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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth, isn't it the way with washing sometimes? Just as well we have an undercover washing line. I have an uncanny ability to pick the times when it's going to rain to do my washing! I guess they'll dry again after the rain, just might take a while now!

That's really good with the psychiatrist telling you about 90 minutes sleep cycles. I find it reassuring too.

Yes, it's not just moodiness. It's states of being that have you completely slumped, an immovable object. It's being unable to sleep hardly at all, then sleeping too much to the extreme. It's extrovertedly talking in a stream like rapids. And it's wanting to speak hardly at all, so very withdrawn. The list goes on. It's not just feelings of deep sadness or ecstasy of mood. A complex, heavy duty condition. That's how I'm feeling at this time anyway.

It's awesome that you are doing the exercise bike almost every day!

Yum, your pumpkin fettucine sounds delicious. Butternut pumpkin is lovely, especially when it's grown at home.

In response to: Re: A long rave

Re: A long rave

I agree entirely about all those states of being @Mazarita. It's having 2 days of time in every 24hrs. Finding things to do when it's impossible to settle and sit for any length of time versus having no desire to move or do anything at all. I get rapid speech, inappropriate communication, accelerated thinking, risky behaviour vs not wanting to talk at all. I feel for you going through this dichotomy of symptoms so rapidly at this time. A lot. At such times I use my prn a few days in a row to try to break the cycle. But also see my psychiatrist and psychologits more often (at expense I can't really afford). How many weeks have you been on the new med now? If its an ad, are you on a mood stabiliser as well? My pdoc says the mood stabiliser prevents some of the ad side effects, tho I refuse ad's every time they're suggested because of past experience. I've only recently decided that I have enough support to give it a try if she suggests it again. But she doesn't want to tweak anything until after the hearing.

In response to: A long rave

Re: A long rave

@eth Morning eth your court date must be around the corner now. I know you cannot give us an exact date due to guidelines but know that I am thinking of you and wishing you the best, Looking forward to hearing the result. I definately have not forgotten. 17 days then you will be bravely venturing forth on your trip. How fantastic. I really admire you for doing this ... I dont/know I would not be so brave but as they say 'nothing ventured nothing gained' sometimes you just have to take a giant step forward into the unknown.

In response to: Re: A long rave

Re: A long rave

Hi @Bunniekins yes hearing is on next week. I've been doing my best to avoid fb posts about it and reading all the reports/statements again. But will have to read them again to prepare next week. Thankyou for your kind wishes.

Yes I am going into the unknown to a degree as haven't handled crowds, especially if alone, for quite a while. Also nervous if I have to walk around the festival site alone. But also the known to a degree - I've been there for this festival twice before and will be camped with 2 very close female friends. So I'm telling myself it will be nice just to camp with them and I don't need to join in the festival much if I don't feel up to it. It's a cultural, sport and music indigenous event in a dry Aboriginal community so there is plenty to do during the day.

How are you today? Sorry I sound so caught up in my own stuff sometimes.

In response to: Re: A long rave

Re: A long rave

Sorry I went missing there for a while, @eth. Needed to talk to a couple of collaborators on fb. The current video has reached a stage of completion and looking for feedback from them. Thanks for your kindness about my current tossed-around state. The new med is a mood stabiliser, which is I think why the rapid cycling is happening. The dose I am on at present does not seem to be yet high enough to be a clinical dose. I am titrating up very slowly, as that is the best way with this med. I've been taking it for about 7 weeks now, but only reached current dose a couple of weeks ago. Still some more dose raising to go I think. See my psychiatrist in about 10 days.

Hi @Bunniekins

In response to: Re: A long rave

Re: A long rave

@Mazarita Hi Maz 🙂 Hoping you are rugging yourself up nice and warm today particularly if you venture forth for a walk on the beach at some stage today. Very brisk here but I like that.

In response to: Re: A long rave

Re: A long rave

@Bunniekins, sunny day here. Good that you like the weather where you live. No beach walking for me on the advice of physio. Not sure if it's temporary or permanent.

I need to get off the forum and have a shower, running late on my schedule to make physio appointment.

Enjoy as much of the day as possible, both of you, and all. @Bunniekins @eth

In response to: Re: A long rave

Re: A long rave

@Mazarita Have a love day Maz 🙂

In response to: Re: A long rave

Re: A long rave

Hope you get there and it goes well @Mazarita

Brisk here too @Bunniekins. Proper Autumn day tho' - rain overnight, windy and sunny now. Do you have plans for today?

In response to: Re: A long rave

Re: A long rave

@eth I have been out with my daughter this morning for coffee already and have a book that I have been meaning to tackle for along time so I might have a hot shower get into my pjs and back into bed with a hot water bottle and start reading it. 🙂

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