Chronic kidney disease & mental health

Hi @Shaz51

best of luck with the tests and specialist.

I always get nervous when doing blood tests, honestly it is so disempowering, the results give the Doctor so much say in our lives. Hopefully your results lead to a positive path.

Take care

Alittleorange

@Shaz51 I think I tried 2 fingers on my left hand (non-dominant hand), but both ached. 😓. I might try a 10-day CGM patch as a once-off just to see the trends over a week period to get some insights. Doing that once-off isn't too expensive, and since my base diet is fairly consistent with what I am eating that would be a good representation I reckon... 🤔 I do wonder sometimes if my very-fatigued times when unexpected could be related at all to low-blood-sugar times -- for example if I take my tablet and then forget to actually eat anything (because something interrupts me lol).

Just got the follow-up call from a place I visited yesterday (literally now). Unexpectedly one of the program they have suggested (mostly for the peer aspect, rather than the actual content of the program) is a body-psychology program for people with chronic illness/pain. I noticed it includes people with diabetes and kidney disease (as well as other conditions; I have some arthritis and other chronic pain). Basically anything where you body's condition impacts your wellbeing and (potentially) how you see your body.

It's interesting, because I have never considered the psychology of how once perceives and accepts/rejects their physical body due to its health / poor-health. But it makes sense. You don't have to comment on this if you don't want to, but I am curious you thoughts if you would like to share.

a body-psychology program for people with chronic illness/pain. I noticed it includes people with diabetes and kidney disease (as well as other conditions;

that sounds very interesting @AlwaysMyself

because i have kidney disease, diabetes, osteoporosis, osteoarthritis , totally blind in one eye and totally deaf in on ear and wear glasses and hearing aid and all these makes an impact on your life, mentally and physically

@tyme , @AuntGlow , @Ru-bee

hello @Alittleorange

how are you going my friend 😊

I wasn't aware of all those conditions, only some of them, affecting you @Shaz51 . And I already thought that you were an amazing trooper! Wow! Now i think you are at special forces trooper level with a Victorian cross award !!

Would this program be something you'd be interested to me to let you know how/what I think of it, if I end up enrolling in it next month when the centre/program re-opens? (no obligation, just depends if its a safe & interesting topic for you to chat about)

Oh @Shaz51

Its a steady grind for you these days with all those tests. I hope it is good enough when you see specialist. Sending hugs

Hey @Jacques @Alittleorange @AlwaysMyself @Jynx

gently bently

Apple

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@Shaz51 wrote:

a body-psychology program for people with chronic illness/pain. I noticed it includes people with diabetes and kidney disease (as well as other conditions;

that sounds very interesting @AlwaysMyself

because i have kidney disease, diabetes, osteoporosis, osteoarthritis , totally blind in one eye and totally deaf in on ear and wear glasses and hearing aid and all these makes an impact on your life, mentally and physically

@tyme , @AuntGlow , @Ru-bee

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That's great to hear about this program @AlwaysMyself @Shaz51

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@Shaz51 wrote:

hello @Alittleorange , @Jacques , @AlwaysMyself , @Jynx , @rav3n , @AuntGlow , @Dimity , @Till23 , @Appleblossom @Chasingsunsets

hello everyone

did blood tests today for my kidney specialist appointment in 2 weeks time

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Oh wow @Shaz51 fingers crossed!!

I'm with @AlwaysMyself you are a very special person indeed, to stay so unflinchingly kind 💜

Keep us posted! Have some huggles 😋

⸜(｡˃ ᵕ ˂ )⸝♡

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@Shaz51 wrote:

a body-psychology program for people with chronic illness/pain. I noticed it includes people with diabetes and kidney disease (as well as other conditions;

that sounds very interesting @AlwaysMyself

because i have kidney disease, diabetes, osteoporosis, osteoarthritis , totally blind in one eye and totally deaf in on ear and wear glasses and hearing aid and all these makes an impact on your life, mentally and physically

@tyme , @AuntGlow , @Ru-bee

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Thank you for sharing this @Shaz51. I can't even imagine how much this would impact your life... despite all that you experience, you always show up with so much optimism. However, having more support might make this feel easier - and you absolutely deserve people who can be there for you (like you are for everyone else!).

Am I understanding correctly that you're exploring a body-psychology program? 🫶

@AuntGlow

@AlwaysMyself is looking into it as it is near her

And she was sharing the link with me but we have nothing up here