I woke up feeling incredibly sick, my stomach is really painful, headache, blocked nose and sore eyes, I still cant eat much and now Im having issues drinking. The more Im on these meds the worse I feel, thankfully I have my GP tomorrow and hopefully we can work something out. I am going to have a shower shortly, see if that makes me feel any better. I think that there will be a nap in the near future too, feeling very tired and out of energy. Im sorry I sound reallly pathetic, I feel like Im being pathetic but Im really drained, what ever is going on since I started this new med is really messing with me.
The back was really sore as well, still is, Im have no idea why, normally its the best first thing in the morning, which is part of the reason Im going in to the servo pretty soon after waking up. I mean normally I do shopping early morning because there's less people but at the moment its the best tme for me to drive. That is a bonus with the new meds, Im not drowsy in the afternoon which makes going to appointments etc much easier, I dont need Dad to take me anywhere.
The stuff with my sisters medication and just her in general is playing on my mind. I dont think Im cut out for this but its been lumped on me to deal with, making sure she has her meds, making sure she doesnt stash them, making sure she doesnt try anything in general. I have no training as to how to deal with this, I am emotionally attached so its not like a nurse or someone medically trained that if she does something or I have to do things I am emotionally invested and react as such. I dont always do or say the right thing in a given circumstance and thats held over me. She gives me no grace for mistakes or misunderstandings in the heat of the moment. I really just want her to take her meds and be quiet about it, not winge or change when she is gonna take them. I mean this morning, I woke up and it was a urgency that I gave her her meds right away, I said Id get her cup and no right into hand, right now, couldnt wait a few minutes. I have no idea why. Her night meds are supposed to be 8pm but she has now changed that to 10:30/11pm so Dad is giving her her night meds, as Im normally asleep. I dont know if that the right thing to do but she isnt going to listen to me and do what I say, the basics are a fight. She is however very demanding when she wants her meds, if she has determined that now, right now, is the time for them.
She was asking last night for more control over her medication, this is a week after she admitted to having a stash. I dont understand how she thinks thats going to happen. She carries on about being honest, when your not doing it and your able to be trusted not to do things like make a stash, then we can talk. You know, one week after saying I have a stash, oh Ive been honest, I dont think thats good enough, I dont trust you with your meds. You have given me no evidence that I should trust you. Now if her suicide prevention guy or Doctor says to me to loosen the grip and we have a chat and I know what to do going forward then yeah no prob. Honestly, I dont want to be doing any of this, I dont want to be handling her medication but I will if it means she stays alive.
The thing that she needs to wake up and realise is she isnt in this boat alone, like the rest of the family havent been in hospital recently but we are all struggling with our own serious battles at the moment. I do kinda feel for Mum, she has no idea why my sister is so mad with her, she has lost her relationship with her and has no idea why, I dont understand why she doesnt get it but my sister hasnt yet told her what she has done, she isnt ready to tell her which is fine, but it leaves Mum in a crappy position too. Which doesnt aid Mums mental illness, that said Mum does plenty to antagonise this. Just last night she was on about people collecting stuff for her, when we have all said that we are not collecting any more. I mean she rang me, cause she couldnt get hold of my Dad, then she got mad because I spoke poorly to her when she was asking me to pick shit up, when I have very clearly stated on more than, I have lost count occassions, that I will not be picking stuff up, not at all, no more. My Dad has made it clear as well and we have told her to leave my sister out of it but she keeps going and going, and I dont have much tolerance for any of it, like anyone, about anything, my tolerance is really low.
Dad isnt doing well, he seems angry pretty much all the time and you cant talk to him. I do know from what he says that he is struggling for SI. He interacts ok with my sister as far as I can tell. He seems to pull himself together to talk to her but Mum and I seem to be on the outs. He really needs to get some help, he needs to talk to someone and probably take some medication to help him but he is a very typical older male that has it in his head that he just has to tough it out on his own and he just isnt winning it and the rest of the family is suffering. He doesnt see the point in talking about it, its not a solution so why bother. He just wants things fixed, things the way he wants it and he doesnt understand that its not going to happen that way and the talking to professionals is to help him process whats going on and how to better manage his reaction to it. Its not about fixing the situation, its about helping you manage you and your relation with the situation, which in the long term helps resolve or add to the resolution of the problem. But he is stuck on, I want it fixed and fixed now. We have beeen given the opportunity to work with a place that helps with our kinds of situation. When presented with the opportunity, it was while my sister was still in hospital and Dad was enthusiastic about going, now he doesnt see the point, again its not the answer. The thing is he knows what needs to be done, its hard, its a fight, but thats not the answer he wants, he wants people to just be compliant with how he sees things, just live as he says and not argue.
Im clearly not doing well, I mean thats pretty clear from my past posts. Im struggling with SI in a very strong way. I have a range of MH issues happening, severe chronic pain. I have a heap of doctors appointments and at least 2 more procedures planned for the year. Im off work at the moment cause my MH is so bad and now my pain. Im working through the processes to get a ongoing psychiatrist and psychologist. Im on the wait list for guided services through SANE. I have a support person, though pretty unreliable, the appointments seem to change a lot. Im hoping that once Ive seen the Psychiatrist and we know whats causing the spinal pain that I will be able to re-appy for the NDIS and get some additional support. I mean, I need support for the MH stuff and more than I am getting now. I need to work on this new diagnosis of CPTSD, that has triggered a lot of stuff from my past. So I dont know how I am going to do that and deal with all my other crap. I have a suspicion that I will see a psychologist for the CPTSD who does a certain treatment style (CBT/DBT) and then maybe another psychologist or therapist to deal with the other MH issues. Who knows maybe they will roll into one psychologist and it will take a long time to deal with everything. Amoungst all this I need to get my shit together and get back to work. Ill be on reduced hours for a while, there will be a bit of time set to appointments etc.
So my sister needs to realise that all of us are struggling, not just her. She needs to understand that people are not firing on all cyclinders, Im not going to remember every appointment she has, who her people are and who she goes to and who picks her up. I dont expect her to remember all her appointments, we have a shared calandar but its new and Im getting my head around it, instead of using my normal calandar, my preferred calandar but Im trying for her sake. Just a bit of understanding and effort on her part would be appreciated.
Im really shaky today, I feel really anxious, Im not sure the reason. I mean I dont feel well and Im still in pain, but I wouldnt think enough for the shakiness. I have a few things to do this afternoon/night but nothing anxiety provoking. Im trying to keep things as calm as possible, my sister is out at the moment, Dad was with me for a bit and he makes me anxious at the moment but not like this. I suppose its just one of those days when the anxiety has decided that it wants to roar a bit more than normal.
Its an odd thing, Im 42, I work in a bank dealing with Bankruptcies. Ive worked for the bank for nearly 15 years. I like it, its a good job and all, best one Ive ever had. But I have no idea what I actually want to do, you know if I had an option to do what ever I wanted I have no idea what I would actually do. I think I might like to do something in the mental health field, I dunno. Financially it would be a fair drop financially I would think, which shouldnt be a driving factor but my life, medical etc. costs a lot and so Id need a job that would pay enough to cover that. If I didnt have the medical costs, I probably wouldnt have such a drive financially. I might like to do something in supporting people, but maybe more around getting greater supports and funding in general. I dont know much about those roles but something where I am working in the bigger picture, where I am trying to get psychology Medicare subsidised without restriction, not 10 or 20 sessions. Treatment for mental illness, any illness shouldnt be limited in its subsidies. Increasing rebate on psychiciatrists. Greater community supports, programs that benefit those with mental illness to improve their lives. But I know ideals, isnt limited to the most serious cases, that there is the ability to intervene at earlier stages to prevent the escallation of MH. For instance, my sister was sent home from hospital and other services when she was desperately looking for help. There should be an avenue for a person who has SI, who hasnt attempted, to get intervention assisstance so they dont progress to an attempt or a success because there is no where for them to go immediately. That would be the difficulty if I went into that field, Id want to bit into the apple real big and get the whole thing, not tacticle advances like, getting 20 psychologist visits, I think thats pathetic but I understand you cant fight for everything at once, though I dont always believe we shouldnt try.
I did manage to shower today which Im happy with. I made sure I got Dr Appointments coming up for a while and I set my other small tablet up and setup the shared calandar on that so I can see whats going on. I got a few appointments in next couple days. I got one on Thursday with the Insurance Company where we will look at supports that I might need and find helpful. Im looking forward to that one because any additional support I can get is a good thing. I forgot to go get my Webster Packs while my sister was out, I got enough for tomorrow and I got a doctors appointment tomorrow so whats the bet that Ill have more meds anyhow so ill have to grab them tomorrow, but I will have to remember, I dont like to be down to the bone on my meds.
I know I kinda dribble shit at times, I mean it is called Malen's Babble for a reason. By this time of the post Im reasonably confident no one is reading, this is for me more than the reader. I mean of course I want to make it worth reading but I just doubt anyones going to get this far. Shout out if you did lol. I dribble at times, I dunno its whats stuck in my head at the time Im writing. Some stuff just plays on my mind, no matter how mundane and getting it down on paper seems to help clear my mind of that particular thought process, its just sometimes really mundane and would put readers off.
While Im not terribly interested in friends and the like, people themselves are interesting, why we do what we do. I have been watching YouTube and Facebook Watch cop/jail shows. I know its only a very narrow view of society and its a limited view of each situation but it facinates me why someone chooses to go on a highspeed chase with cops, why they keep doing the same thing (selling drugs/taking drugs) over and over again and getting caught repeatedly. Like prostitutes, litterally get caught and as soon as they are released are back at it, I get they might have a people forcing them etc, but it amazes me the turn around time between jail and repeat. I suppose there is the aspect of wanting more for MH. I would want more for the jail system, Im not saying for the arresting and lock up process but there must be something that can be done with the data available to reduce the criminal behaviour. Money seems to be spent willingly on jails, prisons and officers but if some of that was redirected into community programs, employment programs, going after the higher levels for being arrested but lower moving into community programs that take them out of their lifestyle. So drug dealers would be helped to find a better way but suppliers and the like are off to jail. Ofcourse repeat offenders would have to go the jail route but best I can tell the low level people are coerced into it or know no better. I agree Im a bit of an idealist, but with the data available and people with impressive minds should be able to get together and find a system thats better than what we have. I think there is an opportunity to rescue people from a life of crime and give them a stable, healthy life. I think there is an opportunity to minimise the impact crime has on impressionable and vunerable kids getting groomed into crime at an early stage.
I really dont understand why I have been given so much responcibility regarding my sister. Everyone tells me how much of a screw up I am, how I have screwed up my own life so why make me as responsible for another person as they have. It doesnt make sense. Ill admit that in a lot of ways my life is messed up, financially Im screwed, unless my financial lenders were to really step up, as in waive the debt or significant part of it to make the repayments really low then Im gonna have to let the debts be onsold and see if I can get a better repayment deal with the debt purchaser, if thats the way they go. They have been giving me moros but it only delays the inevitable, my situation isnt improving, its getting worse and I dont forsee a time where I will financially be in a position to now afford my debts. MH wise Im screwed up. Medically Im screwed. I have no partner. I live with my parents and Im like 43. I dont even have a car, or the funds to get one. I have relied regularly on my sister and/or Dad for things financially related. Now tell me how I should be looking after anyones welfare, looking after anyone's anything. On a positive side I havent been given any ownership of her finances and going by history thats probably a good idea
Lovely dig by my sister that Dad will do this and she will do that and Ill do nothing. Because Im loving not being able to do anything, and really she hasnt done shit (for the family) since she got home. Shes messed around with some of her crap but spent plenty of time driving about. If it wasnt for the pain Id be doing much more, I was doing much more. I dunno maybe they will increase my meds and allow me to do more.
Its amazing how unappreciated you can be made to feel. I travelled hours upon hours, hundreds of kilometers for months on end to make sure my sister was ok and so she had someone there with her. I trashed my own mental health and finances more by going on unpaid leave because she needed me and all I have had is how I owe her money, because I kept running out, a wage and borrowed money from Dad only goes so far. So I borrowed money from her to make ends meet and to be able to continue coming down to see her. I then started borrowing money from my Dad as I had no income again to help her primarily. I didnt want her alone, she didnt want to be alone. Someone had to deal with doctors etc for her cause she couldnt. When I wasnt travelling to her, with her or with my doctors I was at home cleaning or preparing her next bag to be taken down. I completely wore myself out, I wasnt buuring the candle at both ends, I was burning it in the middle and there is no appreciation, not even acknologment of what you have done or the sacrifices you made.
I would like to say that if I were to do it again I would do it the same but I dont think I would. I think I would be much more conservative financially. I think I would have had boundries in place and wouldnt have allowed her to encroach upon my work life, I would have told her that she would have to wait until I was finished for the day.
I dont think she realises how demanding of my time she was, how irratic her behaviour was. How intense and angry she was. She felt like all the doctors and nurses were against her. There was an amazing dose of paranoia and aggressive behaviour. It wasnt something I have seen from her before, or anyone directly before. I would go down and I felt like I was half giving support and half bouncer. Even then she was still hurting herself when I wasnt there or she would call in a tirade, often with me having no idea what was going on, a few times for the entire call it was yelling and screaming and then the call would end. I dealt with a lot and most of it on my own without anyones real knowledge. I doubt she even realises the hell she put me through.
I woke up feeling incredibly sick, my stomach is really painful, headache, blocked nose and sore eyes, I still cant eat much and now Im having issues drinking. The more Im on these meds the worse I feel, thankfully I have my GP tomorrow and hopefully we can work something out. I am going to have a shower shortly, see if that makes me feel any better. I think that there will be a nap in the near future too, feeling very tired and out of energy. Im sorry I sound reallly pathetic, I feel like Im being pathetic but Im really drained, what ever is going on since I started this new med is really messing with me.
The back was really sore as well, still is, Im have no idea why, normally its the best first thing in the morning, which is part of the reason Im going in to the servo pretty soon after waking up. I mean normally I do shopping early morning because there's less people but at the moment its the best tme for me to drive. That is a bonus with the new meds, Im not drowsy in the afternoon which makes going to appointments etc much easier, I dont need Dad to take me anywhere.
The stuff with my sisters medication and just her in general is playing on my mind. I dont think Im cut out for this but its been lumped on me to deal with, making sure she has her meds, making sure she doesnt stash them, making sure she doesnt try anything in general. I have no training as to how to deal with this, I am emotionally attached so its not like a nurse or someone medically trained that if she does something or I have to do things I am emotionally invested and react as such. I dont always do or say the right thing in a given circumstance and thats held over me. She gives me no grace for mistakes or misunderstandings in the heat of the moment. I really just want her to take her meds and be quiet about it, not winge or change when she is gonna take them. I mean this morning, I woke up and it was a urgency that I gave her her meds right away, I said Id get her cup and no right into hand, right now, couldnt wait a few minutes. I have no idea why. Her night meds are supposed to be 8pm but she has now changed that to 10:30/11pm so Dad is giving her her night meds, as Im normally asleep. I dont know if that the right thing to do but she isnt going to listen to me and do what I say, the basics are a fight. She is however very demanding when she wants her meds, if she has determined that now, right now, is the time for them.
She was asking last night for more control over her medication, this is a week after she admitted to having a stash. I dont understand how she thinks thats going to happen. She carries on about being honest, when your not doing it and your able to be trusted not to do things like make a stash, then we can talk. You know, one week after saying I have a stash, oh Ive been honest, I dont think thats good enough, I dont trust you with your meds. You have given me no evidence that I should trust you. Now if her suicide prevention guy or Doctor says to me to loosen the grip and we have a chat and I know what to do going forward then yeah no prob. Honestly, I dont want to be doing any of this, I dont want to be handling her medication but I will if it means she stays alive.
The thing that she needs to wake up and realise is she isnt in this boat alone, like the rest of the family havent been in hospital recently but we are all struggling with our own serious battles at the moment. I do kinda feel for Mum, she has no idea why my sister is so mad with her, she has lost her relationship with her and has no idea why, I dont understand why she doesnt get it but my sister hasnt yet told her what she has done, she isnt ready to tell her which is fine, but it leaves Mum in a crappy position too. Which doesnt aid Mums mental illness, that said Mum does plenty to antagonise this. Just last night she was on about people collecting stuff for her, when we have all said that we are not collecting any more. I mean she rang me, cause she couldnt get hold of my Dad, then she got mad because I spoke poorly to her when she was asking me to pick shit up, when I have very clearly stated on more than, I have lost count occassions, that I will not be picking stuff up, not at all, no more. My Dad has made it clear as well and we have told her to leave my sister out of it but she keeps going and going, and I dont have much tolerance for any of it, like anyone, about anything, my tolerance is really low.
Dad isnt doing well, he seems angry pretty much all the time and you cant talk to him. I do know from what he says that he is struggling for SI. He interacts ok with my sister as far as I can tell. He seems to pull himself together to talk to her but Mum and I seem to be on the outs. He really needs to get some help, he needs to talk to someone and probably take some medication to help him but he is a very typical older male that has it in his head that he just has to tough it out on his own and he just isnt winning it and the rest of the family is suffering. He doesnt see the point in talking about it, its not a solution so why bother. He just wants things fixed, things the way he wants it and he doesnt understand that its not going to happen that way and the talking to professionals is to help him process whats going on and how to better manage his reaction to it. Its not about fixing the situation, its about helping you manage you and your relation with the situation, which in the long term helps resolve or add to the resolution of the problem. But he is stuck on, I want it fixed and fixed now. We have beeen given the opportunity to work with a place that helps with our kinds of situation. When presented with the opportunity, it was while my sister was still in hospital and Dad was enthusiastic about going, now he doesnt see the point, again its not the answer. The thing is he knows what needs to be done, its hard, its a fight, but thats not the answer he wants, he wants people to just be compliant with how he sees things, just live as he says and not argue.
Im clearly not doing well, I mean thats pretty clear from my past posts. Im struggling with SI in a very strong way. I have a range of MH issues happening, severe chronic pain. I have a heap of doctors appointments and at least 2 more procedures planned for the year. Im off work at the moment cause my MH is so bad and now my pain. Im working through the processes to get a ongoing psychiatrist and psychologist. Im on the wait list for guided services through SANE. I have a support person, though pretty unreliable, the appointments seem to change a lot. Im hoping that once Ive seen the Psychiatrist and we know whats causing the spinal pain that I will be able to re-appy for the NDIS and get some additional support. I mean, I need support for the MH stuff and more than I am getting now. I need to work on this new diagnosis of CPTSD, that has triggered a lot of stuff from my past. So I dont know how I am going to do that and deal with all my other crap. I have a suspicion that I will see a psychologist for the CPTSD who does a certain treatment style (CBT/DBT) and then maybe another psychologist or therapist to deal with the other MH issues. Who knows maybe they will roll into one psychologist and it will take a long time to deal with everything. Amoungst all this I need to get my shit together and get back to work. Ill be on reduced hours for a while, there will be a bit of time set to appointments etc.
So my sister needs to realise that all of us are struggling, not just her. She needs to understand that people are not firing on all cyclinders, Im not going to remember every appointment she has, who her people are and who she goes to and who picks her up. I dont expect her to remember all her appointments, we have a shared calandar but its new and Im getting my head around it, instead of using my normal calandar, my preferred calandar but Im trying for her sake. Just a bit of understanding and effort on her part would be appreciated.
Im really shaky today, I feel really anxious, Im not sure the reason. I mean I dont feel well and Im still in pain, but I wouldnt think enough for the shakiness. I have a few things to do this afternoon/night but nothing anxiety provoking. Im trying to keep things as calm as possible, my sister is out at the moment, Dad was with me for a bit and he makes me anxious at the moment but not like this. I suppose its just one of those days when the anxiety has decided that it wants to roar a bit more than normal.
Its an odd thing, Im 42, I work in a bank dealing with Bankruptcies. Ive worked for the bank for nearly 15 years. I like it, its a good job and all, best one Ive ever had. But I have no idea what I actually want to do, you know if I had an option to do what ever I wanted I have no idea what I would actually do. I think I might like to do something in the mental health field, I dunno. Financially it would be a fair drop financially I would think, which shouldnt be a driving factor but my life, medical etc. costs a lot and so Id need a job that would pay enough to cover that. If I didnt have the medical costs, I probably wouldnt have such a drive financially. I might like to do something in supporting people, but maybe more around getting greater supports and funding in general. I dont know much about those roles but something where I am working in the bigger picture, where I am trying to get psychology Medicare subsidised without restriction, not 10 or 20 sessions. Treatment for mental illness, any illness shouldnt be limited in its subsidies. Increasing rebate on psychiciatrists. Greater community supports, programs that benefit those with mental illness to improve their lives. But I know ideals, isnt limited to the most serious cases, that there is the ability to intervene at earlier stages to prevent the escallation of MH. For instance, my sister was sent home from hospital and other services when she was desperately looking for help. There should be an avenue for a person who has SI, who hasnt attempted, to get intervention assisstance so they dont progress to an attempt or a success because there is no where for them to go immediately. That would be the difficulty if I went into that field, Id want to bit into the apple real big and get the whole thing, not tacticle advances like, getting 20 psychologist visits, I think thats pathetic but I understand you cant fight for everything at once, though I dont always believe we shouldnt try.
I did manage to shower today which Im happy with. I made sure I got Dr Appointments coming up for a while and I set my other small tablet up and setup the shared calandar on that so I can see whats going on. I got a few appointments in next couple days. I got one on Thursday with the Insurance Company where we will look at supports that I might need and find helpful. Im looking forward to that one because any additional support I can get is a good thing. I forgot to go get my Webster Packs while my sister was out, I got enough for tomorrow and I got a doctors appointment tomorrow so whats the bet that Ill have more meds anyhow so ill have to grab them tomorrow, but I will have to remember, I dont like to be down to the bone on my meds.
I know I kinda dribble shit at times, I mean it is called Malen's Babble for a reason. By this time of the post Im reasonably confident no one is reading, this is for me more than the reader. I mean of course I want to make it worth reading but I just doubt anyones going to get this far. Shout out if you did lol. I dribble at times, I dunno its whats stuck in my head at the time Im writing. Some stuff just plays on my mind, no matter how mundane and getting it down on paper seems to help clear my mind of that particular thought process, its just sometimes really mundane and would put readers off.
While Im not terribly interested in friends and the like, people themselves are interesting, why we do what we do. I have been watching YouTube and Facebook Watch cop/jail shows. I know its only a very narrow view of society and its a limited view of each situation but it facinates me why someone chooses to go on a highspeed chase with cops, why they keep doing the same thing (selling drugs/taking drugs) over and over again and getting caught repeatedly. Like prostitutes, litterally get caught and as soon as they are released are back at it, I get they might have a someone forcing them etc, but it amazes me the turn around time between jail and repeat. I suppose there is the aspect of wanting more for MH. I would want more for the jail system, Im not saying for the arresting and lock up process but there must be something that can be done with the data available to reduce the criminal behaviour. Money seems to be spent willingly on jails, prisons and officers but if some of that was redirected into community programs, employment programs, going after the higher levels for being arrested but lower moving into community programs that take them out of their lifestyle. So drug dealers would be helped to find a better way but suppliers and the like are off to jail. Ofcourse repeat offenders would have to go the jail route but best I can tell the low level people are coerced into it or know no better. I agree Im a bit of an idealist, but with the data available and people with impressive minds should be able to get together and find a system thats better than what we have. I think there is an opportunity to rescue people from a life of crime and give them a stable, healthy life. I think there is an opportunity to minimise the impact crime has on impressionable and vunerable kids getting groomed into crime at an early stage.
I really dont understand why I have been given so much responcibility regarding my sister. Everyone tells me how much of a screw up I am, how I have screwed up my own life so why make me as responsible for another person as they have. It doesnt make sense. Ill admit that in a lot of ways my life is messed up, financially Im screwed, unless my financial lenders were to really step up, as in waive the debt or significant part of it to make the repayments really low then Im gonna have to let the debts be onsold and see if I can get a better repayment deal with the debt purchaser, if thats the way they go. They have been giving me moros but it only delays the inevitable, my situation isnt improving, its getting worse and I dont forsee a time where I will financially be in a position to now afford my debts. MH wise Im screwed up. Medically Im screwed. I have no partner. I live with my parents and Im like 43. I dont even have a car, or the funds to get one. I have relied regularly on my sister and/or Dad for things financially related. Now tell me how I should be looking after anyones welfare, looking after anyone's anything. On a positive side I havent been given any ownership of her finances and going by history thats probably a good idea
Lovely dig by my sister that Dad will do this and she will do that and Ill do nothing. Because Im loving not being able to do anything, and really she hasnt done shit (for the family) since she got home. Shes messed around with some of her crap but spent plenty of time driving about. If it wasnt for the pain Id be doing much more, I was doing much more. I dunno maybe they will increase my meds and allow me to do more.
Its amazing how unappreciated you can be made to feel. I travelled hours upon hours, hundreds of kilometers for months on end to make sure my sister was ok and so she had someone there with her. I trashed my own mental health and finances more by going on unpaid leave because she needed me and all I have had is how I owe her money, because I kept running out, a wage and borrowed money from Dad only goes so far. So I borrowed money from her to make ends meet and to be able to continue coming down to see her. I then started borrowing money from my Dad as I had no income again to help her primarily. I didnt want her alone, she didnt want to be alone. Someone had to deal with doctors etc for her cause she couldnt. When I wasnt travelling to her, with her or with my doctors I was at home cleaning or preparing her next bag to be taken down. I completely wore myself out, I wasnt buuring the candle at both ends, I was burning it in the middle and there is no appreciation, not even acknologment of what you have done or the sacrifices you made.
I would like to say that if I were to do it again I would do it the same but I dont think I would. I think I would be much more conservative financially. I think I would have had boundries in place and wouldnt have allowed her to encroach upon my work life, I would have told her that she would have to wait until I was finished for the day.
I dont think she realises how demanding of my time she was, how irratic her behaviour was. How intense and angry she was. She felt like all the doctors and nurses were against her. There was an amazing dose of paranoia and aggressive behaviour. It wasnt something I have seen from her before, or anyone directly before. I would go down and I felt like I was half giving support and half bouncer. Even then she was still hurting herself when I wasnt there or she would call in a tirade, often with me having no idea what was going on, a few times for the entire call it was yelling and screaming and then the call would end. I dealt with a lot and most of it on my own without anyones real knowledge. I doubt she even realises the hell she put me through.