My Mosaic

Thanks @Captain24 @Snowie @FloatingFeather @NatureLover @Eve7 @Jynx @creative_writer @tyme @Emelia8 and anyone I may have forgotten who has provided me with support and encouragement over the last few weeks, I really do appreciate it!
it’s so nice to be home and squeezing my little girl! Looking forward to celebrating with her tomorrow.
💕

@Bow Thats such good news 👍💝😊

Please keep up all the good work that you have started in hospital. Do all you can to keep any future relapses to a minimum and manageable. I know you will do your best. 🌷

Happy Birthday to your daughter @Bow. Enjoy your day with her

Great news, @Bow ! Happy for you! Hope you and your daughter have a great day celebrating today!

Dear @Bow

Thinking of you today as you celebrate your little girls birthday. Whatever you plan to do, it will be special because you are there with her. Nothing beats that.

💗🌻🌷🎂🎁🎉🎀🎊

@Bow

I hope you have a great day with your D today. I am sure she is looking forward to it.

Please remember how far you have come to enjoy this special day

@Bow Sending good wishes for you today...I'm aware that after the excitement of making it home for your daughter's birthday and also celebrating yesterday, you may feel a let down.

Thank you @NatureLover @Snowie @Emelia8 @Captain24 for the birthday wishes for my daughter. She… we… had a good day. We had family over for a pizza dinner and cake.

my body is still really tired. Having to adjust to being up and slowly starting to be more active after being stuck in a bed for so long in hospital. The short walk for school drop off has been spent! And yes @NatureLover The let down is real. It’s a weird feeling after so long in hospital. Felt so safe there. Secure. Cared for. Now feeling rather vulnerable.

Today ended really shitty. My case manager called my mum to discuss my meds- didn’t even call me, they pissed me off to start with. Since when does she go straight to my mum without even speaking to me???

my case manager had a meeting last Friday with her boss,,,,, cause I ended up in ICU again, there they decided that my meds need to be dispensed every 3 days, and they want to discuss with the pharmacy about them being delivered, they currently deliver my Webster packs fortnightly but I doubt they will agree to it being done every 3 days. My meds are already Webster packed, locked in the safe and now my gp wants my mum to actually watch me take them, which I agreed to. The 3 daily and delivery is just overkill. I’m so annoyed and angry that they keep taking more and more control away from me.

think I will just not bother with meds anymore. I’m sure they mess with my body way too much anyways. Screw them all.

my case manager is coming to visit tomorrow morning, and then I will see her again on Monday I assume when I see my pdoc- I’ll tell them then not to worry about meds anymore.

urgh why’s it all so bloody hard???