going off medications

@StuF it is the medication of last resort I have been told. I am glad that you dont get any negative reactions but the once monthly blood test sucks.

Do it slowly and try not to be scared because your feelings are valid

@Bunniekins

Well, I was used to regular blood tests for my other health condition, but yeah, these ones coupled with only being able to use a set pharmacy, get in the way of life sometimes. Every single month.

But the only other bad thing is the tiredness. Which is bearable, but I don't exactly rock on much any more! 🤣

Anyway, s*** could be much worse. I do hope you can get sorted

@Bunniekins

Hugs

I know a few people with serious schizophrenia who lived many decades "successfully without meds". Maybe I just know more people with mental illness than average. Eg; My ex went off in early 1990s and told me this week he is swimming and going to art classes ... he drove me up the wall tho. Like Really. Never Mind.

Reclaim your power over your meds and your body. Slowly. I usually tell my pdoc after the fact ... like 3-6 months later ... he knows now I am serious about tapering down and off. There was no need for dishonesty.

The way my son's team is set up is much more invasive and controlling of him. Orders and all that. I wish we could swap places. I want his body to be free ... but it is out of my control.

Work within what you can control ... get chemist to explain webster or label ... or change chemist. We are told to "seel help" which then puts us in helpless position and its hard to

If your 'team' helped out with your son and that is contained, then maybe it is time to improve things a bit.

The meds do not control hallucinations they take the edge off ... work on strategies ... if this ... then that ... Face your fears ...Fear is real ...but it is just a feeling of fear ... side effects of long term meds are real ...I always have a reality detecting metre ... somehow just grew it meself ....they did not tell me that was genetic ...

Love you.

@Appleblossom @StuF thank you both for your kind words. You too @-JJ- @TideisTurning and @Emelia8 for your support. Love pea xxx

G'night @Bunniekins

I hope you hear back from your mental health nurse

Catch you tomorrow 🙂

@StuF Good night StuFxx

@Bunniekins I am so sorry you are dealing with this issue it is horrible when professionals dont listen and would rather stick with things how they are even if the meds are hurting you physically. i am in a similar situation the current med they have me on is causing a lot of unwanted side effects but i am not allowed to stop it and they just keep saying give it more time and your body will get used to it. but anyway i guess if it was me in your position and i was having the serious side effects like heart failure i would want to find me a new psychiatrist who would be willing to look with a fresh pair of eyes and who actually listened to my concerns. are you being treated by a private psychiatrist? if you are it is possible to swap psychs if you are in the public system it is much harder.

you have a right to be physically and mentally healthy and they shouldnt be forgoing one for the other.

Hey @Eden1919, I'm so sorry to hear you're also struggling with medication & it's side effects. As I mentioned to Greenpea, I also want to encourage you to keep speaking to your support team, particularly those involved in prescribing the meds that are effecting you to see if they can find a way to support you. I will hold hope that you will also be heard and your perspective taken into account a little more going forward. Take Care,

TideisTurning 🌹

@Eden1919 Hi Eden19 and thank you for your input. You are right they shouldnt be forgoing my physical health for my mental. That has been happening to me for so long. I have a private psychiatrist there is a female psychiatrist who I really like of course there could be the problem that she looks after my son but she might know someone. Thank you again my friend Eden19😘