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Recovery Club

The Butterfly Room- ED support

The Butterfly Room- ED support

I have for a long time felt very alone on the forums with my battle with my eating disorder. I didn't really see anyone else talking about EDs, at least I didn't see any threads, maybe a missed them? Perhaps it's the deep shame that we feel and the feelings of being dismissed and misunderstood.

But in the last couple of days I seen a couple of conversations started, you are so brave for sharing some of your story...

I wondered if it would be helpful to create a space to mutually support each other? Yes we have all have different types of eating disorders and our struggles are so complex and individual, but there is something in being able to come together and have real understanding. To break the silence of the noise that is inside our heads.

I know that we need to be mindful of the language that we use around posting about EDs, perhaps @Daisydreamer could provide some guideline?

I have for a while longed to be part of a real life support group, I want that mutual understanding.,, perhaps this could be a start? just tagging @Eden1919 @BlueBay

137 replies

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In response to: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

I am really struggling tonight no matter what i do nothing is enough and my head wont stop screaming at me and idk what to do anymore i cant take this much longer it has been 18 freaking years and it just wont stop.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Sorry to hear youre in pain @Eden1919
I hope you find solace soon
Sometimes i think similar things about myself as i get depressed about myself.

Take care

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Hi Eden sounds like it is a real struggle for you tonight, we have sent you an email, please look after yourself and check in with the supports as well as contacting appropriate suppprts if things escalate for you. Please take care

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Hey @Eden1919 hoping that you managed to get through the night and you can be kind to yourself today. Sorry that things are so difficult for you at the moment. Hang in there 💕

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

When I want to listen to my body, be kind to it and nourish it, yet my eating disorder is screaming at me not to. 😩

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

@Bow I am sorry you are dealing with that is there anything that usually helps?

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Yet to find anything @Eden1919

In response to: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

This morning I got my friendly reminder text for my appointment with my dietitian on Saturday. I am trying to decide whether or not to go. I don’t want to keep wasting her time- that’s what I feel like I am doing. I need to think hard about whether I am really ready for recovery? Am I willing to commit to it?

Last fortnight she put together a nourishment plan for me to help keep me medically stable. I have hardly been able to stick to any of it. It is just too hard. I rarely have lunch and if I do it’s just an up and go. I rarely have the snacks. With everything else that is going on around me, restricting is my go to way to cope. I know that I need to be using this nourishment plan because I am having increasingly more episodes of feeling dizzy and lethargic. But what more can my dietitian do for me if I can’t stick to this plan?

I feel so defeated by this eating disorder. It’s stolen so much from me and slowly destroying me.

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

@Bow I can really feel how defeated you feel by this. You deserve recovery Bow and you show so much strength and bravery just coming here each and every time that I know you can do this. You are not wasting your dieticians time, she wants to help you and you deserve that support. Are you able to web chat to someone via the butterfly foundation?💕💕💕

In response to: Re: The Butterfly Room- ED support

Re: The Butterfly Room- ED support

Thanks @Paperdaisy I've tried really hard today and have done better, but am still under my meal plan.

yeah maybe I will connect with the butterfly foundation

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