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BPD diagnosis being used by hospital to deny treatment.

BPD diagnosis being used by hospital to deny treatment.

Our 21 year old daughter is under normal circumstances a beautiful, kindly, intelligent and popular girl with no obvious problems. However since the age of 17 she has been subject to shortish psychotic episodes of the most extreme kind, the kind which in less enlightened days might have been called "demonic possession". In the USA several hospitals have diagnosed her as bipolar with episodic psychosis, taken into hospital, treated for about a month and put back into the community where she has functioned normally for nine months or so.

However after coming to Australia over two months ago she almost immediately fell ill, and was diagnosed with BPD. Her care plan, for which we were not consulted or given a copy, says she is "not to be admitted to hospital in emergency situations". So she has systematically been denied treatment and grudgingly admitted only after extended forceful arguments by us, the police and the community sector. They usually take her into Emergency and throw her back on the streets in an hour, completely out of her mind. Frequently they call the police to remove her. Typical statements "hospital is for mentally ill people and she has BPD", "if she was going to k*ll or seriously injure herself she would have done it by now, she knows exactly what she is doing" "laymen might well think she is insane but we are doctors and we know".

This is to a girl who cannot recognise her own mother except sporadically, is completely dissociated and mostly unable to respond to commands, is having auditory and visual hallucinations, throws off her clothes and walks down the middle of the busy road. The police have picked her up about ten times now, and she has had five ambulance trips to hospital; where of course they just release her. We have been evicted because she broke five windows trying to escape, and attacked me biting and spitting. We have been threatened with much worse by the landlord if the police should be called here yet again.

Under the Australian system she is not allowed to go to any hospital except this one, her regional centre.

Has anyone else had a situation where hospitals have systematically denied treatment because of a BPD diagnosis and deliberately allowed psychotic patients to wander the streets in grave danger, despite the vociferous opposition of parents, the police and public?

79 replies

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In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Goodness me... The system is like... Messed up sometimes. *doe eyes*

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Four or five years ago,, I went to see a GP and told her I felt I was slipping......
she freaked put me on Anti depressants and referred me to Psych team. that's cool. she then asked permission to write to my Psychotherapist, who Ide been regularly seeing for over 10 years.

she then ...after two 15 min sessions with her, wrote letters calling me BPD but did not tell me this. so I toddled off to Psych team ....and a few other things happened.
My psychotherapist .....in return wrote to her and stated Anne...that's me.....does not have BBd but PTSD complicated by head injury where I had brain damage. when I first saw the psychotherapist, I was presenting symptoms synonymous to BPD but was under huge trauma.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

*nods* labels can be really problematic @PeppiPatty... That's why sometimes we have to work hard to see past the stuff to the pain underneath?

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

thanks Chemonro,

Like that artwork. Of yours. I must remember to photo embroidery I want to show Hobbit and Sandy.

In response to: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

I. Going to be honest joeflood, please keep me updated on private vs public medical. I didn't find any difference in the state I love in except there wasn't emergency beds in the private......anyway, If I remember approx. Only 30 accessable beds (bit over) in public.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hmm must say I have not yet confirmed there are private crisis/emergency psych beds in Vic. Can anyone say if there are such beds?

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hi @joeflood

That's a very good question - which I don't have the answer for.

Can anyone else help out with this?

My advice would be to call the private health insurnace company and ask them. I would hope they would know.

How are things, by the way?

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Well amazingly enough the hospital have come good. They've pretty well stabilized her over several weeks and found her a decent clean place to stay afterwards, where she will be moving on Mon. She's happy.

It's a pity you have to beat them around the head with a cricket bat for months before they will actually take on board what common sense should tell them immediately - but I've found in the past that hospitals are like that, every time there's a staff rotation you have to educate all the new guys. Still, in the end - hospitals are there to help people, and in the end they will probably do it .... if you don't die first..

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

I'm really glad to hear that.
I hope things stay on track.

Thanks for the update. I'm sure you have a lot to offer others here in the forums too.

In response to: Re: BPD diagnosis being used by hospital to deny treatment.

Re: BPD diagnosis being used by hospital to deny treatment.

Hi JoeFlood, I am in Perth and have a BPD diagnosis. There is the document Clinical Practice Guideline for the management of BPD. Here is the link: http://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/mh25_borderline_personality_guideline.pdf

I am so sorry to hear of your journey with your daughter. These above guidelines state that no-one should be denied treatment at a hospital. Well worth a read, although long, but perhaps print this out and take it with you if you have to go to hospital again.

I am now a peer support worker and go everywhere I can to tell my story that BPD is a treatable and recoverable mental illness. I speak to mental health professionals at all levels and am hoping to be able to do staff training on at emergency departments to advocate on behalf of people with BPD so they get the right treatment. I also advocate for my clients when I have to take them to hospital and stay with them till they get admitted. There is no shortage of hospital staff who do not update their personality disorder training and are not aware of the latest research and treatment. Evidence based research states that BPD is a neurobiological disorder and the best treatment (so far) is Dialectical Behaviour Therapy.

There is no shame in having BPD, it is a physical illness brought on by environmental stressors. Sometimes validating hospital staff where you are treated with respect can work wonders. Just having the sense that someone "gets" you can de-escalate a volatile situation. I wish you all the best.

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