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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Mazarita were you aware that you had missed them yesterday...or realised from symptoms today? I believe that some chemists will deliver if inable to get there...

@eth are you about?

sounds like a lovely evening with the fish and chips....We had the same....home made...fresh fish from the fishmongers here which I freeze some of...not as nice as eating on the day...far more economical though...glass of white wine...

we watched a film on netflix based on a true story about an american footballer who played for texas...he played through severe pain in his leg which turned out to be a tumour...he had his leg amputated to his hip....survived another eighteen months...was told could not use crutches so soon after operation...he walked into the stadium ahead of his team at the final on crutches....balanced on one crutch with the other in the air to the roar of the crowd...

needless to say I wept all of the way through...felt very deflated and possibly even more depressed when I went to bed..still feeling the aftermath now....so probably need to go back to the side splitting hilarious....

have either of you ever seen the australian series "Rake".?...we both crack up when we watch it....

I am looking out of the office window where the computer is naturally....duh...the cows are near our neighbouring fence...will miss them when we move...

are you wanting to talk a little more about your trip eth...or are you feeling that you want to keep that private?

In response to: A long rave

Re: A long rave

Hi @Sophia1 maybe you can just sit in the sunshine outside and look at the plants and birds around you. Hope you start to feel physically stronger soon.

Sorry to hear you missed your meds yesterday @Mazarita. Hopefully the dizziness will pass once you have them today. Be gentle with yourself in the meanwhile.

I'm feeling like I'm really tired after 2 weeks of heightened adrenalin whilst travelling and staying in other people's places. The first week it was bed very early and up at 5am with my sister (her cafe opens at 6.30) then the first half of the 2nd week I stayed with extremely nocturnal people, then the camping trip where I was up before dawn every day just because of the beautiful dawns ......... so something of a carousel of sleep patterns and med times. Starting to get back to my normal routine now after a few days at home. And very glad I didn't get hypomanic this time. Mum has commented on how little she saw me while I was in Brisbane, but actually we had her overnight and then spent a whole day with her at a&e with super high then extra low blood pressure, and also visited her another day - I was only there for 5 days so I feel no guilt about it. I'm keeping some boundaries in my relationship with her after my reaction to a week alone with her last year. I managed not to be alone with her too.

The festival was fantastic and my close friend stayed with me nearly the whole time so I handled the crowds and mostly felt safe. Lots of indigenous music, some traditional and some modern, gifts for bro and sil from the art area, and very relaxing days in our camp with 2 close female friends and another younger woman with her 2 young daughters. And my friend catered so well that we didn't have to buy food or even drinks from the festival stalls. All for $50.

In response to: A long rave

Re: A long rave

Morning @eth @Mazarita @Sophia1 @Bunniekins @Zoe7 @outlander @CheerBear @The-red-centaur @Maggie ..... please let me know if I have missed anybody .... or if anybody else is here .....

👋☕️💕

In response to: Re: A long rave

Re: A long rave

@Sophia1, I knew I was missing the meds yesterday but was in such a low energy state I just couldn't get myself out to get them. I was in nightie and dressing gown all day yesterday. Good to know some chemists will deliver under such circumstances. There was an extra complication with it though, that I had to ring the chemist about this morning. The script said it wasn't to be refilled until 22 June (because he wrote the script when I was on a quarter of the dose). So that need to be sorted too before C could collect the meds. Anyway, will really try to avoid this in the future. Doesn't happen very often at all.

@eth, I'm seeing psychiatrist today in the afternoon. This may be the start of the new meds change of one anti-psychotic to another. Stage two of medication changes. I anticipate that this one will be quicker and less disruptive than the first.

I recognise that post-travel adrenaline recovery. I get it every time I get back from down south and it can head me towards depression (bipolar swing). On the other hand, I would not be able to sustain the pace I go at when I'm down south, so it's hard to avoid. Even if I do get kind of depressed after a trip, it's still great to be able to relax again.

So good that your friend came through with such dazzling colours on the catering and care of you. 🙂

In response to: Re: A long rave

Re: A long rave

@Sophia1 I really like Rake too - he's such a character. Haven't seen it for a while. Is it back on now? I was probably typing my last post at the same time as you were. It has some more details of my trip. I'll name some of the bands I saw in my next post.

@Mazarita I hope your psychiatrist ap't goes well and that the next new med is gentle and quicker to stabilize for you.

In response to: Re: A long rave

Re: A long rave

@eth, just a heads up... while you were away the delayed email notifications problem has got a lot worse. Often I'm getting email notifications up to 8 hours after the message was posted! I've let @Former-Member know about this on the tech thread. It's a serious issue which means I'm now constantly hanging on the onsite notifications page, refreshing it repeatedly, when engaged in real time chat. Worth knowing if we rely on email notification for chat.

In response to: Re: A long rave

Re: A long rave

@Mazarita

times like that with medications can be tricky...chemists have to be very careful of course...some have as much personality as blank piece of paper...

changeover in another medication planned...sounds as though you are well prepared and ready to manage temporary symptoms if any....makes it much easier for you...will this be the last change? Are you on medication for your crohns disease? sorry if I have this wrong...

@eth

that was a mammoth journey that you went on.....at a time where your energy was mostly depleted if not completely

....change of scenery...in company of others...travelling...arising at dawn...alternating with night owls

....visiting and spending time with a mum with whom you have to tread on eggshells around (I thought you were speaking of my mother for a moment there)...

huge gatherings....wonderful experience.....great company and food...

you might even feel as though you have been whisked up in a whirlwind....reminded me of my two month visit to UK last year....seems like forever since I was there...the first month was organised by everyone around their families etc....lovely of them to put me up...did get to visit some places that I wanted to...other family members not the case...the whole month was a huge whirlwind for me...I still believe that I was also jet lagged the whole time that I was there....

Sorry about the rave.....you have probably stopped reading by now....

Just wondering if it might be a good idea to put off the NDIS preparation for a few more days...just allow yourself to come back and settle where you are at now....you have done so much in a month...

would love to sit in son...we are high up and wind cool...plus can't sit for too long...

enjoy whatever you both decide to do today...

In response to: Re: A long rave

Re: A long rave

sorry @Mazarita @eth

this is where I get confused further...my responses are so long...you both write briefly...

my bell thing...notifications? doesn't work most of the time....

yes I just keep on refreshing...

having worked with large corporations for most of my career...with any technology update or implementation there are always ongoing glitches for a while after...

In response to: Re: A long rave

Re: A long rave

@Sophia1, thanks. Yes, it has helped since the beginning that I have been prepared for the change and likely side effects of it (although not really known what exactly they might be until actually experienced). Also, my psychiatrist has encouraged me to research the meds he was thinking of for me, and the participate in deciding which might be best. This gives me much more of a sense of being in control of what's happening, even when I feel somewhat out of control with the symptoms (if that makes sense). I appreciate my psychiatrist very much. Been seeing him for about four years now.

In response to: Re: A long rave

Re: A long rave

Hi to you too @Faith-and-Hope Hoping life is rolling along smoothly for you.

@Mazarita @Sophia1 @Bunniekins and others here - some of the bands I saw at the festival : Shellie Morris and Dhapanbal Yunupingu with a backing band that included violin and double base - very special; Bunun choir from Taiwan with B2M from Bathurst and Melville Islands - a real highlight; Blekbala Mujik; Tjupi Band; Black Rock Band; Skinny Fish Sound System including many community bands from all over the Territory doing short sets; Saltwater Band including a set with a beautiful tribute to Dr G Yunupingu, a minute's silence, dancing by 2 of his daughters and singing by his son and nephew - probably the most special of all of it; B2M doing their excellent set without the choir (check them out on YouTube!). The 2 I missed and had most wanted to see were Yirrmal and Caiti Baker (both also on YouTube). And another highlight was the daily Bungul which is displays of traditional dancing and songs also from communities all over. The theme this year was the 30th anniversary of the Barunga Statement (google it) and a new agreement about creating a long overdue treaty now. I'll see if I can find and link some of the YouTube stuff.

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