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Daughter catatonic

Daughter catatonic

I'm really struggling keeping tears at bay these past days and just feel so bloody sad. Can't seem to find my mojo. Although my girl is no longer catatonic, her mental health is deteriorating once again and has become withdrawn, isolating herself and emotionally unresponsive. Is becoming very abrupt with the wonderful nurses looking after her and still refuses any contact with me. It was her dads birthday Boxing Day and he passed on the message to her through her nurse that all he wanted was for her to talk to me. Still an abrupt "no" was her reply. Our girl has been in hospital now since August and will remain there until a place becomes available at a more suitable hospital/rehab. This grief I'm feeling is simply overwhelming. Her team has recommended a Public Guardian be appointed to oversee her life decisions and finances as she is not communicating with us so therefore we can't help in that area either. Oh what a mess. I can feel her slipping further and further away from me and there's nothing I can do. How does one deal with the loss of a child when their still present. Any advice would be greatly appreciated. Thanks for reading.

20 replies

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In response to: Daughter catatonic

Re: Daughter catatonic

Hugs @Krishna 👂🙏🤗💞

In response to: Daughter catatonic

Re: Daughter catatonic

@Nevergiveupmum Thank you. Hardest thing I've had to deal with seeing my girl in a catatonic state and yes a roller coaster ride these past months, years. I hope your daughter is doing better now. Trying my best to look after myself but some days just filled with despair and worry and some days just moments. I have to remind myself to take each day as it comes and continue to live with hope of better days ahead and know that she is being cared for and safe. ❤️

In response to: Re: Daughter catatonic

Re: Daughter catatonic

🥰

In response to: Re: Daughter catatonic

Re: Daughter catatonic

Thank you @Anastasia . This forum is such a blessing. Hope you're doing okay. Much love ❤️

In response to: Re: Daughter catatonic

Re: Daughter catatonic

It really is. I think if you and your beautiful girl often @Krishna

Praying next year brings about change for you x

In response to: Re: Daughter catatonic

Re: Daughter catatonic

I been to a place where I thought im loosing my mind ! Unless your living this its just impossible to understand. My girl now 21 had just turned 18 and was doing great I thought, but then 8 days after her birthday she stopped eating then stopped drinking then stopped talking. I didn't know what was happening and thought she had a seizure or stroke. I didn't want to believe that it was a mental illness. We where in and out of hospitals for 2 weeks, it was horrendous!! She just got worse and worse.... then eventually she got taken to a closed mental health unit. I took her home after a week thankfully and i nursed her back to kind of normal myself. She had two more episodes of catatonia but they where not as extreme as the first. I now finally largely thanks to my own research understand that what she suffered from is die to autism. Help and understanding is still hard to find but i have desensitised. I know who the real her is , my sweet and loving angel 😇 i because of this o mever give ip on her , even during those times you are going through now , remember she will come back to you ! At the moment shes in a safe place, and yes you probably hate her having to be there and to loose all control, but this is the time you need to take to build your own strength cause you will need to be strong and well and resilient for when she comes back to you xxxx

In response to: Daughter catatonic

Re: Daughter catatonic

Hi @Krishna

My pleasure

Oh no, that’s so disappointing

I can recall a few occasions when I’ve reached out to various organisations for support and there were so many pauses in the conversation and so much ‘dead air,’ that I actually asked if anyone was still on the other end of the telephone!

In that moment I actually felt more alone and distressed, as the prolonged silence communicated to me that perhaps the other person couldn’t relate to my experiences and / or they were at a loss in terms of what to say and how to support me

Accessing some support through a Mental Health Care Plan sounds like a really positive step and I hope that you find the support that you need at such a difficult time

Take care,

ShiningStar

In response to: Re: Daughter catatonic

Re: Daughter catatonic

@Nevergiveupmum I'm happy your girl got through those episodes and you were able to help her along the way. Sadly my girls is due to schizophrenia and had to endure 20 ECTs which has helped immensely and has remained stable regarding the catatonia for a few weeks now. But her mental health has deteriorated even further resulting in an emotionless void, abrupt and isolating herself. She's been in hospital since August and I continue to send her letters and gifts to keep the connection open and staff pass on my messages of love and support weekly. I just keep telling myself "one day". Thank you for your understanding and support.

In response to: Re: Daughter catatonic

Re: Daughter catatonic

I spoke to someone from SANE. Yesterday. They were really really good listened so well gave good advice and I never felt hurried. Thank you to that person.

In response to: Daughter catatonic

Re: Daughter catatonic

Hi @Krishna , I have been in attendance at several Guardianship hearings and, without exception, parents who want this responsibility have always been appointed.

It’s the same with managing finances if you want it, and your daughter is considered not competent, you have every right to apply and be appointed. It will save your daughter money as she won’t have to pay the fees charged by the public trustee. It’s a bit of work for you as you need to present a yearly budget.

You can download the forms on your state’s govt website.

Happy New Year!

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