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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning, @eth. Thanks for your kind words.

So good that you enjoyed the movie and dinner, and that sil's friends accept you for who you are. I imagine the farm might have been a good getaway too for some time. How lovely that you later spent some time at home in the twilight, listening to birds and crickets. I felt more relaxed just reading that.

Side effects not as extreme this morning but feeling sick in the guts overnight and this morning. Better now than it was when I woke in the middle of the night. Hoping it subsides over the course of the day, as the weird feelings did to some extent yesterday.

Wishing everyone here a good day.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita looks like there's a lag on notifications. Hope I haven't missed you. Sorry to hear you're unwell this morning and hoping your tummy settles soon.

In response to: Re: A long rave

Re: A long rave

Still here, @eth. Good to hear also that you are still going on the exercise bike. I have only one plan for today: to go out with C to the supermarket to stock up for the time he's away. Other than that, another day of dealing with being a bit too ill to do anything much. But maybe things will improve over the day and I'll surprise myself.

In response to: Re: A long rave

Re: A long rave

@Mazarita Some days I have a walk somewhere with bro but try to get on the ex bike on other days. Was slack over the weekend. I REALLY need to lose some weight as I'm finding some of my winter garments barely do up and don't have room for necessary layers underneath. I've curbed my snacking between meals most days, and almost cut out chocolate and chips but I'm still floating around the heaviest I've ever been. It's hard to reduce smoking and not snack instead.

Hope you make it out to stock up but don't forget you can get home delivery from coles or woollies and pay with eftpos if you need to. How long is C away for? You'll miss his support no doubt.

In response to: A long rave

Re: A long rave

Sounds like a really lovely day out @eth

In response to: Re: A long rave

Re: A long rave

@eth, me too with the weight. I'm the heaviest I've ever been in my life, by about 30kgs! That's all meds-related weight gain (with maybe a bit of 'middle aged spread' thrown in). Hopefully, once I get through this tough transitional phase, the new med will be better for me. It's not known for weight gain, so maybe then I can even lose some. It's so hard to lose weight on some meds. Wishing you well with it.

Thanks for the reminder about home shopping. We will go out today though, pretty sure it will happen. C is away for eight days. Yes, I will miss his support, and also will miss his company. But it's a fairly short time and will be good for me to stand on my own as best I can for that time. Will probably eat a lot of toasties!

In response to: Re: A long rave

Re: A long rave

@Mazarita totally agree with meds and weight gain - it's def a factor for me too. The only times I've been able to lose some was being hypomanic or manic and hardly eating at all. One of those situations where we have to put our mental health before our physical health.

There are lots of reasonably healthy freezer to microwave meals available now. Maybe get some of them too, tho' toasties are yummy and I'm sure you can live on them just fine. Banana sandwiches work for me!

I wrote a longer post but it's gone into the ether. My internet is flicking on and off again. Hope you see this one.

In response to: Re: A long rave

Re: A long rave

@eth, we don't have a microwave. Bananas are on the shopping list though, and I like banana sandwiches too. Bananas are a good staple. Then there's tuna, which I will probably have for lunches. And other bits and pieces of food I can have for small-sized meals. I'll get through okay. Have done it before and can do it again. C has also just said that he will do the shopping himself since I'm unwell today. He's the best.

In response to: Re: A long rave

Re: A long rave

good morning @Mazarita @eth @utopia

silently waving @Bunniekins and others who might just prefer to stay in the background as I sometimes do....

@Mazarita those side effects sound dreadful....I am hoping that you were given written information on side effects and those to let the doctor know about or stop meds immediately?

I realise that different families of medications have different time frames to settle and demonstrate that they are working effectively...does not make it any easier for the patient though.. I feel for you..

my side effects are coming from gradual weaning of pain killers..

I am amazed that you lasted all that time out with a crowd as well....

thoughtful of you to share the food shopping with C before he goes away for a short time....

your day out @eth sounded delightful ....something that I would very much enjoy...I have read a couple of Tim Winton's books many years ago now...have seen the film advertised...will be awhile until I can go to the pictures again...never mind...

listening to birdlife is what I sometimes do now since venturing outside for brief walks....I am finding that I am grounding myself...I talk to the birds and the cows...

are you going away @eth?

In response to: Re: A long rave

Re: A long rave

Good morning, @Sophia1, thanks for your understanding thoughts about the side effects. There was no information sheet, but my psychiatrist encouraged me to research on the net the range of possible meds (which he gave me as a list), before we even decided which one to change to. This med was the one I thought made the most sense for me. We discussed too which side effects were the most serious and might need a discontinuation of the med, but the ones I have had are not these ones that indicate real problems. From past experience, I already knew I might be in for a bit of a ride in this changeover. So I don't feel I've been neglected in any way by my psychiatrist. Just have to ride this phase of things out.

I'm so pleased to hear you are getting out for walks and spending time with the birds too.

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