My Mosaic

I am so fuck!ng angry. I just had a phone call from my case manager, we chatted a bit but then I asked if she got my message from earlier in the week. She did.

My pdoc put me on a stimulant medication earlier in the year. He had to apply through nsw health cause it’s off label. He then went on leave, supposedly coming back in October, so he made sure I had enough script to last me for this medication. I picked my meds up Monday and the chemist said I have 10 days worth of meds left. So I did the right thing and let them know well in advance cause I thought it might be a hard script to get. I am now told that my pdoc is still not back and is away for a further 3 months. And goodness knows if he will be back after that.
My CM said that none of the other pdocs there can prescribe it, so I have 2 options, work with my current pdoc to reduce and cease the medication. Or go private somewhere and get it that way.

neither of them are ideal.
1- reducing and weaning it how???? I’m basically going to have to go cold turkey cause I will be out of meds and no one else can give me any to wean off!!!!

2- the wait list alone to see a private pdoc is 12 mths in our area!! And I can’t afford it anyways!!

so they have totally screwed me over!

Oh my stars @Bow what a horrible situation to be in!! I'm so sorry hun, you have every right to be f%&king angry about this!!

I find it a little bizarre that literally no one can do this prescription except this one particular pdoc. He couldn't come in one day to sign off? Grrrr

How are you going to proceed? I would say it is very okay to sleep on it a night or two!!

Still reeling @Jynx I’m so angry with them. Screwing me over again and again.

yes, I find it really strange that no one else in the clinic can do it. Surely there are folks on it for adhd and stuff.

im currently writing a letter to my local member of parliament. He is also a pediatrician and is usually good at at least hearing people out. It might get me nowhere.
I will also be having further words with my case manager and anyone else there that will listen.
And yes, I will be asking why he can’t just write the script and mail it in for me?

Oh and @Jynx my CM was like ‘oh were you aware that this stimulant can decrease your appetite so maybe it’s not such a bad thing to stop cause we don’t want to make your ED worse’

fuck that bull shit excuse. I’m full aware of that side effect. None of them told me about it, but my dietitian flagged it with me and so did my gp. Grrrrrrrrrrrrrr 😡

@Bow I am glad that you've got some fire in your belly, as much as it sucks to feel angry. Sounds like it has spurred you into action!! I think the letter is a great idea!! Even if he can't help, I think doing something is still better than not.

Hope your case manager can help you advocate darlin! When do you see her next?

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@Bow wrote:

Oh and @Jynx my CM was like ‘oh were you aware that this stimulant can decrease your appetite so maybe it’s not such a bad thing to stop cause we don’t want to make your ED worse’

fuck that bull shit excuse. I’m full aware of that side effect. None of them told me about it, but my dietitian flagged it with me and so did my gp. Grrrrrrrrrrrrrr 😡

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Yeah nah that's a bit crappy. Do you find that trade off worth it? Like you find the meds helpful enough that the appetite suppressant doesn't get too gnarly? If it's the same meds as I'm on, which sounds like it might be, I have definitely learned over time a skill that I call 'the gentle art of mastication' 🤣

So I just googled if all pdocs can prescribe this medication @Jynx and apparently they can. So unless all they have at comm mh are registrar, and no consultants (which is pretty shit and poor) then someone is telling me porkies. Surely they have a full pdoc there somewhere!

I wish my support worker was in tomorrow, but she has the day off. She’s working Sunday, so I will definitely be raising it with her then. I can at least vent to her too.

I’m due to see my case manager Wednesday. She doesn’t work mon-tues. I sure hope she gonna be on my side, but I’m not sure considering the 2 options she gave me today.

fortunately the medication didn’t suppress my appetite anymore than it already is.

@Bow well that's a relief, and I hope however this incorrect info got spread about, it doesn't go and ruin anyone else's day! I'm sorry you had to deal with all of that and I hope it gets sorted quick n clean! Some gentle hugs heading your way too hun, what a bloody stressy and depressy pile of poop you've had to wade through! 💜🫂

I'm headed over to PGC soon so won't be as responsive, but thought I'd see how your lego and crafty stuff has been going! Got anything to show off? 😋

I sure hope it can be sorted out @Jynx otherwise it’s stopping cold turkey and the risk of a significant decline in my mh again.

oh Lego and craft! Yes, let me look.

 my flip calendar that I made at my art and craft group

And my most recent Lego, the new Disney set

@Bow yo, flip calendar!! That's a great idea! Was it easy to make? I imagine there's lots of lines to rule up - or did you have the calendar base already and just added the pretty pretty?

WOAH how extravagant!! Did it take a while? I think I can see Belle, Simba, and Moana(?) but who is on the right in the green?