice. My mood just fluctuates between different levels of depressed. There isn't any jumping to really happy etc. It makes me wonder if I do actually have Bipolar if it's something else or is my medications really working that well? I wish my antidepressants worked that well.
My pain is really getting to me, ever since we went to the family therapy -1 my pain has been worse, not like by enough that I need breakthrough meds just enough that im more aware of it and limited by it. The pain and itching are waking me at night, the itching seems to be worse if I get too hot. Im much more sore just sitting and the pain above the butt crack is worse, sometimes sitting, especially in the car, is pretty painful. Lately Ive been getting a numb feeling coming up my spine to the back and top of my head. Its making me really irritable, I mean Im itchy half the time, then trying to sleep with that but I dont know what else to do, I mean I need the pain killers, its not the worse side affect but its frustrating as hell. I admit that I dont always cope the best with it, I dont know how to deal with the irritability. Family seem to be missing this, that the pain is causing more than just pain issues. That said they arent getting the level of pain I am in daily, that its painful for me to go from one end of the house to another and back again. Thats not a huge walk. Again sitting is painful, just sitting, Im moving 1/2 the time because I cant get comfortable. Driving is increasingly getting difficult, well painful. Its not that I am unable to or a danger, I can move, I can twist etc. its just more and more painful just to do it. I keep driving to a minimum, generally its one trip a day into town to collect supplies and my appointments, though I prefer them over skype type thing.
Eating continues to be an issue, I cant get much down. Ive had a couple nights where Ive eaten a full meal but it would be exceptionally rare that I have breakfast or lunch. Im still drinking, I generally drink 2ltrs of iced coffee and 4 cans of Mother. Not ideal but thats what Im doing at the moment. Generally I am very much a person of patterns and what I drink shows that as I know day to day thats what Im going to need and I will repeat that daily. Its the same with smoking, I smoke 40 a day, its not that I have it schedualled out etc, its just am so regular with when I go out for one or two, normally 2 that I can comfortably predict what I will drink, smoke and normally eat because its all the same. I eat lite n easy so my meals are the same amount each meal.
I worked it out about my sister thats actually bugging me, its not that I cant trust her or anything its that she is disrepectful to the rest of the family since coming home, its this attitude of entitlement, that she should have the things she is demanding. That she should have preferential treatment. That we dont matter if we get in the way of what she wanted. I mean she can be nice and generous but she can be demanding and me centred. What gets me is for several months I have been looking after her, I have been with her as much as possible, I have spent most my wage on fuel and maccas for her, I put my life on hold and made it all about her for months. But she only sees the money I owe her, most of which Im hoping will be covered by a grant, she can only see me having goes at her when she is acting out of her own best interests, she can only see the 'negatives' and when I have 'stuffed up' not all the times I have done everything I can to do/get what she wants. And I feel like my back issue arose and I was no longer as much or any use to her so she has just pushed me aside.
It was not long ago that she was having a go at Dad for making me smoke outside if Mum could smoke inside, now my sister is doing the exact same thing. Dad obviously hasnt done anything about me saying that its not fair, he has no respect or time for me. I say something that my sister is doing wrong or unfairly and nothing happens, nothing ever happens. My sister does the same thing and he has a crack at me. Again bottom of the pole, Mum complains, world spins, then if sister complains Dad spins. Mum, sister and Dad happily shit on me and dont listen to me or respect me at all. Really goes towards my depression and self worth, when my Dad cant even respect me and show me I have any worth and sure as hell my Mum isnt going to, where do I get my self worth? How do I feel I matter?
I dont know why but my back has been getting increasingly painful. Ive had to take some breakthrough pain relief. Ive yet to feed the dogs, which Ill have to because Dad has hurt himself and for some reason unknown to me sister is unable to do it. I dont like taking the extra pain killers, again I get itchy but also drowsy and I cant go to sleep as again, Ive got dogs to feed etc. I fed the dogs which was incredibly painful. I put the bowl down for one of my sisters dogs and she piped up that he didnt sit. She decides too do this on occassion but this time she was right, all I wanted to do was sit, so I didnt care if the dog sat or not I was giving it its food as quickly as possible and moving on. All I said was *Sisters Name* something along the lines of I cant.
For some reason she has decided that she is going to push the limits of what I can do pain wise and then bitch that Im not doing enough. Its kinda like that, its like she has decided enough of this pain shit time to move on, without taking into consideration how much pain I am in, doing anything. I went to this family thing for her and it was a big walk, Ive been in pain ever since, I mean it really caused me issues and she doesnt seem to get that or care Im not sure which. I mean Im sorry that my issue is having such an affect on you but seriously there isnt much I can do about it and its not like you havent just had a major issue that had a huge affect on me but I didnt sit there and tell you to get over it. Pain, mental health, sick, you cant always just get over it. They always have the opinion that I am being pathetic, overboard or something when it comes to pain, mental health and sickness. It like Im a liar or looking for excuses to do less or avoid doing stuff. The truth is Im trying to do what I can, Im working with medical people to be able to do stuff, I spend a lot of money on medical to be better. The mental health stuff I spend so Im not off my rocker completely. But as much as I spend Im not healthy, Im just a little less sick. Its the same with the pain meds, Im taking as much as I can, but Im not out of pain its just not as noticable but if I do something, not much all that pain comes flooding in.
Sister picked up new car today, spent the afternoon driving around by the sounds of it which is fair enough. I dont know what I think about her buying the car, shes been playing with the idea for a long time so its not impulsive. It will help home out with appointments etc. Its gonna be an issue when my Mum finds out, like a big issue. At some point my sister will regret buying it, I know through out this, her talking to Dad about it, the issue bound to happen with my Mum and her actually buying it I will be atleast part of the reason why she bought it. It was too much to share the car we had been between appointments and fuel, she, she complained that I wasnt paying my share of the fuel. Im not the one that brought it home on empty 3 times, I was putting fuel in it and the next day it was needing fuel again. I dont drive much, she does. I didnt argue that much, there really isnt any point her side will be taken over mine every time. But she has bought the car and that was her decision and at some point Ill wear the blame for that too and I dont think I care that much anymore. Dad and I get blamed for so much from Mum and sister, their decisions are our fault, they cant just accept they made a decision and wear the consequences, we never get the credit when its our fault and it works out well.
I over heard bits and pieces but there is stuff going on regarding my sisters medication and how they are handled. Ive made it as clear that Im quite happy not to do them, not to be involved at all. I got dumped the bigger safe and just expected that I would do the medication, while Dad says he has retired and can help more so I can go back to work. Im doing what I have been led to believe is the right thing as best I can, Ive admitted Im not a professional, Ive got no training, Ive got no experience. My only goal is to make sure my sister survives. Ive said very clearly, if her Suicide Prevention guy says she can have full time access to anything, any meds, her webster pack what ever I will do it. It will save me so much stress, Im looking forward to being able to hand it back. I dont know why a big deal needs to be made of it, just have him tell me what needs to change and off Ill go. I think it would be dumb to go off the word of someone trying to commit suicide.
Something that seems to be missed by my parents is I rarely come down to either and winge about my sister and what she is doing or not doing, but she does that to them about me what seems like an aweful lot of the time. She quite happily runs to Mum and Dad about every little thing while I just let it go, I just dont generally involve my parents, if I cant discuss it with my sister then it cant be that important. The only time I really go to one or the other is if they have made an unfair ruling, like with the smoking, but you see how far that gets me. Both Mum and sister are down smoking in the dinning room but if I want one Ill have to go outside. It one amazing way to make a person feel like they dont matter, not nearly as much as others. I mean its because its too cold/hot they dont want to smoke outside and its an inconvience but its too cold for them (at the moment) but screw you, you can deal with it, there is enough smoke in the house and you smoke the most so out you go.
My family makes me feel like some kind of criminal, like Im an inconvienence that they have to deal with because Im son/brother. The only time they seem to be ok with me is when Ive looked after one of them. It doesnt matter how or what I do then its ok, its not until the other side that they start having an issue with it and then it becomes my issue and Im the bad guy for doing what I did.