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The Butterfly Room- ED support

The Butterfly Room- ED support

I have for a long time felt very alone on the forums with my battle with my eating disorder. I didn't really see anyone else talking about EDs, at least I didn't see any threads, maybe a missed them? Perhaps it's the deep shame that we feel and the feelings of being dismissed and misunderstood.

But in the last couple of days I seen a couple of conversations started, you are so brave for sharing some of your story...

I wondered if it would be helpful to create a space to mutually support each other? Yes we have all have different types of eating disorders and our struggles are so complex and individual, but there is something in being able to come together and have real understanding. To break the silence of the noise that is inside our heads.

I know that we need to be mindful of the language that we use around posting about EDs, perhaps @Daisydreamer could provide some guideline?

I have for a while longed to be part of a real life support group, I want that mutual understanding.,, perhaps this could be a start? just tagging @Eden1919 @BlueBay

137 replies

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In response to: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

I have decided to go to my appointment tomorrow and am trying really hard to put more effort into sticking to my meal plan today. Hoping that if she see that from today that she won't see how badly I have gone the rest of the fortnight.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

The last few days have been such a struggle. The ED monster inside my head has been so loud. I hate that so much of the Christmas festivities are based around food. I hate that I've been gifted so much chocolate. I've eaten but I feel so dang disgusting. I want so desperately to restrict. I've not given myself a day off exercise at all. Find myself thinking about how I will get there, the plans I make in my head.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Here with you @Bow

It is a really hard time of year with so much food on offer.

I am sending some loving hugs 🤗 💖

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Lately I've just been wanting to eat sandwiches. Now I just want sandwiches or toast with golden syrup on them.
I usually love my food. But when I'm stressed my appetite bottoms out. I will eventually need an appetite stimulant. I hope my new psych med will help with that. I'm getting somebody to give me moral support tomorrow, I'm scared. My eating problems come in bouts every several months, and I recover after a few months. It's cyclical rather than a constant, daily thing.
In the past when I've had psychological treatment for my eating problems, I'd eventually recover and I'd no long need such psych services as I would eat properly. So I need eating problems counselling on an on-off basis too. Tonight I'm just asking for moral support. Could you please bear with me as I make adjustments to my mental health treatments? Thanks so much lovely peeps! I will be in and out of this thread sporadically, if that's all right. I'm at a bad phase where I need to keep coming here until I recover again, with some peace for several months between bad eating phases. Thanks again XXOOO!

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Hi @Bow, I'd like to offer you a handshake and a hug! I am thinking of you! I'm sorry to hear you're having such a hard time coping. You're doing the best you know how with your circumstances.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Hey @Former-Member here to offer as much support as I can. I’m not in a great place myself. My ED is very loud and relentless and I’m not in a good place medically.

glad that you seem to know when you need the extra support around your eating? That’s an important step to know.

In response to: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

I really wish there was more of an online community for ED recovery. It’s so helpful being able to talk with other that actually understand.

I went and did the groceries this morning. It has become a task that I greatly dislike. My ED tends to be very loud and I buy minimal things, mostly things for my daughter. Occasionally I will pass something that my healthy self would like but my ED says no. But do I need to buy some things just in case I do want to eat? But then I don’t want to waste food either if I don’t eat.

My case manager came around this morning also. She asked the usual questions, when did I last eat and what was it, have I had any water today, what physical symptoms am I currently feeling. I had nothing positive to report back to her unfortunately. But I did tell her that I will go get my bloods done…. This has been something that I have been fighting against recently, My gp will request them anyways.

anyways, just rambling. It’s a lonely journey.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Hi @Bow Have you heard of the butterfly collective? Might be something to look into. Your stories are so insightful and I'm sure you touch more people than you realise. I hope you continue sharing your recovery journey. Baby steps 🙌💝

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

I have heard of the butterfly collective @Paperdaisy and signed up for it ages ago. Maybe I’ll share a bit of my journey there…

In response to: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

I seen this on my social media today. Thought I would share it 💕

 

 

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