I sincerely apologise about several notifications.
This is another edited version purely wanting to ensure that I not be intrusive or invasive.
Hello @Alicia2022 and family
I very much appreciate your responding to me and want to let you know that this in turn helps me so very much also.
I too have felt very alone on these forums on numerous occasions due to my own unique circumstances with an older son.
He went missing for quite some time and on several occasions.
He fled the state in terror.
He has had a very long lonely journey and sadly experienced hospitalisation within public system in several states across the country. These stays only serve as bandaid options and further exacerbate the illness. The patient is left losing all trust and feeling more unsafe. Diagnoses are not reliable.
After the last two hospitalisations with much longer stays, is now been deemed as having a very serious, long term untreated serious mental health illness. Still no external help or medication. They also believe as I have known for some time that he is definitely on the autism spectrum. He stuttered from an early age also. He has been bullied and teased by peers and ostracised by the education system.
I have never given up on him even though others have.
Other family members have tried to advise ( as you mentioned the last thing needed) I have been told to let him go! How does one let go of a child whether an adult or not?
He is still there reaching out to me when he needs me through his illness.
This is not easy to experience.
I am his mum and will always love him and be there for him when I can. This I tell him consistently when allowed to respond. Most times I am only able to listen or read.
He is a man now.
He has had his IQ tested during a recent involuntary hospitalisation as he has never accepted being unwell.
They cannot believe that he has probably lived with this since the age of 8, now nearly 43.
They cannot believe that he has survived this long after experiencing what he has. I will not go into details.
To this day he refuses to accept any diagnosis other than slight anxiety.
He therefore does not see himself as unwell just existing in a cruel world.
He has never had long term therapy of any kind or a regular gp; social worker; counsellor; mental health worker.
He does not believe that he has mental health issues.
I tell myself that I understand if a person adamantly believes that they are not unwell and that the rest of the world are trying to persecute him, it makes sense that he would refuse treatment and medication for an illness that he believes he just does not have.
I have said to others would you take medication or accept counselling if you did not think you were unwell?
He exists within a different plane to the rest of us.
I believe that the medical world needs to pay more attention and spend more time listening to parents or a parent who knows their child the best.
He has chosen to keep his life very secret and private from the world. A safety net.
His father and I divorced a long time ago and he along with myself cannot ring him, text him email him and most of the time visit as we do not know any information. He hides all information of his communication.
I do maintain contact with his dad relating to both of my sons. This has helped them see that we can still communicate and be united in support even if not together as husband and wife.
I have on occasion been able to visit my older son during hospitalisation after being contacted by the different hospitals.
He is very clever with IT and has studied at great lengths security.
I have carried him since he was a baby when all the specialists did not listen.
I have lived my life holding this to my heart not sharing with work colleagues or friends as the illness is so stigmatised and my son asked me to not tell anyone that this diagnosis has been mentioned.
I withdrew from many friendships where I constantly heard about family joy and successes.
I have been lost for so long
There are still most in my life who are unaware.
I have remarried and my now husband honestly acknowledges that he just does not understand. This I can accept. He supports me in other ways.
It has been such a lonely journey. It always will be. I know this deep in my heart.
I too felt unwelcome by some who chose to leave comments that were so very insensitive on the Carer side of the forums.
I met a few who whilst unable to relate to my situation were inclusive inviting me to join in on other threads.
I have not yet met anyone as a member of carers australia who has a child with this serious illness untreated for so long. most are medicated whether in touch with their family or not.
My younger son was also traumatised growing up with the behaviours that accompany mental illness affecting other family members within the same household.
I hope that this does not bring you further grief.
I certainly am not writing to try to advise you. I am here purely to let you know how much you matter. All of you.
I am hoping that sharing my traumatic story can bring you some sense of not being so very alone with a life that no single person would choose.
Our stories are so very different of course; as they would be.
We still have both felt alone with them though.
You have taken the path I had hoped you would choose and given your son space to be heard, feel valued I hope and lovingly held by his family. Whichever path you had chosen was your choice to make. So important that it be your choice.
Your holding his hand throughout and holding each other has brought you to where you are now.
I offer no advice as I agree every situation is different and trust me not even highly trained specialists can advise you on everything. Only the medical side.
Follow your hearts as you have done.
Your son will sense this and above all; this is what has helped him reach the space where he is now.
this has also helped your family be united and be there for each other.
It has been an honour to meet you.
Again should you choose not to reply, I do respect your wishes.
All the best for now and every step of the rest of your journey.
Holding you in my thoughts.
Sophia1
ps if you want to write to anyone type @ then a drop down box appears and you can click on the name of the person whom you want to respond to.
I also apologise about several notifications.